Hospitalization questions

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NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 8/3/2008 1:03 PM (GMT -6)   
I see from the posts that some of you guys have been hospitalized. I know this sounds sorta stupid, but when do you know you have to go to the hospital (pain? dehydration? way too much bleeding?)

How do they determine how long to keep you there, etc?
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day,
Cortifoam at bedtime

Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/3/2008 1:39 PM (GMT -6)   
I would think when it's out of the ordinary for past flares or fast and furious increase of symptoms such as pain and bleeding/diarrhea. There is always the chance it could be something else going on.

Some people will literally be on death's door before even admitting they should deal with symptoms and then can't get in to see their docs for weeks. The doctors will usually suggest go to the hospital. Desperation does play some part of it I would think....dehydration and nutrition loss can happen fairly quickly once the body can't cope with symptoms.

There are more factors involved I would think than just one day perfect, the next day all hell breaking loose.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 8/3/2008 2:34 PM (GMT -6)   
For me, I went because I was so anemic I could not function in my daily life. When it got to the point that I couldn't stand long enough to take a shower without fear of passing out, my husband said we needed to have my parents come watch the kids because I needed to go to the hospital.

They kept me for 4 days. They wanted the bleeding to be under control before I left, and my hematocrit level had to be at a certain point-I don't recall the number. (it was still lower than normal, but higher than it was when I went it) Those were the basic determinations of when I could go home.

Definitely better to deal with things before they get to that point. I was in serious denial.
Laura
 
33 years old, stay at home mom of 2 girls, ages 3 and 21 months
 
Diagnosed in 2007
Currently on:
Prednisone 12.5mg/day and tapering-UGH
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!


UCnew2me
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 8/3/2008 2:39 PM (GMT -6)   
If you are not sure better to go in, We always wait too long and then he ends up at risk of perforation and peritonitis. When he can't eat has a fever and can't stand the pain anymore we go in and they always tell us he should have come sooner. Suggest VM to you as in the other post much happier with the GI staff here. The one thing about going in to the hospital they do alot more for you than when you just go the office. He has been in now 4 times in last 3 months. Can't seem to get this under control.

lajam77
New Member


Date Joined Aug 2008
Total Posts : 10
   Posted 8/3/2008 3:08 PM (GMT -6)   
I got UC pancolitis a month and a half ago. Before I was hospitalized, I had daily headaches due to anemia and dehydration and super weight loss. I went from 57kg to 52kg :( I need to gain weight. After I got IV's the first day, my headaches went away and I felt so much better. There was a point where there were three different types of nourishing liquids going into my body. one was white in color, one was clear, and the other was yellow. The doctor wanted me to stay in the hospital until the bleeding was controlled so I was there for like 11 days.
Getting nourishment from IV's is so nice, I just hate the needle sticking into my skin :( I wouldnt mind doing it once a week hehe.

NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 8/3/2008 3:22 PM (GMT -6)   
Sorry if I gave the wrong impression. I don't feel the need to go to the hospital at all. The cortifoam, canasa and upped asacol (from 2 to 3 3x per day) seem to be doing the trick slowly but surely. The urge is still there, but no more blood. I think I am on the downside of this mini-flare.

I was just curious as originally I went to the ER for dehydration due to diarrhea. They gave me an IV and a few hours later sent me on my merry way. The ER doc didn't even suspect UC. I made him give me a referral for a colon specialist for followup. How sad I had to beg for it.

In anycase, I was just wondering if there was any criteria for when they actually hospitalize you.

On a different note, I just swapped GIs. So far I am pleased with the new doc. However if things don't continue to go well, I will head over to Virginia Mason.
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/3/2008 3:25 PM (GMT -6)   
Happy to hear you like your new GI.

Is Virginia Mason a hospital?

What exactly are your symptoms that you would determine "don't continue to go well"?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 8/3/2008 3:28 PM (GMT -6)   
Yes, VM is a hospital in Seattle with clinics also in Seattle.

My relationship with this GI (as opposed to the previous GI) is better. My symptoms seem to be improving. I meant to say that as long as my relationship with my new GI go well.
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/3/2008 5:41 PM (GMT -6)   
Supa, I was exactly like you when I was severely anemic. But I never went to the hospital... I should have, but, by some miracle, I made it after my blood tests came back with my hemo so low and I got my levels up by taking supplements and stuff.

Next time I feel like that I'm going in. For sure.
21 years old

Diagnosed with moderate/severe UC June 2007

Taking Lialda 3x a day, and just started taking Entocort(3 pills/day) on 5/29/08. Started to taper off on the steroid, but, that proved to be bad..

Severely anemic, was taking 3 65mg iron tablets a day, now just down to 1 because my hemoglobin levels are almost normal, and I cannot stand the stomach aches I get from all that iron. However, I was down to just 1 Entocort a few days ago and started to have a flare, so, I might have ruined my levels again. =/


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 8/3/2008 7:44 PM (GMT -6)   
i ended up going to hospital one night as the pain was so bad that i couldnt straighten out and i just started to panic really. so did my husband.
called the doc and he said go in and he would call the hospital while i was on my way so they were expecting me.
kept me for 7 days.
liquid diet and hydrocortisone shots and morphine every 4 hours.
 
was pretty bad.
i guess its a matter of when you think you hit that threshold and need some professional care just in case.
i wouldnt have died it i didnt go, but i guess its goood i did. (i think)... except for the mouth thrush from the hydrocortisone. yuck
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/3/2008 7:48 PM (GMT -6)   
I have been hospitalized many times. But i only go in when i can't sleep for many days at a time. And when I couldn't go to school for 3 weeks or more. When I get to the er I make sure they don't give me morphine. *really important if you have left sided colitis. Trust me it is better to ask for demeral or dellotted *sp?*. Constipation is my problem...so if you guys ever think that the pain is too much the best route is for dellotted and compasein *nausia meds* for this pain med will make you dizzy. I am a small person so i ask for 1mil only makes my life better.I am not a doctor but it is sad when i know that the GI docs agree with me. The look relitively happy to see that i remember morphine has bad side effects with my UC symptoms. But I do however know that all pain meds will have some effect on me. Even dellotted and demeral has some side effects. Hope this helps you out if god forbid you need to go to the ER. sad
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 8/3/2008 10:35 PM (GMT -6)   
I had to be admitted to the hospital when all my treatment options were not effective at home.  I was on the highest oral steroids I could be on..and still continued to have a very bad flare up,  with blood,  mucous, pain, etc.   I started to see my doctor in the office everyday,  and was given shots of steroids, and sent home on high oral steroids,  and yet continued to worsen.   Finally my doctor decided I needed to be in the hospital....I was upset by it,  but yet happy by it...I knew I would get whatever treatment needed to be done to get me better.    I had already had a few ER visits before that as well...and was ready to be done with the flare once and for all...and it worked after 6 days in the hospital....
                                          ~Christie
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) hoping for remission again after this current flare.
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.


Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 8/3/2008 11:50 PM (GMT -6)   
I have not been hospitalized yet but at point I became so Anemic I almost was. One good thing that my doctor does is when I flare I have an open ticket for blood work. This allows me to stop in to my local lab and give a sample once a week if I am losing allot of blood or every few weeks when things are still happening but not so bad. The results are sent to him sometimes the same afternoon. He can monitor your hemoglobin that way, if he can't get you in. Try and see if your GI will let you do something like that.
Prednisone 40mg a day
Asacol 400mg 4 pills 3 times a day

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