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bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 7/31/2008 2:01 PM (GMT -6)   
I have been feeling great for the last 2 months and cut back on the every other day Rowasas to 1x every 3-5 days (I also take 3 Lialda per day)...we recently moved and have gone through a lot of stress because of it and unfortunately I am paying the price for it with my colon as I started getting some abdominal pain and some steaking of blood on my stool....the odd thing is no D or Mucous with my stool being very firm and smooth surfaced for the most part.
OK so I have increased my Rowasas to every night for the last 5 nights and the bleeding and pain has not gotten any worse but I 'm still not back to normal; approx. how long (days/weeks) will it take for the Rowasas to fully kick in and get me back to remission again?
 
Thanks :-)
 
Moderate pancolitis
Lialda and Rowasa
Careful diet and excercise

Post Edited (bbc) : 7/31/2008 1:08:27 PM (GMT-6)


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 7/31/2008 2:26 PM (GMT -6)   
Hey! Sorry that you're starting a flare up... that sucks. I understand alllllll about moving. My hubby got laid off and we had to move from GA to TX within weeks and had no insurance. I'm in a bad flare up at the moment because of all the stress. It started out with abdominal pain and formed smooth stools... got worse. But I just finally got to a GI and I was put on 4 Lialda and Canasa. I have never been on Rowasa so I can't help you there sorry. But I just wanted to say I understand the stress thing.

Diagnosed with Ulcerative Colitis March, 07






Medications
Lialda - 4 pills in the morning w/ food.
Canasa suppositories


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 7/31/2008 4:24 PM (GMT -6)   
Thanks sweetmelody...hope you get better real soon!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 8/1/2008 2:02 AM (GMT -6)   
The reason you have no diarrhea is because the inflammation is still low in the rectum....a very good sign...remember it starts at the rectum/anus junction (for loss of the proper tern), and spreads upward.

When you tapered to one every 3 - 5 nights ...did it vary from week to week or were you consistent...every 3rd night for a few weeks, every 4th night for a few weeks, every 5th night..etc.?

Moving is very high stress and sometimes the high adrenaline helps to mask the fact that there's inflammation happening until after the severe stress has passed. Then it seems out of the blue.
Low in the rectum flares are hard to sometimes recognise because they aren't the norm until something more obvious happens. In your case, bleeding. It means the tissue is quite inflamed to the point of friability (fragility).

So, you're back to square one....stay on the enemas nightly until you have NO bleeding. Stay on them for another week then go to every second night.

Treating and maintaining is a constant. Try to strive for recognising symptoms, treating early, a tapering schedule that works for you and maintenance that your body will pretty much rule anyway. If you taper too soon, you may have to go back to the last dosage whatever it may be at that time.

One suggestion....whe you insert the enema, squeeze a bit and then withdraw it to just the inside of the anus and start squeezing there then fully insert it. That'll get a good concentration where you need it.

Hang tough...the first year or two of figuring out the meds and then using them long-term is a pita (pain in the arse) and expensive... but the rewards are worth it. At least that's what my 19+ years experience of hardcore 5ASA meds can attest to.

Keep us posted as to how you're doing.

Patience!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/1/2008 9:42 AM (GMT -6)   
Thanks Q, great feedback.

Well I guess I am fortunate that there is no D but the thin stripping o0f blood remains constant for the last week...I went back to the nightly rowasas 6 days ago going from 1x every 3-5 days about 3 weeks ago cause I was feeling so good...It kinda am/was in the perfect storm...lots of stress, cut down on the rectal med and ate excessively. Sometimes I can't always have a BM at night so starting today I am using a rowsa in the a.m. too right after a bm to help get things under control. I hope an extra rowasa in the a.m. won't be too much...I'm also thinking about upping the Lialda from 3 to 4 per day until the flare subsides to be extra safe. What do you think?

Thanks.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 8/1/2008 1:20 PM (GMT -6)   
I think you should stick with the rowasa at night...it doesn't matter if you can have a bm at night or not.

Stay with only one enema a day....night is still best because the body is "quieter"...but if you can hold it in during the day, that can work too.

Stay at 3 Lialda...you don't need 4.

You don't need at max dosage....really, you don't.

Don't expect the miracles to happen...just learn that 5ASA meds take time. High dosages don't make it better.

It's not the food that caused your flare, so let yourself off the hook for that...

I personally think you tapered too quickly....but it's a learning process.

Do you have pancolitis or limited...if limited, to where?

Hang tough....hope you're settling into your new digs.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


tardofit
Regular Member


Date Joined Jul 2008
Total Posts : 28
   Posted 8/1/2008 2:39 PM (GMT -6)   
I have beat myself up for 10 years thinking it was something I ate that caused the flare. For the last 2 years I have since changed my mind,..............ITS A DISEASE and can NOT be figured out(yet)

You are going through what seem like a small flare, I've had a few. NOW what you eat while flaring can make the situation worse!

As far as the meds go, they just weaken the flare, not keep you from it. You will flare regardless of what meds you are on. The meds do help out!

I feel for you, and just as much as you hate it, I hate it with you!!!!!!!
29 year old male
 
12th year suffering UC


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/1/2008 6:22 PM (GMT -6)   
Hey Q,

Thanks again for your insights and taking the time to always provide great feedback.

I have pancolitis moderate but it can go to severe in small spots when in a very bad flair (but only when I was not on any meds) so now for the most part I can go a couple of months doing quite well but when I taper off the rowasas I get little mini flars.

The new digs rock...just trying to get used to some of the new neighbors...my God some people are just sooo selfish and sooo incosiderate; so sad.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/1/2008 10:48 PM (GMT -6)   
PS I placed a call into the co. that manufactuers Rowasa to ask how much empting your bowels prior to using the med improves the effectiveness vs. not. I also asked is it better to use it in the am when I can easily have a BM vs a night when I may not...I also asked if in the a.m. I was able to lie down on my side for an hour would it then be better vs at night with no bm but laying down for 8 hours. They responded saying that they did not have the answers and needed to speak with their clinitions and would get back to me.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/1/2008 10:52 PM (GMT -6)   
tardofit said...
I have beat myself up for 10 years thinking it was something I ate that caused the flare. For the last 2 years I have since changed my mind,..............ITS A DISEASE and can NOT be figured out(yet)

You are going through what seem like a small flare, I've had a few. NOW what you eat while flaring can make the situation worse!

As far as the meds go, they just weaken the flare, not keep you from it. You will flare regardless of what meds you are on. The meds do help out!

I feel for you, and just as much as you hate it, I hate it with you!!!!!!!

Thanks for the 12 years of insight and the emapthy :-)

quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 8/2/2008 2:46 PM (GMT -6)   
bbc...if it's any consolation, I rarely have bms at night before using the enemas., although there are nights where I do have gas and using the enemas do exacerbate it. Great propellant in the morning, however...especially if I'm flaring. No waiting for a bm...that's for sure.

You don't have to lay down for an hour...half an hour is the recommendation (or does it say an hour on the instructions?).
The fact of holding it in is what you need....and if you can do so, that's great.
 
The goal shouldn't be for you to taper off the enemas....you should taper to a maintenance dosage.  And I do flare (minimum symptoms very low in the rectum), which I treat immediately  You can, however, taper to the 2g dosage of Rowasa...you have options.  but one shouldn't be to taper off...keeping the colon quiet is a nice place to be...really.  you have too much at stake to tape off.
Of course, this is all subjective perspective based on experience.

Have a great weekend.
quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 8/2/2008 1:49:10 PM (GMT-6)

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