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ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 7/31/2008 12:02 PM (GMT -6)   
I was diagnosed with severe LeftSide UC when I was 18 and freshman year of college. I am 32 now.  I have battled this disease since and have never let my chin fall.  Many don't understand what we with UC go through and the adaptations we must make to live relatively normal lives. I am currently in an active flare (for about 5 weeks now). This is the worst its been since i've been diagnosed. I've lost about 40 pounds.  I would get flares about 4 to 6 times a year and was able to battle them off without drugs or medication.  I have finally let the doc put me back on mesalamine  :(. I would usually self-medicate with heavy doses of probiotics combined with juice therapy (spinach and carrot) a little fiber and some time.  I attribute this attack's severity to breaking my right arm about 10 weeks ago and the stress I have endured to heal it.  Next thing I know flare city. I have been unable to sleep for the past 3 weeks due to the NOW factor. Every two to three hours I awake with the urge and throughout the day I am on edge. 
I have been consuming protein shakes and meal-replacement drinks because solid food hurts right now and increases the need to go dramatically.  I guess what I'm trying to find out is has anyone else received an injury and caused a flare of this magnitude?  I also was curious if anyone has any tips on lessening the frequency of bm's?         

njguy69
Regular Member


Date Joined Jul 2006
Total Posts : 276
   Posted 7/31/2008 12:13 PM (GMT -6)   
Eat spinach and lots of it. Eat it raw, right out of the can. Sunflower seeds also. There's a thread about this, you should search for it. You may see results in a few days. No joke! yeah
Asacol - four a day
6 MP - 1 tab. a day
Remicade - every eight weeks.

Post Edited (xtremefit) : 7/31/2008 12:16:53 PM (GMT-6)


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 7/31/2008 1:23 PM (GMT -6)   
Avoid sugar...

my personal belief is that anti-biotics and stress are very bad for UC, try to relax and get as much rest as possible. Avoid milk, sugar, cereals, cookies...anything with sugar in it and see if it helps.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/31/2008 2:13 PM (GMT -6)   
The urgency you're feeling is likely due to rectal inflammation, and oral mesalamine doesn't reach that area very well. You should be on rectal medication - mesalamine or steroid enemas to help relieve the pressure and inflammation.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Pooper Bowl Champ
Regular Member


Date Joined Jan 2008
Total Posts : 68
   Posted 7/31/2008 3:08 PM (GMT -6)   
 Just out of curosity were you put on any pain meds (or any other meds) when you broke your arm? If so, could that be a contributing factor to the onset of this flare? This was just my first thought when I read your post. 

DX Pancolitis 3/2004
Colazol (Generic) 3 tabs 2x a day.
Levothyroxine .137 for Hypothyroidism
Multivitamin


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 7/31/2008 3:27 PM (GMT -6)   
Pooper bowl champ... They put me on vicodin but I refused to fill. I'm pretty good with pain and managed with acetaminophen. That's one of the perks of having UC. Most pains i've come across over the years doesn't hold a candle to some of the nights i've shriveled up in the fetal position with a samurai sword wiggling thru my colon!

xtremefit... I drink spinach juice and carrot. Would the roughage of the insoluble fiber of the raw spinach and the seeds further agitate the walls of my already inflammed colon? Could I add some sunflower oil to proein shake for benefit or is it the roughage that works? I seem to get worked when I eat solid food right now. Prob the reason for my weight loss.

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5167
   Posted 8/1/2008 4:29 PM (GMT -6)   
What about plain boiled rice and/or farina (cream of wheat) to hopefully reduce bms? Seeds are risky with active inflammation. Probably you need to stay on maintenance med after getting this flare under control-- because repeat bouts during the yr should be avoided. They could lead to pancolitis. As to injury affecting UC-- yes, it can. The body experiences more stress, interference with rest, etc. Best wishes for you to feel better ASAP. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/1/2008 5:38 PM (GMT -6)   
well childbirth & pregnancy aren't injuries, necessarily, but you sure do obtain injuries during childbirth! My UC was diagnosed right after childbirth- the thinking behind this fairly common occurence is that during pregnancy, the immune system is naturally suppressed to prevent rejection of the fetus. Then once the child is born, the immune system can bounce back with a vengeance. Plus, the stressors put on the body during childbirth can contribute as well. And you certainly lose sleep right afterwards with little to no hope of ever catching up 'til your kid is....oh, around 5! So all those factors occur with injuries & childbirth, & I think it's relatively common to have your first flare after either. I suppose any stressor on the body would reduce it's ability to fight something like that off.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 8/1/2008 5:48 PM (GMT -6)   
Interesting about why they think many are diagnosed after childbirth. Thanks for sharing, Eva.
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day; Rowasa every 3-4 nights; Canasa every 3 nights;
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv; Zinc supplement every few days


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/1/2008 5:53 PM (GMT -6)   
I don't know if they think "many" are diagnosed after childbirth, but from talking to many people on various colitis/j-pouch forums, I found quite a lot of women who were also diagnosed after childbirth. I know for myself, I had no stomach/digestive issues at all until about 3 months postpartum. My GI did tell me it was not unusual to have the first occurence of any auto-immune disorder to pop up after giving birth. The immune system is such a fragile thing!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 

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