Yes, in order for you to regain total health and rid yourself of UC once and for all, you should have your rectum removed. I don't understand why this wasn't done long ago? You can meet many others at www.j-pouch.org who have either permanent ostomys, k-pouches, or j-pouches and get their support and advice.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free