Grr Feels Like Nothing Ever Goes Right =( It Never Ends =( HELP!

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Firthy
Regular Member


Date Joined Mar 2007
Total Posts : 33
   Posted 8/6/2008 11:25 AM (GMT -7)   
Hi Im Liam

Im a fit, active, healthy, 18 year old and have suffered with colitis since i was 15..
I only got properly diagnosed with colitis in 2006 and only had it properly for 6-7 months till it got so bad. March 2007 I needed an ileostomy made and my colon removed =(.. Took me 12-14 weeks to recover.. I have adapted to the bag and it has given me a quality of life for a while.

Until.. in April this year i had a small bowel obstruction, where abit of scar tissue had grown over my small intestine and strangled it.. Was extremely painful =( it didn't resolve itself, so i got rushed to hospital and had a laparotomy to sort the problem out.. then took me 6-8 weeks to recover then i was back down the gym doing light exercise and light football training..

Now.. During my 1st operation, the surgeon left a small part of my large intestine so he could use my rectal stump if i wanted to have a ileo-anal pouch formed so i wouldn't need a stoma bag anymore.. But that part of my large intestine is still affected with the colitis and has become pretty severe where im loosing quite alot of blood =( i dont know how this can still happen when only a small part is left, ive tried using asacol suppositories but they only seemed to make it worse =( ive got a sigmoidoscopy camera exam next friday to see if i need another operation to have that removed...

Ive tried talking to people about what ive been through but nobody understands because theyve never been through it =(

I just need some help, not sure who to talk to =(

Is there anything i can use or do to help my colitis and to calm it down?
Or to get myself back together and get me back to my normal self?

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/6/2008 12:06 PM (GMT -7)   
I responded to your post in the Ostomy forum. Yes, there is something you can do.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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