Best way to get remission

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Daniel B
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/3/2008 1:39 PM (GMT -6)   
I have recently been diagnosed with Ulcerative Colitis. I am taking Sulfasalazine and am not in remission after two months. The Doctor prescribed me Prednisone, but I don't want to take it (for three months) because of the side effects. Does anyone know of a good alternative? I found something called Aloe Elite online but don't want to pay 160 dollars for a bottle if it's not going to work. Does anyone know of a good medication other than steroids to achieve remission?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30840
   Posted 8/3/2008 1:50 PM (GMT -6)   
welcome to the forum.

You should also be on rectal meds. Is your UC throughout or limited?

I'd personally refuse the prednisone and request rectal meds in  addition to the Asacol.
talk to your doctor and say you want to try them firstly.
 
What are your symptoms at this time??

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 8/3/2008 2:22:50 PM (GMT-6)


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 8/3/2008 2:57 PM (GMT -6)   
Heather's advice is a good start to first see if there is any improvements....hubby was on the darn prednisone off and on mostly on for about 2 yrs altogether and what a mess that was. The side effects as people report and he had most of them are no fun. If you end up becoming steroid dependant which happens in alot of cases you need such higher doses and such a long tapering schedule. Hubby stopped in early Dec thankfully but is on a lot of meds to keep him in what we call a semi-remission. The osteopenia from the prednisone hopefully over time will reverse itself. I hope and pray I never hear a doctor suggest it is time to go back on prednisone as there will be a lot of commotion over it from me...lol.

And ultimately if prednisone is the way you have to go I sincerely hope the regimine they put you on does the trick as it does for so many others. Good Luck.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 8/3/2008 3:23 PM (GMT -6)   
I agree with Heather on the rectal meds. When I was sick, they were a godsend, and helped alleviate my symptoms. It takes time to find the right "magic pill" and dose for each person. I was, however, able to get into sustaining remission with no meds by following a strict (but not impossible) antifungal whole foods diet along with natural antifungals. As I don't know the severity/history of your disease, I cannot say if you would have the same success. After 8 miserable years of UC, I experimented with the diet, and within a few weeks realized my UC symptoms had a fungal etiology, possibly from taking birth control pills for many years, antibiotics, or living in a water damaged home (2 of them!) After I got rid of the fungus/yeast in my body, I got well. If you have ever been on antibiotics, or been exposed to a water damaged/moldy environment, you 'could' have a fungal condition. The only way to know for sure is to experiment. There was no one more astonished than me after my symptoms disappeared. Hope you feel better soon.

munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 8/3/2008 3:48 PM (GMT -6)   
I would ask your doctor about the cortenemas, it is a rectal med with prednisone, but far less steroid than when you are taking the pills. They work pretty good.  How much of the Sulfasalazine are you currently on?   Good Luck tongue


*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 8/4/2008 8:22 AM (GMT -6)   
If you're very new to UC, make sure you keep a food diary to make sure you know your trigger foods. Sometimes I'll be showing progress with my rectal meds, and then I'll eat something "bad" and undo all my progress. For me, meds only work when I'm very careful about my diet.
Katie, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed), Acidophilus 3X daily, Fish Oil and Multivitamin daily.
Diet/Exercise:  Sugar elimination.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 

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