Remission for me is having no more than 4 BM's per day and having no blood. Remicade is able to heal your bowels. But if it's not getting rid of the symptoms, then Remicade is not fully working. Looks like a spoke too soon in my earlier post--as of last night, Remicade is not working and I've already scheduled surgery.
I'm not sure if diet is your issue. For some, certain foods can aggravate symtoms; and for others, like me, food/diet is not a factor.
Steriods are bad! They're only for short-term use.
There are websites that rate doctors, but you usually have to pay a fee to access it. If I recall correctly, on the Ostomies board, you said you were going to the Cleveland Clinic. Cleveland Clinic has a pretty good reputation for digestive diseases and colorectal surgery, so you should be in good hands.
jpouch.org is a good site to get information. However, you might read some not-so-great stories, but the thing to remember is a minority of people face problems w/ their jpouches (3-7%) and they're the ones who need to post on a support site. Recently, there's been a good thread called something like "Calling all Good Stories" on the General Discussion forum, so you might want to check that out. Also, Sue answered some questions here on a thread called "jpouch recovery time." You may also want to see ucstory.wordpress.com, in which Mark documents his surgery.
Let us know how your consult goes on Thursday.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*surgery tentatively scheduled for September