Another good update on Bratcat

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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 8/10/2008 12:16 AM (GMT -6)   
Bratcat went for her 5 weeks checkup with the surgeon. He said she is good to go for anything! Work, lifting things, swimming, etc. Now she'll have no more excuses for not helping with the food shopping and cleaning up around the house! She goes back to work on Tuesday (it's 13 hours a week). They know she may need to sit once in awhile.
 
I even asked, hypothetically if she needed ibuprofen or antibiotics down the road, could she take them (previously big no-no's for UC). According to the surgeon, she is healthy, normal, and cured so she won't have any issues with stuff like that.
 
She goes for a pouch biopsy in a few weeks. He wants to do it with her sedated. It sounds similar to a colonoscopy (in the office, don't eat after midnight). Luckily no yucky prep though. And she is still on target for her reversal in October. The surgeon said just when she finally gets used to the ostomy, she'll be ready for her next surgery.
 
So far, so good.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!  7/3/08-Step 1 j-pouch surgery


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/10/2008 7:39 AM (GMT -6)   
Ah that's so awesome Bennie! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
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Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 8/10/2008 8:35 AM (GMT -6)   
Hope all goes well for her;-)
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/10/2008 9:09 AM (GMT -6)   
Wonderful news! I'm so happy she's well and on her way to being a healthy teen.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bap06
Regular Member


Date Joined Jun 2008
Total Posts : 57
   Posted 8/10/2008 9:19 AM (GMT -6)   
So good to keep hearing the good news, and so happy for your family! :)
*Diagnosed 10/07 (6 months pregnant w/ 2nd baby)
*Currently in remission
*Tapering prednisone - at 30 mg
*Lialda (3 x a day)
*Canasa
*Prilosec
*Calcium, multivitamin, Metamucil, iron, fish oil, probiotics


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/10/2008 9:25 AM (GMT -6)   
Great news and very encouraging for as all!!!
Mild to Moderate Pancolitis
Dx'd 05/2007
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 8/10/2008 10:41 AM (GMT -6)   
That's awesome! So glad to hear things are going well!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*surgery tentatively scheduled for September


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 8/10/2008 2:33 PM (GMT -6)   
Great news; thanks so much for posting! Whatever the surgeon says about "cure", I believe it's still best to avoid antibiotics & otc meds as much as possible. Today's miracle drug can turn up in the news years later as an unforeseen trouble-maker or carcinogen. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 8/10/2008 2:59 PM (GMT -6)   
WOW...totally awesome news Bennie!!! Curious about the pouch biopsy..can you explain the why and what is done....

Way to go BratCat!!

quincy xx
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 8/10/2008 3:34 PM (GMT -6)   
Great news
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 8/10/2008 3:51 PM (GMT -6)   
Old Hat--I agree about the meds. She has gotten used to tylenol instead of ibuprofen over the past few years. And (knock wood) she hasn't needed antibiotics. But it is good to know that she can take them. She may need her wisdom teeth out in the future and these drugs may be needed (or not).  I still think I would add a probiotic (or at least yogurt) to help balance the antibiotics.
 
Quincy--the only thing I know about the procedure is that the surgeon wants to see how things are healing.  Her procedure is August 25 so I will get more info then and let you know. I do know that he said we would only be in the office about 1 hour (total) and that the procedure is 10-15 minutes. This is not the procedure where they "test" out the pouch a few days before the reversal.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!  7/3/08-Step 1 j-pouch surgery


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/11/2008 12:07 AM (GMT -6)   
Wahooo good to hear good news!!!!! Yay =)
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 8/11/2008 11:02 AM (GMT -6)   
Fabulous!!! That is very good news! It gives me hope, thank you for sharing and I hope everything goes well for her at work next week!!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 15mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 8/11/2008 11:56 AM (GMT -6)   
FANTASTIC NEWS!! I am so happy for Bratcat (and for you, too, Bennie, now that she can get back to helping out around the house!0.
Wearing many hats: Mother, Wife, Daughter, Professional, Sister, Friend
 
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Multi-Vitamin (1x per day)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 8/11/2008 12:38 PM (GMT -6)   
That's great! Thanks for the update!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Zegerid (not sure if it is working)

http://www.healingwell.com/donate
Co-Moderator UC Forum


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/11/2008 12:44 PM (GMT -6)   
Bennie,
How do they test the pouch before reversal surgery?
Do they have her doing "water enemas"? I read somewhere about people doing that to help expand the pouch while between surgeries and it sounded like a great idea, I was just wondering if it was standard protocol or whatever.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 8/11/2008 2:24 PM (GMT -6)   
This is such wonderful news that she has healed so quickly and is headed back into living  a healthy life.  Congrats to her, and to your family - enjoy the health. I know our family everyday cheers how well Mark is doing, in fact he is at his 9 month mark with his jpouch and he is really healthy - we updated his photos so if Bratcat wants to see how his belly and body looks at 9 months  - I still can't believe they can go through this surgery and come out with such great results:  http://ucstory.wordpress.com/2008/08/08/mark-9-month-jpouch-update/
 
So glad again for your daughter - she deserves all the good health!
Megan
 
Mark & Megan
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!


UCqueen
New Member


Date Joined Aug 2008
Total Posts : 9
   Posted 8/15/2008 12:14 AM (GMT -6)   
That is wonderful!!

Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 8/17/2008 6:29 AM (GMT -6)   
Thanks for the update, I really appreciate it as I was forced to have the surgery 11 days ago and now have a stoma.

I got the good news today that the doctors all think that once I have healed and become used to the stoma that I would be a good candidate for a j-pouch.

Again, thankyou. This really gives me hope and its great to hear that BratCat is healing well.

(sorry - forgot to update signature. No UC for me any more!)

--Sev
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Currently no medications as nothing works any more;
    - Surgery is only option now, just waiting for available theatre.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 8/18/2008 9:08 AM (GMT -6)   
So happy to hear bratcat is doing so well! I appreciate the updates :)

Going to check out Mark's pictures now...
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 8/18/2008 10:15 AM (GMT -6)   
I am so happy for her that things are going well. I can't believe it's been 5 weeks already.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08, 6MP started 6/24/08


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/18/2008 12:05 PM (GMT -6)   
Severin said...
Thanks for the update, I really appreciate it as I was forced to have the surgery 11 days ago and now have a stoma.

I got the good news today that the doctors all think that once I have healed and become used to the stoma that I would be a good candidate for a j-pouch.

Again, thankyou. This really gives me hope and its great to hear that BratCat is healing well.

(sorry - forgot to update signature. No UC for me any more!)

--Sev

I LOVE seeing that!!!!
Mild to Moderate Pancolitis
Dx'd 05/2007
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

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