SUGAR addict.....slowing down remission??

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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/9/2008 11:54 AM (GMT -6)   
Ok, many of you know my story by now.  My medications are listed below.  I seem to be at a standstill.  Some things have improved (diarrhea, cramping) but blood remains every day about same.  Also, nausea comes and goes and I wish it would GO more.
Anyway, I am a sugar addict.  I love my cookies, puddings, etc.  Don't have a problem with lactose.  I eat lowfat and low fiber for now as instructed by my gastro doc.  However, I know I eat too much sugar.  Only artificial sweetner I can tolerate is Splenda so maybe 2 a day or so is all.  I buy lowfat yogurt - usuall the new Dannon drinks - lowfat ice cream - etc.  Am I doing myself more harm than good?
Should I crack the whip and TRY to eat less sugar.  I cannot eat raw fruit so only have a little unsweetened applesauce or mushed up canned peaches - it just does not satisfy my cravings.  I do not eat chocolate. 
Thanks for listening.  My appointment is Tuesday.
ElaineNY
68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 8/9/2008 1:14 PM (GMT -6)   
Artificial sweeteners aren't good for you...unless you're a diabetic, then I wouldn't suggest one use them.

Eat protein and as well rounded a food as you can....Can you not have chicken, beef, fish, eggs?

Of course, you should try to lower your sugar intake if that's all you're eating...since you have mentioned in the past you're overweight, maybe see a dietitian or nutritionist and get on a proper diet to help you lose the weight as well as satisfy your body's nutritional needs.

Eating sweet foods are instant satisfaction...I would suggest you just not bring in any foods you probably shouldn't be eating.

Common sense rules here.....I don't think it's just about having UC or no fibre intake....there are many smart nutritional options available.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/9/2008 1:58 PM (GMT -6)   
First off your not looking at the right foods. Low fat does not mean low suger. *trust me i know my mom is diabetic* For example: don't drink coktail drinks look for 100% juice. On any bottle for drinks like OJ. Natural sugers are best to have. I hate splenda and equal!! O and sweet and low More like rat poison. Enjoy fruits, trust me even if it is only a little it is enough to not deprive yourself. If you deprive yourself then your plan will backfire.

~Luna0 =)
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/9/2008 2:08 PM (GMT -6)   

Quincey and Luna - thanks - don't think you all told me anything I did not know.  I have "triggers" for my GERD, hiatal hernia and IBS so I know what I CAN'T eat without "problems".  I am 68 and 230 lbs. - obese most of my life.  I have lost 100 lbs. before, 70 and 60 - did it the right way - balanced diet through TOPS.  I started gaining back the last I lost when my husband got cancer and I have no cartiledge in my knees so barely able to do the day to day things I have to do - I used to walk every day - no longer can. 

Believe me - I don't eat a LOT of food but I love sweets and other bland carbs.  When I lost weight I ate a lot of fresh fruit and veggies - UC will not allow that.  What "agrees" with me is bad for me!!  I eat more processed food also because I can't stand in kitchen to cook much.  We have one balanced meal a day.  I eat PB for protein and chicken and fish a little.  I don't care for fish or eggs but eat them occasionally.  Beef maybe once a week.  Canned veggies a little and cooked fruit.

Just wanted you to know I understand all you say and already knew most of it.  My question was something I read about sugar "feeding" the UC - keeping it from healing.  If this is true - the only reason I will give it up or cut back for now.  When I get UC under control I am having knee replacement and hopefully love more weight. 

Can't believe I develoed this UC at my age - must be a second childhood LOL!

ElaineNY


68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 8/9/2008 6:22 PM (GMT -6)   
It totally sucks that you're having to deal with UC at your age....considering your life situation and your husband..

The sugar doesn't feed UC...so, don't look at singularly. The big picture is you're not in a good state to be eating foods that are refined and high in sugar/fat because your diet isn't balanced enough, if that makes any sense. Your body cannot work off what you eat because of your knees and body condition and body weight. It's the chicken or the egg and and an unbalance for a balanced continuum.

Considering you know what to do, but emotionally would need to eat what makes you feel better and physically cannot eat certain foods, you need to have someone make an outline for you to hae your cake and eat it too so to say.

What is your husband eating? Do you cook for him?

If you want a simple answer...don't eat as much sugar and refined foods as you are. There are others who are educated in the antifungal remimens..hopefully they will come on and give you suggestions of what foods will be helpful and satisfying regarding sweets.

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 8/9/2008 6:49:46 PM (GMT-6)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4234
   Posted 8/9/2008 6:43 PM (GMT -6)   
I believe the body is better at healing itself when we fuel it with well-rounded nutritional foods. That means lots of fruits and veggies and not much (or any, ideally) processed foods.
 
