Hello I am new to this website but certainly not the suffering, I too can tell you where all the bathrooms are in every store I go to and I can at any time gauge w/ acurate percision which is closest before I head for my sprint!
For 5 yrs. I've been told that I had Crohn's, I switched GI's for a second opinion before I would talk about operating. My second GI swears it's Ulcerative Colitis. I asked both GI's to consult and see why the difference in opinion, not sure yet but the both recommend surgery. My first GI told me food didn't play a role in my disease so I ate pretty much as I pleased and paid the price. Finally I put myself on a restricted diet and felt much better, was able to get off the steroids. I'm somewhat back to where I was but blame myself cause my diet is SOOOOOO limited and I get so hungry I just eat (nothing bad really, a piece of bread and if I'm feeling really bold I'll have cookie).
I could probably continue the fight, maybe, and it wouldn't be so bad however 50% of the colon is inflammed probably most of the time. Oh and did I mention my dad's side has a history of colon cancer? My uncle, aunt, and cousin (in her 40's died of colon cancer) As always I'm worried about colon cancer and now on 40 mgs of prednisone I'm really worried about it (steroids makes me somewhat paranoid).
Has anyone been in this position or is it something like they say, when the time is right, you'll know it?????? I'm still waiting to know!