Reading your post was like reading my own biography from 8 months ago. I'm semi-new to this, too. I have UP that has gotten considerably worse since my diagnosis. Don't let that discourage you. I've read in many places that proctitis is likely the easiest form of UC to get under control. You're going to learn a lot in the following months, and its going to be overwhelming and contradictory (as you've already discovered). Unfortunately, colitis and its various forms (including UP) is mostly about
trial and error in terms of medication and diet. My only advice is to keep a food diary to see what foods trigger more BMs, etc. and avoid those foods religiously. Your medication won't work if you're eating stuff that aggravates your digestion. Also don't let your doctors rush you into heavy meds like prednisone. Start slow and try to be patient and don't give up on medication that doesn't show immediate results. Its a slow process... aggravatingly so.
One more thing. Try to educate the people in your life (family and friends) about
your disease so that they know what you're going through. One of the most frustrating aspects of having UC is that no one knows a darn thing about
it. And when they can't give you enough support, we're all here for you, too.
Sorry to meet you under these circumstances, but welcome to the forum. Keep us posted on your progress!
Katie, 30. Chicago 'burbs.
DX: Ulcerative Proctitis (10cm) January '08
Current Treament: Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed), and multivitamin daily.
Diet/Exercise: No fructose, lactose, sorbitol, mannitol or wheat bran fiber. Daily yoga, walking, or cardio w/weights.
Previous Treatment: Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status: Flare (showing improvement)