If you're going to eat sugary foods, I would stray away from the artificial sweeteners. Those are mostly worse than actual sugar. Once you cut sugar out completely, or at least significantly lower your intake of it, you won't constantly crave it anymore. It will be hard right away, but I would think the long-term benefits would be worth it. If I remember correctly, the new Dannon drinks are chocked full of artificial sweeteners, as are many low-fat yogurts. I suggest trying higher-quality yogurt like Stoneyfield Farms or Brown Cow -- those two don't have all the artificial junk in them.
 
Do fruits and veggies personally negatively affect your UC or did your doctor just tell you to avoid them? I can eat fruits and veggies with no ill effects. I know you said you can not stand for very long in the kitchen, but what about just steaming some veggies until they are soft (easier to digest)? You don't have to be in the kitchen keeping an eye on them, so you wouldn't have to stand for too long.
 
The easiest way to break the addiction is to not buy any sugary products anymore. Just don't keep them in your house...that way the temptation is less. I know it's hard...I'm not trying to minimalize it in any way.
 
Aren't you glad you didn't develop UC when you were younger though...?
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day; Rowasa every 3-4 nights; Canasa every 3 nights;
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv; Zinc supplement every few days


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/9/2008 6:43 PM (GMT -6)   
Thanks!  I understand what you are getting at - yes, a lot is emotional for sure.  I have always been an emotional eater.  I always laugh when I read about people with UC losing weight, losing their appetite, etc.  I can always eat - even when nauseated (in fact - eating then makes me feel better).
Yes, I cook one meal a day for my husband.  Basicly, that is somewhat balanced.  When he did chemo he ate a lot of Ensure, etc. but his weight stays about same.  Unforunately, he craves sweets also. Except for dinner which I fix he does this own "fixing" and usually eats sandwiches and ice cream, etc.  He is doing very well.
I try to eat like 6 times a day - small amounts unless out to eat, etc.
 
My day is something like this: 
2 white toast with light pb, one coffee with fatfree creamer and Splenda
2 cookies or light yogurt or applesauce mid-morning
lunch is probably a sandwich - turkey, ham, cheese, egg, on white bread
afternoon snack could be cottage cheese, cereal (dry), cereal bar, those 100 calorie bag of snacks - cookies or crackers
Dinner - tv lean cuisine or other dinner or burger/roll w/oven fries or lowfat frozen entree w/canned veggies.
No later than 8 p.m. I have last snack - 100 calorie bag, small bowl of cheerios,
applesauce, etc.
I don't eat fried food, raw veggies or fruit, wheat bread, soda, spicy food or sauces unless fatfree.  (learned what I can eat with having IBS for years and gallbladder disease and stones which are gone now)
My portions are small and probably about 1200 to 1500 calories  a day.  I have a calories count book in my head from days in TOPS!
Anyway, my original concern is that sugar (which has not bothered me before) might be stopping my medications from working properly.  I really don't believe that much is going to stop my cravings or eating unless that is the case.
I will lose weight when I finally get my knees fixed - I am in constant pain and only can take Tylenol.  I hope my NP (gastro) does not tell me to quit taking Imodium as that has kept me going for many years with IBS. 
Thanks again.  Good to be able to come  here and get info - my husband does not understand at all.  He loves me but UC is too hard for him to "get".
ElaineNY
 
68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4234
   Posted 8/9/2008 6:48 PM (GMT -6)   
Sugar isn't going to stop your medications from working properly. It may be stopping your body from working to its best ability, however.
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day; Rowasa every 3-4 nights; Canasa every 3 nights;
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv; Zinc supplement every few days


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/9/2008 6:51 PM (GMT -6)   

Sara - you don't know how glad I am that I did not have UC when younger.  Althought gastro doc thinks I had it coming with IBS for so many years - just never had the ulceration - only diarrhea. 

Your points are all valid and well taken.  Thanks.  My doc told me not to eat anything raw and low residue/bland until healed.  That is pretty much what I eat anyway.  I really don't LIKE veggies so having to wash, clean and then force them down is hard.  I eat the canned as salt does not bother me so far. Only fruit I CAN eat is cooked so I eat applesauce and peaches some.  Canned pears made me very sick the other day.  I am avoiding all products with artificial sweeteners except one coffee with Splenda. 

One thing I do not do and should is drink water - I hate it - makes me feel ill alone and dont' like washing down my food with it.  I try!

Thanks for replying and caring.

