Hey Tums - hope you're doing better. I notice in your signature you are on the same meds as my husband. Do you think the dosage needs to be changed at all possibly? I say this as hubby was on the asacol and prednisone before the azathioprine and that did not work. He was on 6 then upped to 12.
In May started on 75 mg of aza which was low along with 40 mg of prednisone. By July 3rd there was a change in that he felt better - not great but stopped being a recluse. His taper of 40 mg was a very slow one and the Mayo clinic upped his aza. to 150 mg in Nov. A month later he was off the prednisone. (He was on and off prednisone for almost 2 yrs and was steroid dependant.) That drug makes you so depressed among other things.
I'm just wondering if your 100mg aza. needs to be higher and if your asacol needs to be higher? As much as I dislike the prednisone he seemed to be tapered too quickly when he was on it several times. So when they started the 40 mg with the introduction of the aza. after reading so much on the boards here I requested a much slower taper to see how that would work.
Also the advice of treating from both ends from this board...when he went to Mayo clinic we also requested a different rectal med as he was having a hard time with the liquid type and was switched to the cortifoam which really helped make a difference.
It is so tough - it is depressing to always feel lousy - add to that having a family that you can't interact with the way you want to. This forum helped us so much and gave me the insight and sanity to cope with this and gave me so much information to share with him to help him.
This is a great place to vent, get information from, sympathy or whatever you need. Hopefully you will have better days ahead and hopefully soon.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran
Zero mg prednisone 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month