Waiting for the shoe to drop..

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Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 8/7/2008 11:14 PM (GMT -6)   
I have been without ANY symptoms now for 4 months.
I am on no meds.
I can live life like any "normal" person.
I can go to restaurants, fairs, and walks in the park.
I have a normal bowel movement in the AM after breakfast.
I may or may not have one more before bed.
 Normal stool.
 
But every single day, I am waiting for it to come back.
What is the longest you have been in "remission".

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/8/2008 12:32 AM (GMT -6)   
How awesome you're feeling great!! remission is individual...some have had it for months, others have had it for years. Some with meds, some with no meds.

It'll come back eventually, and the first symptoms might be constipation, excess gas, hard pebble stools or pencil thin stools. If those symptoms are consistent and increasing, you might want to start rectal meds.

Enjoy the time you're feeling good...it's something we all do. It's normal to dread the next flare. I curse when it happens...but I'm always ready and prepared. It took me 2+ years to get it all figured out to use meds earlier rather than waiting and hoping my symptoms would go away.


Don't create undue suffering just because...it serves no purpose unless you're ready. If you're not...then you need a plan. Otherwise, live your life!

Be well...and keep us posted as to how you're doing!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 8/8/2008 4:26 AM (GMT -6)   
yea, listen to heather!

you start thinking it about it too much and it will come back cuz that is what you manifesting.
forget about it and enjoy enjoy enjoy!!!
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 8/8/2008 7:01 AM (GMT -6)   
The longest for me was a year, don't worry about when your next flare will be, just enjoy life!
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/8/2008 7:17 AM (GMT -6)   
I've been in remission a long time....just enjoying each day! As I always say, life is short, so live each day to the fullest!
Carol

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/8/2008 7:30 AM (GMT -6)   
5 yrs was my longest so far.

As i am just getting back into remission and just got a great job I understand waiting for the shoe to drop. When i start having those feelings I try to think about my new job or some plans I have coming up. Doens't always work but it helps.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 8/8/2008 1:27 PM (GMT -6)   
Thanks everyone!
 
My biggest hope is that it will stay in remission until my Vegas trip the first week of Oct.
Last year when we went, everything had to be planned out around bathrooms(which you can all relate to)
 

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 8/8/2008 1:39 PM (GMT -6)   
You probably spent tons of time thinking about your UC while you were in a flare, so use this time to enjoy yourself and focus on more fun stuff! Enjoy your freedom and use it to its fullest potential!! Congrats on your remission!!
 
PS.  Whenever I worry about something that's out of my hands, I try to remember to only worry when there's something to worry about:-)
Katie, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed), and multivitamin daily.
Diet/Exercise:  No fructose, lactose, sorbitol, mannitol or wheat bran fiber.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing improvement)
 
 


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/8/2008 2:50 PM (GMT -6)   
I wouldn't say it is guaranteed that you will flare up again. I know in a few RARE cases that some people have a primary flare-up and then have little to no troubles after that. I'd suggest be prepared, but don't dwell on it. I'm in remission now (off pred. for 3 months) and still think about it daily. It is hard not to, but worrying about it does no good, especially when feeling well. Good luck!
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Multivitamin, fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


Westcoast Joe
Regular Member


Date Joined Apr 2005
Total Posts : 130
   Posted 8/8/2008 3:02 PM (GMT -6)   
Don't think about it and enjoy yourself. I know people that have been in remission for 20 years. Keep holding on for the new drugs that will be coming out. Congrats on feeling great. Get out and do something fun. Joe

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/9/2008 12:55 AM (GMT -6)   
Definitely....but always be ready and bring your meds with you on your trip.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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