Every time I decide to say something to my doc the pain goes away.. It comes in waves, and I have no clue what causes it.
Usually, well, almost since I have been diagnosed, I haven't found any way to really eat three meals a day. I just wouldn't because I would be too scared to have another accident at school and I knew I would have to be by the bathroom for three hours after eating. Last night I only got up about ten times, still terrible, but the stomach pain only woke me up a few times as opposed to the entire night. I still don't know what it is... It doesn't go away after I eat, and it doesn't really appear after I take my pills.
Today, I broke down and took imodium. I had to.. I had things to do and groceries to get and I was still having a really bad time. I got the stomach pains this afternoon, before I ate, and a long time after I took any pills. Also, in the middle of my lunch I got the stomach pains so bad I had to stop eating otherwise I would have thrown everything up. That was the end of my lunch.
Today marks only the second day since I was diagnosed in '07 that I've actually had three meals. I always just ate one a day.
I know, it's bad. But I would be at school, work, and I wanted to have a social life.
When my entocort was working about a month ago I felt awesome and even then I only had just one meal a day. Things got terrible when I tapered my entocort too fast (no one really told me..). So that's how I landed myself in this current flare.
21 years old
Diagnosed with moderate/severe UC June 2007
Taking Lialda 3x a day, and just started taking Entocort(3 pills/day) on 5/29/08. Started to taper off on the steroid, but, that proved to be bad..
Severely anemic, was taking 3 65mg iron tablets a day, now just down to 1 because my hemoglobin levels are almost normal, and I cannot stand the stomach aches I get from all that iron. However, I was down to just 1 Entocort a few days ago and started to have a flare, so, I might have ruined my levels again. =/