Going cold turkey on Pentasa

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Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/7/2008 9:43 AM (GMT -6)   
Has anyone here ever gone cold turkey on meds and survived? I am at the point where I think the Penatasa I've been taking for 6 years now has turned against me. If I stop it, can I expect big trouble? Can it be that the Pentasa is actually causing diarrhea now after years, that is a side effect that is listed?
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 3 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 8/7/2008 9:48 AM (GMT -6)   
I had proctosigmoiditis the first 11cm of my colon w/UC. I went cold turkey off Asacol (had been on and off 5ASA's for 7 years) was put on 60mg of pred the same day (thougth it would be ok). The pred did not matter, I had a flare from hell, like never before I went 25 + times a day, blood, mucous, cramping, near vomiting, I was a zombie, took 2 mos to get that flare under control and now I have pan-colitis.

My 2 cents, call your GI and if the med is causing you problems try to taper off of it while getting on something else, if it will not harm your health any more than it already is.

In retrospect, I wish I had done that differently. I believe that is why I have pan-colitis (my personal theory).
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 15mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 8/7/2008 5:46 PM (GMT -6)   
My story is similar to Beth's,Procto to Pancolitis,with varying degrees of med compliance in between.I'm also of the opinion that if a 5-ASA is going to cause you trouble,it will do it when started,not after many years of taking it.My advice would be to seek your GI's opinion and not to do anything off your own back,that you may regret at a later date.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


quincy
Elite Member


Date Joined May 2003
Total Posts : 30978
   Posted 8/7/2008 6:30 PM (GMT -6)   
Mitzo...could be the meds...could be that you're actually flaring and have rectal and above inflammation. In effect, saying, you're not on enough meds. You need rectal meds...try them firstly before assuming the Pentasa isn't working for you.

When did the diarrhea start, and what are exactly your other symptoms. ARe you having urgency as well? any bleedig? mucus? etc?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/7/2008 8:45 PM (GMT -6)   
Thanks all, for your wise input. I am in a mess of a strange sort.

I have had UC since 1985, but have been in remission many times. This latest weird situation is diarrhea and bloating - stomach pain, but not mucous or blood, started over 2 years ago.

I got dosed with flagyl and humatin last summer by my retiring GP as a last ditch effort, which put the diarrhea into high gear. Blood started in the late fall, squelched by rectal 5-ASA, Salofalk.

Since New Year, periods of remarkable calm, always disintegrating within 10 days to 2 weeks of god-awful diarrhea again. Entocort worked at first, then didn't. Just finished iodoquin and doxyxycline, GP thinks it might have been undetected amoebas. GI insists it is just something to live with, as colonoscopies (last in MArch) show nothing. All he can suggest is Immodium on a bad day. Stools tests repeatedly come up clean as a whistle.

I am at my wits end, having tried probiotics including Culturelle, avoiding lactose, blood tests show no celiac, I have been on iron, zinc, multivitamins and back off again. Nothing helps, except some things may constipate for a few days only.

The only thing left is to dump the Pentasa. The 5-ASA enemas made the diarrhea the worst of all (but stopped the blood), and I am wondering if the 5-ASA has a bad effect on me in pill form too, after all these years. It sure hasn't been helping at all with this diarrhea.

Sorry to rant - I have no more hope with these doctors, it seems, and nothing helps at all. Can I live like this forever? UC I know I can get dosed for, with Pred or whatever. This problem is different, just crippling and there is no relief anywhere.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 3 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30978
   Posted 8/8/2008 1:17 AM (GMT -6)   
Hi...I can only imagine the hell you're going through, especially all the testing, etc.

It's good you're not bleeding, however, it's possible you're sensitive to the 5ASA meds and can't take them.

It's also possible you're sensitive to psyllium powder...have you tried a different fibre supplement?

Has your doctor for sure tested you for microscopic colitis?

Could you possibly have leaky gut syndrome?

When was your last c-scope?

Here's the last biggie...I'm somehow obviously assuming you're female...if you are...is there any correlation to your monthly cycle? And....have you been checked for ovarian cancer?

If you're male....oopsie.

You've mentioned GP a few times...do you have a GI?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/8/2008 7:25 AM (GMT -6)   
Thanks Quincy ... I am male, not female, so it sure isn't linked to a monthly cycle. I feel it may be the 5-ASA stuff - and your comment about the psyllium is making me start to think a bit too. Oddly, shifting from psyllium husks to powder seemed to help a while back, but bloats a lot. Is it really possible to have psyllium become your enemy?

I have decided to stop the Pentasa and go for the Culturelle again. There is no sign of inflammation right now, at least not the blood/mucous/pain type. So some kind of bigtime intestinal flora imbalance might be the cause here. Perhaps the gut needs a break from being attacked by 5-ASA, various mineral supplements, entocort, and antibiotics/antiprotozoals.

I just wish I didn't have to try to survive an upcoming week in Germany at the end of the month to attend and present at a conference, travelling with my mother and partner. Followed by the start of a new academic year with lectures to give, meetings, and so on. Immodium, I guess...
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 3 500mg Pentasa a day
  • Psyllium powder.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30978
   Posted 8/8/2008 12:01 PM (GMT -6)   
Maybe you just answered your own question...something "big" happening at the end of the month and for the rest of the year. I'd be pooping my pants..lol!

