Scared with Ulcerative Colitis

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Date Joined Aug 2008
Total Posts : 1
   Posted 8/1/2008 4:39 AM (GMT -6)   
Hi iam 23 and had Ulcerative Colitis. i have had it since i was 13 and i have had lots of complications. I now have  ileostomy the third one i have had. They now want to remove my rectum because of problem and i am scared is there any one that has had this done that can offer me any help.

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Date Joined Apr 2004
Total Posts : 23551
   Posted 8/1/2008 5:39 AM (GMT -6)   
Hi Gemz, welcome to Healingwell :) Only a handful of people here have had surgery. You might get better responses if you post over in our Ostomy forum.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
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Date Joined Feb 2006
Total Posts : 5698
   Posted 8/1/2008 7:45 AM (GMT -6)   
Yes, in order for you to regain total health and rid yourself of UC once and for all, you should have your rectum removed. I don't understand why this wasn't done long ago? You can meet many others at who have either permanent ostomys, k-pouches, or j-pouches and get their support and advice.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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