ElaineNY


68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4234
   Posted 8/9/2008 6:55 PM (GMT -6)   
My dad has similar tastes to yours. He doesn't like to drink plain water, doesn't like many veggies or fruits. He's what he calls a "meat and potatoes" guy. I'm the exact opposite. Anyway, I guess if you really hate the taste of something, it's pretty hard to force yourself to eat it. I think there are ways to make veggies more appetizing, though I'm not really familiar with them b/c I like them as they are. I'm sorry I wasn't more help. I wish you the best of luck in feeling better ASAP.
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day; Rowasa every 3-4 nights; Canasa every 3 nights;
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv; Zinc supplement every few days


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/9/2008 8:21 PM (GMT -6)   
If you don't like water try brewing some ice tea really really black. Then put a little bit of it in a big glass of water. Gives ya taste and water. Sometimes I don't even add suger to the tea. Yes i am weird...but it really works. Now i can't drink anything but water and tea...Granted tea is something that you can't over do it. But sometimes i get bored of just plain water. You can even use honey for a sweetener really really goood...=) really really really good....just don't do it for ice tea...It only works for hot tea, trust me i tried...

M: waahooo honey in ice tea...yay...oppss its stuck at the bottem...
Co-worker: haha nice try...Nice blonde moment...

Hey don't blame me for trying...but it wasn't that bad. I still tasted the honey.
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/9/2008 8:39 PM (GMT -6)   
Sugar and IBD - Oil and Water
 
Now where did I leave my M&M's!
 
Just kidding...if I ate a bag of M&M's I'd be in big trouble.


Mild to Moderate Pancolitis
Dx'd 05/2007
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/10/2008 9:51 AM (GMT -6)   

Ok, I am TRYING to cut back on sugar - checking sugar content in food and buying the lowest w/o artificial stuff too.

Thanks for your replies and your humor!  I love M & M's also - favorite candy.  Haven't had any for months.  Also, glad I am not blonde (I am pure white)  If it is ok to post my blog here you could see my picture with husband - my blog is about his journey with lung cancer.

ElaineNY


68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 8/10/2008 12:15 PM (GMT -6)   

Elaine- As I was reading your typical daily menu, I noticed you are eating a LOT of grains (bread/cereal), which generally breaks down into glucose once it starts being digested....or am I wrong on that??  That is a lot of simple carbs (sugar). "Low fat" food tends to have more sugar/carbs so that may be something to watch. UC symptoms can have a fungal etiology which means that eating sugar/grains will continue to feed the fungus. In fact, a sign of fungal ovegrowth can be a noticeable craving for sugar and grains. Simplifying, fungus will take control of your body and tell you what it needs to eat. I guess in a way, what you are eating could be contributing to your symptoms, if you have a fungal problem. A low carb diet is necessary to kill fungus.

For me, when I followed an antifungal program, eliminating all grains, sugar (a grain), actually all processed foods for a period of time, and enjoyed choices of veggies, some 'legal' fruits like any type of berry, all meat/fish/poultry/eggs, my UC symptoms went away. I also took olive leaf extract, a natural antifungal.

I see you eat peaches and apples, which contain sorbitol. Some people cannot tolerate that, especially if you have IBS issues, as well.

Good luck....... :)


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 8/10/2008 12:28 PM (GMT -6)   

Hi Elaine,

Processed sugar is not good for us and there are several sites that talk about problems associated with it, especially if your immune system has been weakened. If you eliminate sugar from your diet, it may help you in a big way or it may not...the only way to know for sure is to try eating without it. However, if you can't do that...you may want to try using honey instead, which is a lot healthier for you. At the very least...reduce your sugar intake if you must have it.

NBT

 



Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/10/2008 12:43 PM (GMT -6)   

Of course, I realize too much refined sugar is not good for anyone!

Answers and questions....

Elaine- As I was reading your typical daily menu, I noticed you are eating a LOT of grains (bread/cereal), which generally breaks down into glucose once it starts being digested....or am I wrong on that??  That is a lot of simple carbs (sugar). "Low fat" food tends to have more sugar/carbs so that may be something to watch. (I don't understand that etiology means but I do not eat lowfat food with a lot of sugar - I have to eat lowfat due to after gallbladder removal - I cannot digest fats) UC symptoms can have a fungal etiology which means that eating sugar/grains will continue to feed the fungus. In fact, a sign of fungal ovegrowth can be a noticeable craving for sugar and grains. Simplifying, fungus will take control of your body and tell you what it needs to eat. (I have ALWAYS craved sweets - this is not new - for about 50 years now)  I guess in a way, what you are eating could be contributing to your symptoms, if you have a fungal problem. (how do I know if I have a fungal problem inside? I have had one yeast infection in my whole life - many years ago)  A low carb diet is necessary to kill fungus. (asked and at least two people told me sugar would not affect the healing of my ulcerative colitis - now who is right?)  My NP will get that question on Tuesday.

