already have appt @ Chron's and Colitis Center in Boston

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 8/3/2008 3:52 PM (GMT -6)   
faxed about 160 pages last thursday and got a letter in the mail on Sat saying I have an appt on 8/20.  I am glad to be going and will put together questions I want to ask the Doc.
 
That was a lot quicker than I anticipated.  I am happy and looking forward to going.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 20mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 8/3/2008 4:01 PM (GMT -6)   
That's good that you got an appointment so quickly. Good Luck!!
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 8/3/2008 5:07 PM (GMT -6)   
Wow Beth, that IS fast. 160 pages...another WOW! Can't wait to hear how it goes.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 8/3/2008 8:27 PM (GMT -6)   
Good luck Beth.. ! Glad you are getting that well needed second opinion !!! :)
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Flare March-June 2008.. pretty much in remission again July


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 8/3/2008 10:07 PM (GMT -6)   
Wow - that's super fast! Glad they are taking this seriously. Best of luck!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next (3rd) infusion 08/12/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 8/4/2008 9:33 AM (GMT -6)   
Way to go, Beth! There's a new article posted on Gastroendonews.com about studies on gut flora in IBD, where they quote Dr. J. Korzenik of the Boston CC Center-- in case you want to have a look. /Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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