maybe this is a vent...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/5/2008 1:38 PM (GMT -6)   

Ok so I have had UC for 5 years. I couldn't tell a close person just how sick I am during the first year. But the next year I realized I must try to tell her how sick I am. Yet every time I would ask her to meet up with me so that we could talk. She would make up some stupid excuse. *_* Then about 4 years later by chance I found out she had been hurt while in South Africa. And of course I ran and asked her about it. She wouldn't say much, but she could tell I was quite worried about her. I know how it is being in pain and then having to deal with the mental memory of it. *Maybe a snake bite isn't that much cause to be worried about, so after that I w8ed for a bit before I called her. I don't know why I called her but I did but she thought I was still stuck on the whole serpent incident. I told her that I am not talking about what happened the last week of school. No I told her that I have been sick with UC. She doesn’t know what that UC is but she sure as hell knew what infusions were. Ya umm I know she cried... Is this tragic? sad


Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/5/2008 2:28 PM (GMT -6)   
Um... i really don't know what to say to that

Diagnosed with Ulcerative Colitis March, 07

Medications
Lialda - 4 pills in the morning w/ food.
Canasa suppositories


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/5/2008 9:21 PM (GMT -6)   
That is why i had to write it all out. I keep playing the whole phone call over and over in my head. Good God she is stubborn!! smurf

I forgot to mention that we were good friends in grade school. scool


Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/6/2008 7:41 AM (GMT -6)   
confused  Think you might have to explain some more, I'm confused confused

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 8/6/2008 8:47 AM (GMT -6)   
Um, I'm not sure I understand the story what you're point exactly is...
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*surgery tentatively scheduled for September


tardofit
Regular Member


Date Joined Jul 2008
Total Posts : 28
   Posted 8/6/2008 9:21 AM (GMT -6)   
Well not sure what your getting at and hope it works out for you, but if I were you and someone has a problem listening to what good things or garbage that comes out of my mouth, THAT PERSON IS CHECKED OFF MY LIST as friend.

Sound like friendly you listens well and UN-friendly her does not. Don't hang on to people that do not want to be held. Sorry, but that's what I got from your post.
29 year old male
 
12th year suffering UC


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/6/2008 1:52 PM (GMT -6)   
LyndaC said...
confused  Think you might have to explain some more, I'm confused confused
5 years ago I went silent because of my illness. Not once did she ask me what was wrong. So I left, the hardist thing I had to do. Then this past year she got bit by a snake when she was in Africa. So I talked to her about it. "if you can call not looking in the face and me shaking like a slinky a talk..." But at that time she didn't know that i was sick or how sick i was. So i called her up last month, this is how it went.
M: Hello. This is...
R: The snake bite wasn't that bad! (i forget what i said before this but i sounded upset so she thought i was talking about her)
M: I am not talking about the snake bite, but since you brought it up it just shows how much i care about ya.
R: silence...
M: I have Ulcertive Colitis. *i lamely try to explain over the phone....so i'll skip that part...*
R:  *laughs* (but not the ha ha or sure whatever kind...more like a mental brake down kind of laugh.)
After that i hear the phone hit the counter...and some sobs. (I hate making people cry)
 
Is it really that hard for people to understand that even though we look fine, we are not?? mad  But I see what you mean.If she really cared then she would have asked me long ago how well I was.Why do people have to be so self centered?! Now I think the next time we see each other she won't be able to look me in the eye, not out of anger but out of shame...Ya that might be right. We are going to MSU together in the fall.Tiss fun...Maybe then well hang out sometime..IDK. eyes   



Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.

Post Edited (Luna0) : 8/6/2008 5:31:15 PM (GMT-6)


LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/6/2008 2:15 PM (GMT -6)   
ah I got you now.....lots of people are self centered....chalk it up as a lesson learned and know next time you need a shoulder to cry on perhaps she's not the one. It' s hard to take especially if you're a listener. when conversations only go one way it's a pain.

However, perhaps she was having a bad day. We're all allowed one every now and again. If you like her try again. If she acts that way again, well it wasn't just a bad day....just jabber away here where everyone knows what it's like until you find someone in real life who will listen and understand.

Sorry for your troubles.

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 8/6/2008 2:49 PM (GMT -6)   

Ah, thanks for the clarification.

Yep, a lot of people are self-centered. You guys were only 13 when you first got sick, so it might have been hard for her and others at that age to be considerate and whatnot. But if she's not so understanding now, maybe she's not really a friend then.  Pretty much all of the "friends" that I've had have been self-centered. And once I got UC, I never bothered telling them and have cut them out of my life.


Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*surgery tentatively scheduled for September


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/6/2008 3:04 PM (GMT -6)   
I don't understand why she cried like that though. Or why it would make her a bad friend if she cried when she found out how sick you are?

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/6/2008 3:33 PM (GMT -6)   
I still don't get any of it.... what does a snake bite have to do with anything? Why wouldn't you just tell a friend what was wrong with you if you were sick? Why bother telling her at all after so much time had passed? I dunno... you 2 obviously aren't close friends anymore, so who cares how she reacts? Or am I still missing something?

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/6/2008 4:40 PM (GMT -6)   
ediekristen said...
I don't understand why she cried like that though. Or why it would make her a bad friend if she cried when she found out how sick you are?

She isn't a bad friend. Its just I hate making people cry. That is why I couldn't tell her.
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/6/2008 4:45 PM (GMT -6)   
Well a good friend might cry but it would be followed with 'how are you coping' or 'can I do anything to help'.....instead it seems like she's thinking 'how does this affect me'...just my thoughts on it though.

Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/6/2008 5:02 PM (GMT -6)   
Eva Lou said...
I still don't get any of it.... what does a snake bite have to do with anything? Why wouldn't you just tell a friend what was wrong with you if you were sick? Why bother telling her at all after so much time had passed? I dunno... you 2 obviously aren't close friends anymore, so who cares how she reacts? Or am I still missing something?


You see she was medi vacked to a hospital some where in South Africa. So I know the snake was deadly. And when i asked her about it she didn't say much. So the who cares part...ya me....I don't know why but i do.I have no doubt that your statement holds truth to it. I am not blindly placing the word friend by her name.  nono  


Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/6/2008 5:05 PM (GMT -6)   
Thanks: LyndaC,Eva Lou,ediekristen,sweetmelody.You gave me better insight to all of this. *gives hug*
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/6/2008 5:12 PM (GMT -6)   
You're welcome ;-)
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 19, 2018 1:46 PM (GMT -6)
There are a total of 2,953,254 posts in 323,984 threads.
View Active Threads


Who's Online
This forum has 162061 registered members. Please welcome our newest member, bill ratchet.
421 Guest(s), 10 Registered Member(s) are currently online.  Details
mallardmark, diannega, TS0625, APL1881, mpost, Ljm2014, Spanish, Sherrine, tomobrain, Tall Allen