Please don't go cold turkey off the Pentasa...I think what's happening is really the fact that you do need rectal meds....ask the doc for cortifoam and see if that helps.

You have NO idea if there's inflammation..you can't base it on blood or mucus.

What's in the psyllium powder you're using? meaning all the ingredients.

You could switch to Prodium...but the one for bulking, not for constipation. Take the pill form not the liquid..much easier.

Do start the Culturelle anyway.

If you were wanting to drop the Pentasa...do one pill a week....that's it. DO NOT do cold turkey.

You've got a lot more going on. You didn't mention if you were checked for microscopic colitis . Do you have the results of your last c-scope?

Nothing like a good puzzle to get the gut juices flowing..lol!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 8/8/2008 12:48 PM (GMT -6)   
I agree with Q, if you're going to stop the Pentasa, please taper. It sounds like you're going to be too busy to want to deal with a full fledged flare.

Trying different fibers and a probiotic are good ideas as well.

You should never have to "settle" with the condition you're in! If your current GI isn't helping, a second opinion may be in order!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next (3rd) infusion 08/12/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/8/2008 4:13 PM (GMT -6)   
Amazing and wise advice here. I have decided not to abruptly stop the Pentasa, my old friend of more than 6 years, but to taper over a some weeks. Maybe going to Prodiem from my current bulk-bin psyllium powder is also smart, along with Culturelle.

Cortifoam never did me any good in the past, and rectal meslamine kills active inflammation but increases diarrhea and gives me horrific stomach aches.

I am indeed down in a hole, nothing has helped, and stressful obligations are looming. Í just keep a little flame of hope alive and keep telling myself that I have gone into remissions before and this too will pass - even after years.

Do you think Immodium might help, just pop one at bedtime? Or a full-blast dosage of Pred over a few months (it bloats me and turns me criminally insane)...
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 3 500mg Pentasa a day
  • Psyllium powder.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30978
   Posted 8/9/2008 1:54 AM (GMT -6)   
Hi...NO to the imodium. It's what I call a false crutch. Yes, it serves a purpose, but you could have totally inflamed colon and maybe not even notice. Besides, it can set UCers up for toxic megacolon.


Don't use pred as a final last resort.

Try the Canasa suppositories...you can use them up to 3 times a day.
At least it's not too much volume in the gut.

Some people are allergic to psyllium. That could be a possibility.

You could try Prodium...I don't know if it's available in the US. Try the one with methylcellulose...I believe it's the powder. It's supposed to be more non-reactive.

The other one you could try is Fibersure...it's by Metamucil, but its active ingredient (so to say) is inulin. It's actually a product that's supposed to create butyrate in the colon which I've read helps the colon. OK, I don't know a lot about it, but it's also what is called a prebiotic. It's what the good probiotics feed on. Maybe that's what you might need as well.

So, now that I've written this, I would go for the Fibersure. You can mix it in anything, any foods, water...no grit or taste I don't think...so, you'll have flexibility.

So, at least give it an honest go and see if you have any improvement.

Taper the Pentasa by only one pill over a period of time. You might just be a tad over the limit of what your gut can handle. And you'll know soon enough if you've tapered too much.

Ask for the Canasa unless you have them...start using them. Worth a try again...

Buy the Culturelle..you might find they'll do the trick for the diarrhea as well.....and since you're doing that, do the Fibersure.

I'll send you a bill at the end of the month...;-)

Keep us posted.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/11/2008 9:27 PM (GMT -6)   
Didn't fiddle with Pentasa much except reduced by 1 pill, down to 3/day from 4. 5 days of Culturelle have me bloated beyond imagination and stomach-achey to boot. Diarrhea was a bit better for 2 days but back full-blast today. I guess this is life - next I will try changing from bulk psyllium to one of the recommendations here. Called the GI and have an appointment in October, it was the best they could do?! I am basically on my own with this.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 3 500mg Pentasa a day
  • Psyllium powder.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30978
   Posted 8/11/2008 9:42 PM (GMT -6)   
Try the Culturelle at night only before bedtime...

Call the GI again and ask for a prescription of rectal meds...or do you already have the Canasa?

Rectal meds....or are you avoiding my suggestion as many do?..lol!
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/11/2008 9:48 PM (GMT -6)   

I like the rectal meds idea but have flashbacks to the Salofalk enema debacle over this past Xmas, when they stopped blood but caused raging diarrhea and stomach aches. I do not have sigmoid or rectal pain or urgency with this, it is all higher up like in the stomach.

Question - I read that cellulose is a good alternative to psyllium. What products contain cellulose, I cannot find any refs on the web. 

 

 


21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 3 500mg Pentasa a day
  • Psyllium powder.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30978
   Posted 8/12/2008 3:19 AM (GMT -6)   
You still need rectal meds....do ask for Canasa even and use it at least twice a day.

