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Concerned Wife in WA
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 8/1/2008 1:56 PM (GMT -6)   
Has anybody had any issues with goats milk? We tried the yogurt recipe in the SCD diet and he is now back into another flare. Well actually still in the same flare since this whole thing started. he is not getting any better and back to not eating again. The only thing I can figure that started this is the yogurt as everything else is the same. He can't eat again and having a hard time being able to take his pills. We finally talked his GI yesterday into trying sulfasalazine so hoping that may kick in soon.

Can anyone answer this question

What exactly is considered a flare. He keeps having the episodes that put him back in the hospital but has never gotten better since this started in May. He is back to not being able to eat anything and his nutrition level is going down the toilet. He can hardly stomach taking all the pills he has to take and won't take any supplements. Any ideas?

HELP!!!!
44 y/o Alaska Crab Fisherman

Diagnosed May 2008
Mesalamine 12 pills daily
Prednisone 40 mg
Oemneprazole 40 mg
Zofran
Reglan

Remicade

Taking multiple vitamin supplements, lots of omega 3's and Antioxidants


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 8/1/2008 2:55 PM (GMT -6)   
I can't comment on the goat's milk, as I've never tried it; but for me yogurt means instant diarrhea. Everyone says the bacteria is so good for you, but I think the sourness/acidity is what gets me. Has he ever had a problem with cow's milk yogurt?
Katie, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed), Acidophilus 3X daily, Fish Oil and Multivitamin daily.
Diet/Exercise:  Sugar elimination.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


tardofit
Regular Member


Date Joined Jul 2008
Total Posts : 28
   Posted 8/1/2008 4:07 PM (GMT -6)   
BACK IN THE HOSPITAL! I know what that like!

I'm sure whatever he is eating is not enough. In the hospital, all I got was broth and it was not enough.

Ask yourself these Questions

when was the last time we had sex?
was we active sexualy (more than 3-4 time a week)?
did we not do it for a good 3-5 days in a row or at all since he has been sick?

If you were sexualy active and then stopped for, let say 5 days and he did nothing manualy(LOL) in those days, a prostate infection could have set in really quick k, knowing he is sick. The prostates function is to apply the liquid for the ejaculation process and to cut the urine flow. If he was "excersizing" the prostate and then changed the routine to nothing, an infection will set in. Prostate infections are know to be the sielent killers for us men. An infection can be carried for years before discovery.
Ask him if he is have trouble pee'ing or he is trying to push to pee?
Ask when you pee and finish, does it feel like you have more in there and it won't come out?

A sure fire way to tell if he has an infection would be to tell him to go "get it up" and "GO" LOL you can help with this and may be a good idea. Take note as to what comes out( I know this is in depth, but no one else will tell you this knid of info). If it is thick and has "ANY" other COLOR than white such as BROWN or YELLOW he has an infection. Medications, foods, drinks, nothing alters the color of this, IT SHOULD BE BONE WHITE and very watery, NOT THICK.

I have had a few prostate infections and have learned how to improve prostate health. I also watch the health of my prostate close now because once you get one, it's to easy to get another.

A prostate infection can not be detected through blood testing unless it is severe, but they still will not know where it is coming from. If a Dr. has to check for the prostate infection, you husband will not like it.
If you suspect a prostate infection don't delay. Let the Dr know and be sure he gets antibiotics in his system 3-4 days before they do an exam. It will be painful regardless, but alowing the meds to work will help out.

I hope this info helps and for you guys reading this, be sure to research on how to improve prostate health.
29 year old male
 
12th year suffering UC


Concerned Wife in WA
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 8/1/2008 4:15 PM (GMT -6)   
Are you kidding. SEX? He has been so sick with this that he barely makes it through the day. That would be completely cruel and insensitive for me to even suggest sex, He can't even eat right now.

How could you possibly expect him to feel like that???

He has lost 50 pounds in the last three months. He is far from feeling like that.