For me, when I followed an antifungal program, eliminating all grains, sugar (a grain), actually all processed foods for a period of time, and enjoyed (glad you enjoy veggies and fruit - I am never satisfied and end up with a PB sandwich LOL) choices of veggies, some 'legal' fruits like any type of berry, all meat/fish/poultry/eggs, my UC symptoms went away. I also took olive leaf extract, a natural antifungal. (I am not sure what I would eat enough of - I can't eat raw veggies and hate most anyway - fruits I eat are canned and have NO SORBITOL - believe me - I know because all sorbitol and other alcohol sugars give me diarrhea for years.)  Yes, I eat too much white bread, etc. - but they "agree with my stomach" when a lot does not.

Thanks for your help - I truly enjoy reading everyone's opinions.  I am trying to eat less refined sugar and drink more liquids. 

I see you eat peaches and apples, which contain sorbitol. (canned peaches and applesauce DO NOT CONTAIN sorbitol)  Some people cannot tolerate that, especially if you have IBS issues, as well.


68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/10/2008 12:46 PM (GMT -6)   

Thanks everyone!  I don't come across very good on the forum.  I wish I could talk to you all in person to explain more about myself.  I am 68 and still do not understand a lot of medical stuff but I KNOW what my stomach can handle.  I had a tiny bit of salad (first in long time) yesterday and this morning - well, not good!

I will write after I see the NP (gastro) Tuesday and her recommendations, etc.

Thanks everyone for putting up with me!  I wish none of us had to be here. But I live with someone with Stage 4 lung cancer who is doing much better than I am so remember we are lucky - it could be a LOT worse!

ElaineNY


68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/10/2008 12:55 PM (GMT -6)   

NBT - I found this in several places on the internet.  Of course you use less honey to get the same sweetness and therefore better caloriewise..

 

Isn't it better to eat natural sugar like honey than to eat processed sugar?

No, because all sugar forms are basically the same and are composed of various simple sugars such as fructose, sucrose, and glucose. Advertising claims to the contrary, all simple carbohydrates, or sugars, are handled exactly the same way by the body. And all sugars (honey, brown sugar, raw sugar, maple syrup, or jelly) have essentially no vitamins and only trace minerals in some (molasses) to go with their calories. The high caloric count and the lack of nutrients are why sugars are referred to as "empty calories."

Don't spend extra money on so-called natural sugars unless you enjoy their flavor. Your body doesn't know the difference, and there is no nutritional benefit.


68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 8/10/2008 2:56 PM (GMT -6)   
Absolutely true....The thing is....because with extra flavouring sucvh as honey, sugar in the raw, etc... one will tend to use less.

We can make better decisions...there's no doubt about that. Some breads are made with lots of sugar and milk, others are not....I read all labels and try to make better decisions regarding my sweets intake.

M&M peanuts don't last long with me because they satisfy a wide range. The crunch, the taste explosions, the smoothness...etc...
The only drawbacks for me are I eat too many, there's a lot of fat, and my poop is multicoloured the next day.

Since my better choices and not having goodies in the house, I've lost 15 pounds over the past year and a half. Good for me because even though I coveted the new weight I packed on over a 2 year period, it was mostly around my middle causing discomfort. I feel better now at 145 pounds and since I make better decisions I feel better mentally.

Has it helped or changed my UC status..not really....but what has changed somewhat is my perception of just eating better overall. Changing a lifetime of being so underweight allowed me to eat pretty much anything in whatever quantity. Once I lost so much more weight, it was a free-for all.

Getting older has helped the weight gain...coming on 54....but I have my future to look out for and want to maintain better condition for that reason.

So, in effect....although I'm not a follower of the fungus theory, most of us do eat emotionally regardless of weight....so, making good choices allows our bodies to be in better working condition to put up with what we have to deal with on a daily basis.

You can still make better choices for your condition and life situation, but it will be difficult considering all you're having to go through with your own health and your husbands.

If you coud get someone to come in and cook a meal a day, that in itself might help take some of the pressure off you.

Hope you feel better each day.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 8/10/2008 5:09 PM (GMT -6)   

Elaine- sorry, I guess I should have said that sorbitol is a "natural" sugar in those fruits, and can cause some discomfort to IBS'ers. It is not on the ingredients label. I guess the only way to tell is to eat other fruit and notice if you feel better.

