Hi...NO to the imodium. It's what I call a false crutch. Yes, it serves a purpose, but you could have totally inflamed colon and maybe not even notice. Besides, it can set UCers up for toxic megacolon.
Don't use pred as a final last resort.
Try the Canasa suppositories...you can use them up to 3 times a day.
At least it's not too much volume in the gut.
Some people are allergic to psyllium. That could be a possibility.
You could try Prodium...I don't know if it's available in the US. Try the one with methylcellulose...I believe it's the powder. It's supposed to be more non-reactive.
The other one you could try is Fibersure...it's by Metamucil, but its active ingredient (so to say) is inulin. It's actually a product that's supposed to create butyrate in the colon which I've read helps the colon. OK, I don't know a lot about
it, but it's also what is called a prebiotic. It's what the good probiotics feed on. Maybe that's what you might need as well.
So, now that I've written this, I would go for the Fibersure. You can mix it in anything, any foods, water...no grit or taste I don't think...so, you'll have flexibility.
So, at least give it an honest go and see if you have any improvement.
Taper the Pentasa by only one pill over a period of time. You might just be a tad over the limit of what your gut can handle. And you'll know soon enough if you've tapered too much.
Ask for the Canasa unless you have them...start using them. Worth a try again...
Buy the Culturelle..you might find they'll do the trick for the diarrhea as well.....and since you're doing that, do the Fibersure.
I'll send you a bill at the end of the month...;-)
Keep us posted.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!