Does prostate problems cause UC in men?
44 y/o Alaska Crab Fisherman Diagnosed May 2008
Mesalamine 12 pills daily
Prednisone 40 mg
Oemneprazole 80 mg
Zofran
Reglan
Remicade
Folic Acid

Switched to sulfasalazine 2 pills 4 x daily

Taking multiple vitamin supplements, lots of omega 3's and Antioxidants


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/1/2008 4:47 PM (GMT -6)   
I am sorry that your husband does not seem to be improving. UC is very unpredictable. Some people's first flare will be there worst, some respond to treatment and bounce back quickly, and some don't respond to anything and have surgery. I don't think any GI could tell you how or when your husband will get better. At some point, however, it will be up to you and your husband to how much more you can endure. There just are no easy answers for this disease.

No, prostrate problems do not cause UC in men. I think the poster in the above thread is in the wrong discussion group and his post is in error.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 8/1/2008 6:45 PM (GMT -6)   
Sorry to hear about your husband. Bless your heart. I'm wondering if some of the symptoms he is experiencing could be some side effects from all the drugs he is on.

Could you clarify- Is your husband on the SCD or was he just trying the yogurt? What would your husband typically eat, or try to eat in a day? Does he have other health issues besides UC? Was he ever on any antibiotics before his UC symptoms manifested? Just trying to find a common thread here...........

kathleen
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/1/2008 6:58 PM (GMT -6)   
I lived on raw goat's milk and yogurt that I made myself for about a year after my first huge flare.  I had to waiat though until things got under control.  I was in the hospital on TPN, liquids, solumedrol.  Then things started to turn around after 9 days and I went home.  Soon after I began the goat milk, along with Ensure, puffed rice cereal and soup.  I did that for 1 year.  I never eat dairy or wheat or red meat.  I recommend a book called "Eating Right for a Bad Gut."

Concerned Wife in WA
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 8/1/2008 7:26 PM (GMT -6)   
Kathleen.

Have read that too.

Kim,
He was just trying the yogurt, the diet itself seemed to contradict many other things I have read so just the yogurt and mainly because his sister knew someone with intestine problems who swore by it and she wouldn't leave him alone till he tried it. Seems thats what started this last flare.

His diet consists of poached eggs, lots of potatoes and rice. Cream of rice for breakfast or eggs and potatoes. No wheat, no lactose, fish, chicken, no animal fats no bacon etc, no red meats, if he has some cheese or creamed soup he takes two lactaid pills. He is really healthy besides this. Was in crazy good shape for 44. Commercial fisherman. Never been sick a day in his life.
Now three hospital stays. I am starting to think the solumedrol helps him start feeling better in the hospital but the oral pred doesn't seem to help, he is home from hospital about a week and then starts to get worse till ends up back in the hospital again just over another week later. He has been home two weeks and again on the verge of another ER visit that gets him admitted for two weeks.

I am struggling for some answers here the doctor said she doesn't know what to do with him.

I am puzzled as to why he isn't on any rectal meds as that seems common on here. I get tired of having to make suggestions to the Dr. i talked her into trying sulfasalazine but don't feel it's my place to have to tell her what he should be taking so trying a different Dr next week unless he ends up in ER
44 y/o Alaska Crab Fisherman Diagnosed May 2008
Mesalamine 12 pills daily
Prednisone 40 mg
Oemneprazole 80 mg
Zofran
Reglan
Remicade
Folic Acid

Switched to sulfasalazine 2 pills 4 x daily

Taking multiple vitamin supplements, lots of omega 3's and Antioxidants


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/1/2008 7:30 PM (GMT -6)   
Never tried goats milk (never sounded appealing at all) but I can't really stomach yogurt either. I can MAYBE eat one little cup of it, only the kind without fruit chunks, and that's it.