Maybe yeast is a factor in your symptoms. I cannot tolerate yeast and only discoverered it by removing it from my diet. Noticed I felt better without it, and felt much worse after I ate anything with yeast. Kind of an "ah-ha!" moment for me. Just throwing another thought your way. Maybe bread is affecting you more than you think. Dunno.

As for fungus playing a role in UC, for me, I know 100% that was definitely the contributing factor to my UC symptoms. I have to believe that for others, fungus might be playing a role, as well. I found a few recent research findings that indicate such. It seems that the medical field is not only focusing on the bacteria role, but now fungus, as well.

http://www.ncbi.nlm.nih.gov/pubmed/17203803?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=3&log$=relatedarticles&logdbfrom=pubmed

http://www.ncbi.nlm.nih.gov/pubmed/18419533?ordinalpos=3&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

http://www.ncbi.nlm.nih.gov/pubmed/17941462?ordinalpos=20&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

http://articles.mercola.com/sites/articles/archive/2003/09/13/inflammatory-bowel-disease.aspx

Saying all that, if you really want to find out if fungus is playing a role in YOUR symptoms, the only way to know for sure is to experiment with an antifungal program. Within a few weeks, you will know. Asking your doctor won't be valid, as all my doctors over an 8 year period told me that changing my diet wouldn't make any difference. I truly hope you find answers to help you get well again. Take care. Best to you and your husband.

Kim


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/10/2008 5:27 PM (GMT -6)   

Gotcha on the sorbital in some fruits.  I researched it a bit and found you have to eat large amounts.  I only eat fruit a couple times a week - maybe 3 - only canned and cooked.  I cannot eat citrus of any kind of bananas make me sick.  Seeds in berries - oh NO!!  And I don't like any others.  All juices give me too much acid - I take Prilosec which helps.  Having a hiatel hernia does not help. 

Sorry I am not educated (smart) enough to read those articles and understand anything.  Thanks anyway.  They are just too deep for me.  Can you get bread with no yeast?  I suppose like flat bread or pita maybe.  Doctor tested me for Celiac disease.  This whole thing started after a long course of amoxicillin and although I tested negative for c-diff I KNOW where it came from.  That is one reason I drink the new Dannon drinks about every other day and take Align or Primal Defense.

Thanks for your info - you are very nice to try to help me.  I will write after Tuesday.  Today was a good day - still having blood but no diarrhea or little camping.I could live with how I am now if the bleeding would slow down just a little more and I can take Imodium when I travel or really need it.

 

ElaineNY


68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 8/10/2008 9:02 PM (GMT -6)   

Yes, you can get yeast free bread, usually in health food stores, but some grocery stores are carrying it now in their freezer section. Read labels for flat tortilla bread, as some DO have yeast.

OK-you've just revealed a big clue that your condition is fungal related, that is... your symptoms occured after an antibiotic treatment. I have a hunch you may be onto something ;)

Good luck. Looking forward to hearing what your doc says....

Kim


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/10/2008 10:54 PM (GMT -6)   
Eating loads of fruit will not make you fat...eating loads of processed sugar will, the body does NOT know how to break processed sugar down like it does natural sugar via fruits and veggies...Stevia is an excellent alternative for a sweetner, it's natural and non caloric...there is a difference between "sugars" out there, honey is better than processed sugar because honey has natural anti effects, processed sugars has pro-inflammatory effects...there is a difference among them.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/11/2008 8:46 AM (GMT -6)   

You gals are full of info - hope you know I appreciate it even though I follow what my doc is having me do for now. 

I have Stevia but have not gotten used to the taste yet - try it once in a while but my coffee, etc. is bitter.  Honey is only good to me on a slice of white toast.  Tastes funny in other stuff.

Ok, about the antibiotic and UC - my doc tested my stool and said that was not the cause - I just couldn't argue with that - however, it came on 10 days after I quit the amoxicillin.  He gave me an antibiotic that is supposed to be FOR UC (c-diff, I assume) and I could only take 3 days as it got so much worse with pain and cramping. 

I will let you know what the NP says tomorrow. She is so nice (nicer than the doc lol) but works very closely with her patients and the gastro doctor.

ElaineNY


68 yr. old granny
New UC (with rectal bleeding and diarrhea)- 3 months ago, colonoscopy showed mild
UC rectal and little above.
Using Proctofoam once a day - added Colazal 3X2
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D
 
 
 
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/11/2008 11:59 AM (GMT -6)   
Stevia will taste bitter if too much is used...I get the smallest amount of it on the very tip of my tspoon and find that's plenty for one cup.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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