hello. Remicade?

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New Member

Date Joined Aug 2008
Total Posts : 9
   Posted 8/7/2008 3:07 AM (GMT -6)   
New here.  I have ulcerative colitis.    Diagnosed several years ago.  Currently on Remicade infustions, seem to be working ok.   But anyone have problems of it losing its effectiveness?  I've heard that before.  Anyone here have that happen?  what was the next treatment?  anything?

New Member

Date Joined Jun 2007
Total Posts : 8
   Posted 8/7/2008 5:44 AM (GMT -6)   

Hey UCQueen-

For some people Remicade just one day stops working and others have remained on the drug for years with great success (there are a few on the boards here).  I have been on Remicade since Jan. 2007 with great success for over a year and now I am flaring on Remi. So my doc is upping my dose from 5 mg to 10 mg. The docs can play with your dosing- every four or six weeks instead of every eight weeks.  Thus- if things start to go bad it may not necessarily be the end of the road and Remicade can still work for you.  Be positive and have some faith (at least that's what I try to do). 

The next treatment options are Humira or surgery.  Humira is not yet FDA approved for treatment of UC, is crazy expensive, and may require a struggle with insurance to get them to pay for it.  Humira is a tnf blocked like Remi, but is administered by a shot (vs. a Remi transfusion) and is dosed every two weeks (although some require weekly shots per my GI), and is human protein based rather than mouse protein based like Remi (which is why Remi just does not work for some people).  There are other meds that are in clinical trials in the U.S. and abroad for UC- but for the most part their true effectiveness as a treatment for UC is unknown.

If you are doing well on Remicade now my advice is to enjoy it and be positive that it will continue to be a good option for you.  It is always good to be informed about "what's next", but I wouldn't put my focus there.  Good luck :-)

Diagnosed UC January 2006
 Colazal 4x 3x per day
 Remicade since 1/07
 Remicade Remission since late February 2007 !!
 Flare while on Remicade 3/08 & 7/08
 Prednisone 30 mg (tapering 5mg every 2 wks)
 Multi-vitamin daily
 Calcium 1200 mg daily

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 8/7/2008 8:08 AM (GMT -6)   

Welcome to HealingWell, UCqueen. I'm sorry you have UC, but glad you found us.

I've been on Remicade since March 2006 and have been in remission since April 2006. I'm still going strong, but know the Remi could stop working or I could develop an allergic response to it. I hope if that happens, it won't be until after Humira and/or other new treatments are approved for UC. For now, I'm just happy to be well and try to appreciate every day.

Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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