And yeah...... the prostate reply made no sense and was way off base so I'm assuming he accidentally pasted it into his reply or something.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


kathleen
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/1/2008 8:26 PM (GMT -6)   
I wouldn't eat any dairy products even with lactaid. Even when I'm not in a flare.

kathleen
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/1/2008 8:26 PM (GMT -6)   
PS Has he been on prednisone?

tardofit
Regular Member


Date Joined Jul 2008
Total Posts : 28
   Posted 8/2/2008 8:30 AM (GMT -6)   
Concerned Wife in WA said...
Can anyone answer this question

What exactly is considered a flare. He keeps having the episodes that put him back in the hospital but has never gotten better since this started in May. He is back to not being able to eat anything and his nutrition level is going down the toilet. He can hardly stomach taking all the pills he has to take and won't take any supplements. Any ideas?

HELP!!!!

OK! I was not clear! I should have said, "HEY! I know those symptoms" while shaking my finger.

Let focus on this Q. I (a male) have had my share of flares and hospital stays. When I had the bad flares, got down to nothing, and not being able to do anything(even sex) a prostate infection would set in.

Prostate infections are the most looked over problems. These infection can cause all kinds of weird symptoms and not be detected, unless you have the experiance! Don't assume that a Dr. is going to pick right up on it.........they don't. VERY OVER LOOKED! With my first infection, the Dr thought I had numoinya(poor spelling) and had me go take a ton of chest X-rays. When that came back, he was stumped. I took him 3 trys of medical guessing, the last try made sence. My wife and had just had a baby boy, and I was partly in a flare. After having children, my wife needed to heal, SO nothing went on for a few weeks, on top of the stress of newborns, and my flare an infection sat in.

Go back and read what I posted, this is experiance handed down and will not be told to you by anyone, because of embarassment. I'm not embarassed! I've been poke, pryd, and just about raped from all the medical treatment.

The last stay I had In the hospital It took me 3 days of contunious trying to convince a female DR I needed to get started on antibodies(cipro is really good). Finally I told my male GI Dr what I needed, with out hesitation, he got it for me.

Once you get one prostate infection...It is vey easy to get another. And once you learn the symptoms, you pick right up on it.

I am in no way trying to offend you, please do not get me wrong. This web site has been a heaven send for me and I want to return the favor with my info.

Research prostate infections....please do this for your husband. I can not stress HOW important prostate health is for us guys.

I hope this helps.......really I do!

I look up some good website and try to post back.


29 year old male
 
12th year suffering UC


Concerned Wife in WA
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 8/2/2008 11:00 AM (GMT -6)   
I mentioned to him that someone on here thought he could be having a prostate infection. He figured he will talk to the doc when he sees him. I had to be tactful. He is feeling useless and less of a man because I am having to do everything for him. I sure wasn't going to say' Do you think you feel up to getting it on? and try and see what color it was. I am willing to keep my mind open to all possibilities so we'll see. Thanks for the advice. You must not have ever been as sick as he is.
44 y/o Alaska Crab Fisherman Diagnosed May 2008
Mesalamine 12 pills daily
Prednisone 40 mg
Oemneprazole 80 mg
Zofran
Reglan
Remicade
Folic Acid

Switched to sulfasalazine 2 pills 4 x daily

Taking multiple vitamin supplements, lots of omega 3's and Antioxidants


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 8/2/2008 11:16 AM (GMT -6)   
Concerned Wife in WA- I can't help but think there has to be a logical cause of your husband's recent health problems. Two questions I have that may provide some clues are- has he ever been on antibiotics, maybe for a fisheman's injury? -and most importantly, I can't believe that a fishing boat wouldn't be without mold. Mold can do powerful damage to ones' immune system. is it possible mold could be a factor in his illness? If so, perhaps a prescription antifungal would be in order? Maybe ask your doctor about the fungus/mold possibility. He would also need to go on an antifungal diet, which means eliminating sugars, starches, grains for awhile. Just thinking out loud again. I hate to think he is in that much misery. BTW- yeast/fungus has also been linked to prostate problems.
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