Leg Cramps Anyone? Not on pred.

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Date Joined Dec 2005
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   Posted 8/5/2008 2:31 PM (GMT -6)   
I am having horrible leg cramps. I can't figure out what is going on. I do workout hard 3-4 times a week. I always make sure to stretch and drink plenty of water. Not sure what is going on.

My only change in meds in the last few months is switching from Nexium to Zegerid for acid reflux. Thanks!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Zegerid (not sure if it is working)

Co-Moderator UC Forum

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 8/5/2008 3:00 PM (GMT -6)   
I get horrible toe cramps. It's like my toes go in opposite directions and it makes my whole foot hurt something fierce! Do you eat things that are high in potassium like bananas? If not, this can help with the cramping. If you eat high potassium foods and you're still getting them, maybe have your doc run a few tests to see if you are low in that department.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
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Veteran Member

Date Joined May 2008
Total Posts : 574
   Posted 8/5/2008 3:22 PM (GMT -6)   
Hi im the same as Red i get horrible cramps in my toes it makes them curl up and is hard to walk when it happens does not last long but happens quite abit and yes it is very painfull.
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Salofalk supps 1gm 26/6/08
  Mesalazine 400mg 2 tabsx2 day

Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 8/5/2008 3:52 PM (GMT -6)   
all the time. back of the legs and toes, they are so painful.  Not sure why either. 

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 8/5/2008 4:03 PM (GMT -6)   
Could be lack of potassium which is fairly common with UCers. Eat bananas or drink vitalyte. Vitalyte can be ordered online at www.vitalyte.com or purchased at REI stores.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 8/5/2008 4:06 PM (GMT -6)   
prior to being on pred, I would get terrible toe cramps and somtimes calf cramps when working out and inner thigh cramps if I worked those muscles hard.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 20mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Veteran Member

Date Joined Mar 2007
Total Posts : 679
   Posted 8/5/2008 4:12 PM (GMT -6)   
You might be low in electrolytes or potassium...also check your blood pressure, if it's low you maybe slightly dehydrated.

Cramping can also be caused from fatigue.

Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.

Veteran Member

Date Joined Jul 2006
Total Posts : 2105
   Posted 8/5/2008 8:30 PM (GMT -6)   
Coconut water is a great source potassium too. Great if you don't feel like eating a banana in middle of night, and has more K than one too.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 3 day
Starting Immuran
Hydrocort/Rowasa/Vitamin E Enemas rotated

Regular Member

Date Joined Jun 2005
Total Posts : 213
   Posted 8/5/2008 8:38 PM (GMT -6)   
I used to get horrific leg cramps also - I try to eat at least one banana a day. I still get them sometimes. They also make some potassium tablets that fizz in water if you ask your doc for them. When/if you ever do take Prednisone remember you should also take additional potassium. Most docs do not tell you that. Hope your start to feel better soon.
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil

Veteran Member

Date Joined Sep 2007
Total Posts : 955
   Posted 8/5/2008 8:42 PM (GMT -6)   
i get calf cramps and toe cramps as well.
i was told that it is from lack of magnesium.
sometimes when we are low on calcium we only take calcium, but you need magnesium as well and they coincide with each when on low levels.
plus magnesium helps the body to absorb calcium.

so, maybe you need potassium and magnesium.

maybe i should be taking potassium too. hmmm
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day

Regular Member

Date Joined Dec 2007
Total Posts : 151
   Posted 8/6/2008 10:13 PM (GMT -6)   
Oh yes!!!  I was getting bad foot cramps all day last thursday....From what I've heard,  your missing some electrolyte,  I"ve heard potassium, and I"d tend to believe that, because a few years ago,  I was actually diagnosed as having hypokalemia (which is low potassium)(based on bloodwork) and then that night I was getting the worst leg cramps I'd EVER had.   So,  on thursday I started downing lots of watered down G2 (low cal gatorade) and the cramps got all better!!!  :o) 
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) hoping for remission again after this current flare.
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.

Regular Member

Date Joined Nov 2005
Total Posts : 184
   Posted 8/14/2008 9:17 PM (GMT -6)   
i get cramps too. i get it in my toes and feet..and in my upper leg. i do eat alot of bananas and eat pretty healthy. im currently drug free,but need to get on meds.

mild ulcerative colitis
diagnosed 1992
azulfidine 500mg 2 2x per day
folic acid

Being happy doesnt mean everything's perfect.It means you've decided to see beyound the imperfections! God didn't promise days without pain, laughter & without sorrow, sun without rain, but He did promise strength for the day, comfort for the tears & light for the way.

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