Ulcerative colitis

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picnic06
New Member


Date Joined Aug 2008
Total Posts : 4
   Posted 8/3/2008 3:12 PM (GMT -6)   

 I was just recently diagnosed with UC. Just a few months after I gave birth to my son.I was Pushing incorrectly according to the nurses. I am on Lialda and canasa and Iron sups and multi's. Having flare up now. My mom was a clean freak and so am I. A recent ex-smoker and evidently should have remained a smoker (it keeps UC at bay!!!!). Can't control flare up, any suggestions??


quincy
Elite Member


Date Joined May 2003
Total Posts : 30408
   Posted 8/3/2008 4:13 PM (GMT -6)   
Hi..welcome to the forum,

I would say in part hormone fluctuations will have a role in your flare.

I would suggest you request retention enemas from the GI...Rowasa if you're in the US.

Your clean house wouldn't have anything to do with getting it.
Smoking can keep symptoms down, so it's possible that you're seeing them now that you're not smoking any longer. I wouldn't suggest you start, however.

What symptoms are you having at this time?

Where in the colon is your UC? Throughout or limited?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/3/2008 7:55 PM (GMT -6)   
Are you saying that the nurses told you that 'pushing incorrectly' caused you to get UC?

Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira.
Husband with ankylosing spondylitis and psoriatic arthritis.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 8/3/2008 8:06 PM (GMT -6)   
That's pretty ridiculous if the nurses told you "pushing incorrectly" caused UC. There is no known cause for UC and you certainly isn't your fault that you got it. You didn't get it from anything you did.

Yes, smoking can keep symptoms at bay, but I am a smoker and I still got UC...so it doesn't do it for all of us, unfortunately. It is good you quit.

I second quincy's suggestion for Rowasa enemas. They aren't as bad as they sound.

Welcome to the forum, by the way. This place is a great resource.
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day; Rowasa every 3-4 nights; Canasa every 3 nights;
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv; Zinc supplement every few days


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 8/3/2008 9:27 PM (GMT -6)   
The nurses saying that pushing incorrectly caused UC?????? OMG< that is the most ridiculous,  ignorant thing I've heard...those nurses must not know much about IBD to say such a statement...anyways,  just know that anything you did most likely didn't cause it...as a matter of fact,  its not totally understood exactly what causes it.    So, are you on any kind of treatment right now?   What are your symptoms?  how were you diagnosed?    There are several treatment options...usually for acute flares,  prednisone will start the healing some.  But you most likely will need a maintenance drug to keep it under control...Have you seen a GI doctor yet?  Colonoscopy? 
                                          ~Christie
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) hoping for remission again after this current flare.
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/3/2008 11:20 PM (GMT -6)   
eyes  OMG, as if pushing "incorrectly" could bring on IBD, I'd like to know how the heck there could even be a difference in pushing?  Pushing is pushing, you can't do that wrong, it's the bodies natural way to have a baby or a bowel movement...that's the stupidest thing I've ever heard and if any medical "professional" ever said such a thing to me I'd slap them clear across the room just for being stupid.
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 8/3/2008 11:27 PM (GMT -6)   
agreed.
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30408
   Posted 8/4/2008 12:25 AM (GMT -6)   
And some bowel movements can feel like (what I perceive) would be like delivering a baby...

I wonder if that's what picnic06 meant regarding the nurses. They might have meant that it caused some rectal bleeding?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 8/4/2008 8:14 AM (GMT -6)   
lol pb4...i wish you had been in the delivery room with me!
UC diagnosed 10/05, first symptoms 1983
canasa and lialda daily
Trying out Digestive Fitness Probiotic
 


picnic06
New Member


Date Joined Aug 2008
Total Posts : 4
   Posted 8/4/2008 11:28 AM (GMT -6)   
Thanks for the welcome words. As it happened I was diagnosed 6mos after birth of son with ulcerative proctitis. A year and
half after that i was hospitalized , thats when I was diagnosed with UC. I too think it was silly saying that i pushed wrong but it was strange that there was no family history of UC and then right after birth was diagnosed with it. I use both rowasa enemas and Canasa Suppositories alternatively two per day. Lialda 4 daily. Iron sups 2 x , a multi. During hospital stay was on prednisone 30mg and then tappered off, also was on asacol 6tabs.
 
II know certain foods cause flares and I guess maybe stress too. I wonder if wine does? I guess I just wonder if anybody else had been diagnosed shortly after child birth?  My GI doc is a new one for me recommened by my old GI doc who moved away sad . What are some of the other meds that you all take, that seem to help? I would rather stay off the prednisone/steroids, if possible, to controll flare.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30408
   Posted 8/4/2008 12:53 PM (GMT -6)   
food won't cause your flares but eating in itself will quicken the peristalsis...especially an inflamed gut in response to anything in it.
Stress can play a part (I can't even imagine the stress of having a new baby), but mostly I'd say that the hormonal fluctuations is a big part. Are you breast feeding or/and do you have your periods?

Is your UC throughout or limited?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


picnic06
New Member


Date Joined Aug 2008
Total Posts : 4
   Posted 8/4/2008 1:46 PM (GMT -6)   

Quincy

Sorry just want to make it clear, my baby is two now, so tablefood for him, thank god. Hopefully horomones all back in tact. UC all through out (with most of inflamation - on left side). I was told that Sept 07' after hospitalization. My doc did say dairy can trigger it and fried foods, I'm not a big fried food fan but I LOVE dairy. Anyway what are the probiotics everyone is mentioning?


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 8/4/2008 2:10 PM (GMT -6)   
lol pb4!! you wanna come to my next appt?

You did not did not do anything wrong picnic06.

I had a disagreement with my anasthesiologist about what meds I was on right before my last c-scope. He was like, "I see you are on high blood pressure meds for your blood pressure". I was like no, my blood pressure has always been 120 over 70 and I am on it for my kidneys and he was disagreeing w/me, I was like ya know what talk to my Doc I know what I am on it for. I wasn't going to continue arguing w/him and he was not going to admit he did not know everything, MOFO!

Also I had to explain to a nurse that you get poison ivy from the urishiol oil from the plant, you do not get it from touching poison ivy blisters.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 20mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

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