It's methylcellulose...I found 2 good links for you to read. 
 

http://www.muscle-and-fitness.co.uk/health/supplements/fiber_supplement.html

Hope this helps.

q

 


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 8/12/2008 2:22:05 AM (GMT-6)


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/12/2008 8:50 AM (GMT -6)   
Have you considered switching meds? I was on sulfasalazine for 10 years and one day woke up with diarrhea which persisted (no blood) for six weeks. What happened was the sulfasalazine had just stopped working. Are you losing weight during these episodes?

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/12/2008 6:48 PM (GMT -6)   
I think immodium is ok when you need it like days that you are traveling or giving presentations. Just don't take it every day.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/12/2008 9:16 PM (GMT -6)   
Thanks for the feedback, all. Suebear, I have never lost weight from my bowel condition. In fact, I
bloat from problems rather than get skinny at all. Your comment about meds stopping working makes me think - 6 years of Pentasa and now this .... could be that it just doesn't work anymore. Or that I have become sensitive to it - the Salofalk enema nightmare makes me wonder if mesalamine is really my enemy, and that taking it orally as Pentasa is hurting me just as much as the Salofalk did. Need to discuss it with my GI, it is too scary to just quit. I guess...
 
Meanwhile 6 days of Culturelle has me on the brink of hovering over a football stadium with Goodyear stencilled on my side. Gas city!
 
I am going to have to take drastic Immodium action in order to survive my Germany trip, I can see that now. Diarrhea simply will not abate.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 3 500mg Pentasa a day
  • Psyllium powder.


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 8/12/2008 11:31 PM (GMT -6)   
I've noticed from my experiences that pentasa has a break even point. What I'm trying to say is that it is effective to a point (u have to listen to your body on this one) but after you "break even" I have noticed that the pentasa keeps you from healing because the sides outweigh the benefits. I mean one of the major sides is diarrhea, of which you are trying to control. I take the full prescrip dose during a flare to control bleeding. After a few days of no blood I stop and switch to my natural methods. This consists of a metamucil/probiotic mix (HMF forte and culturelle) directly after every meal with a digestive enzyme. Aloe vera capsules for healing and as much highly digestible protein I can pack in without setting myself back (protein mixes are sublime!). I run this for a few days to see if my stools tighten up. Usually once the stool tightens it starts to sweep out your colon. Often I will see white secretions attached to feces. This is normal because your body is producing mucus and shedding its lining (it does this every 72 hours) From there its all by ear. Consult your GI before trying anything, just cause mine says listen to my body doesn't mean yours will too. Please exercise caution. I've done this for 14 years and I have never taken any medication long term. I believe most UC flares are caused by bacterial imbalance and the resulting immune response that occurs. So probiotics (HMF and culturelle are best- yogurt culture isn't a native colonist in the colon), a fiber you can handle (to feed the bacteria) an aversion to antibiotics (many natural antibiotics exist if u look hard enough), and recognize the early warning signals your body produces before a flare and take the fight to it instead of letting it get a hold on you are all one needs to minimize flares. Remember to consult your GI when experimenting with your health. Hope this helps a bit.

Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/19/2008 9:06 PM (GMT -6)   
On a minimal dosage of Pentasa now and still a total mess except I started calcium supplemets which seem to help a little. I tried Imodium on last Friday night and had a good day on Saturday but Sunday was hell - it stopped the D for a day but I ended up with 2 days of liquid D on Sunday. Funny, it did not firm things up, just held the liquid D inside. In any case, I will have to use it while abroad at least on my presentation day. God give me strength. Why is D so destructive to your whole sense of well-being....
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 3 500mg Pentasa a day
  • Psyllium powder.


ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 8/19/2008 9:28 PM (GMT -6)   
Have you tried Asacol? My daughter started out with Pentasa, but was later put on Asocol. It is suppose to target the colon better.
Joan
 
Daughter 5, UC
Pentasa 2X2 daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
 


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 9/2/2008 6:29 AM (GMT -6)   
Well, I am back from my trip and actually, everything went reasonably well. Used imodium strategically and actually pumped up the Pentasa (desperation). Had only 3 bad days out of 9 abroad, and now I have been back 2 days and the D seems to be holding off to some extent, despite no more imodium. A million thanks to all who gave sage advice and empathy. Clearly this problem has a mind of its own and D will come and go when it darn well pleases. Still glad I have had no blood and mucous with it.

21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 3 500mg Pentasa a day
  • Psyllium powder.


saskia
Regular Member


Date Joined Dec 2007
Total Posts : 31
   Posted 9/3/2008 1:44 PM (GMT -6)   
God, Mitzo.  That's awful.  Never ending D and bloating.  It would be hard to enjoy anthing. You suspect and its sounds like you are not having typical flare symptoms or may be supersensitive to the side effects of mesalamine meds to the point, which don't make them very useful for you. Can you push for an earlier appointment with you GI?  I don't think you should have to live with what you are going through.  I know it would be getting me down..big time.  Sorry to hear things are not going well.

*saskia*
pan colitis (diag: Nov 05)
Meds: salofalk7 to 10 tabs/day depending on disease status; imuran 75mg/day; entocort when flaring; cortifoam when flaring; pantoloc; VSL#3; vitamin D and calcium; fosomax

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