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**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 8/6/2008 1:20 PM (GMT -6)   
It's been a while since I've posted because luckily I've been feeling alright. I recently moved and began seeing a new GI. I told him that I really didn't have any UC problems; however, at least once a week, I'll get really bad cramping and have diarrhea (no blood) for like an hour. He said that because it was only once a week, it wasn't UC, it sounded more like IBS. This made me start to think. Maybe my UC isn't as bad as I thought. Maybe most of my discomfort and problems were due to IBS. Does anyone have any experience with this? Is anyone being treated for both? I've have 4 colonoscopies and each one they took biopsies and said it was UC, but they never said anything about IBS. Any comments or experiences would be helpful.
Diagnosed in Jan 2007, but had bowel issues for year
Took Asacol for 1 year (no help) and Prednisone twice (60mg was the most)
Currently taking Sulfasalazine - 4 pills 2x a day
Hospitalized in Jan 2008 and then again in Feb 2008 (IV steroids) for 9 days
Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)
Rowasa enemas as needed
33 weeks pregnant and counting . . . . . .
Prenatal Vitamin
150mg Zantac twice a day (for acid reflux and nausea)

Post Edited (**NiCoLe**) : 8/6/2008 3:02:01 PM (GMT-6)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 8/6/2008 1:26 PM (GMT -6)   
If the biopsies say UC then it's probably UC mate. Just feel lucky you don't bleed. You can also have IBS too.

Diagnosis in October 2007: Non Specific Colitis (possible UC but not confirmed) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: Colitis Remission, last had black stools but it might have been something I ate, Asprin, or an infection as it has cleared up.


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 8/6/2008 2:13 PM (GMT -6)   

Nicole - I suffer from IBS an proctitis. I used to think it was just the proctitis. But the minute I eat a salad or something that doesn't agree with me...I get the big D and bad cramping. I would keep a food journal and try to figure out what might be upsetting your stomach once a week.

Congratz on your pregnancy! I am about to embark on the journey (again) with IVF #3. My last cycle was cancelled because I was having a flare up. The drugs that you are taking...the Sulfasalazine...is that safe during pregnancy? What were your symptoms when you were originally diagnosed? When you went into the hospital? I spent 6 days on IV steriods in the hospital because my flare was so bad. I was losing so much blood.

I hope your pregnancy continues to be successful! YOU GIVE ME HOPE!


ulcerative proctitis - march 05 diagnosed
current status - bad flare
colazal - 9 pills
prednisone -20mgs 10mgs(tapering), canasa -AM, hydrocortisone enema - PM
VSL#3
fish oil, bee pollen/royal jelly, calcium w/ vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex
ACCUPUNCTURE
 


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 8/6/2008 3:01 PM (GMT -6)   
Sulfa is a class B drug so it is "safe" during pregnancy. I don't think I can breast feed on it though. I guess while you are pregnant, the placenta really doesn't "let in" that much of the meds, but if you breast feed, the baby will pretty much get everything that is in your system. So, I think it will be strictly formula this time around (this is my 2nd).

I was really sick in Jan and Feb of this year. I was having bloody, loose bowl movements pretty much all day, everyday. That is what landed me in the hospital twice. I was 6 weeks pregnant (I actually conceived during the flare) at the time and because a UC flare can cause spontaneous abortion, I opted to be admitted and start IV steroids. Being on steroids during pregnancy isn't the best, but it was what I needed to do to get the flare under control. It took until around May to really feel "normal" again. I used Rowasa enemas every night up until a few weeks ago. They really helped (which is funny because they never really helped before).

Good luck with your next round of IVF. There are a lot of meds that you can be on during pregnancy so don't worry about your UC too much.
Diagnosed in Jan 2007, but had bowel issues for year
Took Asacol for 1 year (no help) and Prednisone twice (60mg was the most)
Currently taking Sulfasalazine - 4 pills 2x a day
Hospitalized in Jan 2008 and then again in Feb 2008 (IV steroids) for 9 days
Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)
Rowasa enemas as needed
33 weeks pregnant and counting . . . . . .
Prenatal Vitamin
150mg Zantac twice a day (for acid reflux and nausea)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/6/2008 5:23 PM (GMT -6)   
I have crohn's colitis (CD affecting the colon) and IBS as well.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 8/7/2008 3:24 AM (GMT -6)   
IBS is the "miscellaneous" balancing item. If your bowel condition doesn't fall under the various known diseases and conditions then they label you as having IBS. So the docs are saying "we dont really know what you have but it doesnt appear to be anything we know about so we are gonna call u an IBSer".

IBS may be composed of hundereds of hereto unknown conditions that over time may evolve into separate and well established conditions.

It is known that in some IBS cases the immune system is playing big part. Some of these may evolve into UC over time. Some of us seem to have had epsidoes of IBS before we got UC.

My dominant condition is IBS. Stress and food affect how bad my IBS gets. If it gets very bad then my IBS turns into UC and I get bleeding and mucus symptoms. I view my bowel conditions on a scale of 1-10. The 1-4 is IBS, the 7-10 is UC. I believe both diseases are intriniscally linked for me. The evidence for this is that I can have bowel issues for a period of months yet have inflammationary markers in the normal range.
Med free for a bit as I needed a break from Asacol
 
Probiotics
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 

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