anyone diagnosed with cholangitis because of UC ?

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flspouse
New Member


Date Joined Jul 2008
Total Posts : 9
   Posted 8/10/2008 11:06 AM (GMT -6)   
My husband is going in for an ERCP test and liver biopsy to determine why he is having symptoms of jaundice
itching, pain under rib cage, lower back pain nausea, fatigue chills vomiting.

His dr. stated sclerosing cholangitis is associated with people that have ulcerated colitis and
after researching this disease it seems to be rare not common and prognosis is grim.

Does anyone that has this or know someone can give me feedback?

Thank you

UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 8/10/2008 11:14 AM (GMT -6)   
flspouse said...
My husband is going in for an ERCP test and liver biopsy to determine why he is having symptoms of jaundice
itching, pain under rib cage, lower back pain nausea, fatigue chills vomiting.

His dr. stated sclerosing cholangitis is associated with people that have ulcerated colitis and
after researching this disease it seems to be rare not common and prognosis is grim.

Does anyone that has this or know someone can give me feedback?

Thank you


I am suspected, but not yet diagnosed. Done ERCP, Liver Biopsy, been to Mayo etc. Check our www.pscpartners.org for some of the best psc info I have found.

By the way MRCP seems to be a less invasive way to dx PSC. Is this an option vs. ERCP?

Good luck and keep us posted. By the way, how old is he? Seems to be a common age window where psc emerges. Late 30's off the top of my head...
 


flspouse
New Member


Date Joined Jul 2008
Total Posts : 9
   Posted 8/10/2008 11:43 AM (GMT -6)   
He just turned 60 in July. Diagnosed with UC in 2001. The Dr. performed a gallbladder ultrasound, mri with contrast
and an mrcp last week. None of these tests showed a blockage with stones, markers for cancer came back
negative as did biopsy with mrcp.

Thank you for the website, I will check that out.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/10/2008 12:41 PM (GMT -6)   
One of our moderators does have PSC with her UC. I'm sure she'll have some information for you when she comes online.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 8/10/2008 4:08 PM (GMT -6)   
I have PSC and or PBC with UC....does your husband have UC?

I've not had the ERCP (refused it), but it was confirmed visually with common bile duct constrictions/beading.

I'm now on URSO which has helped get liver enzymes back to normal...
I've not had any symptoms of jaundice or itching as of yet.

What were the visual findings of the MRCP?

I feel for your husband and you if he does have it.....

Have the doctors checked him out for autoimmune hepatitis?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


flspouse
New Member


Date Joined Jul 2008
Total Posts : 9
   Posted 8/10/2008 4:18 PM (GMT -6)   
He does have UC. The MRCP did not show any stones or blockage. He has had blood work
for hepatitis that has been negative, but I have not questioned his Dr. about autoimmune
hepatitis which I will do so on Wed. when we go for the ERCP.

Thanks

quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 8/10/2008 4:19 PM (GMT -6)   
The MRCP should have showed at least the classic beading, etc. Did it not show anything??

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


flspouse
New Member


Date Joined Jul 2008
Total Posts : 9
   Posted 8/10/2008 5:20 PM (GMT -6)   
No it didn't, that is why the dr. wants to do this ERCP and the liver biopsy. He is having all of the symptoms
that are increasing such as the itching just started about 2 weeks ago, chills, nausea, pain and others. He
has had several blood tests showing elevated liver enzymes and his bilirubium is a 7 but I don't know
what a normal range is other than the Dr. said this number was a little high.
I just pray his colitis will calm down so he can keep the appt. He has had a really bad day with it, having to run
to the bathroom several times an hr. and the cramping and other symptoms associated with UC.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 8/10/2008 7:04 PM (GMT -6)   
How long has your husband had UC and what meds is he on at this time?

Has he had these symptoms progressively or did it hit him quickly?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


UCPSC
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/10/2008 7:30 PM (GMT -6)   
I have UC and small duct PSC. Liver enzymes are kept in check with UrsoForte taken three times per day.
UC is kept managable with Asacol, but still have daily cramping. PSC and UC do tend to go together.

UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 8/10/2008 7:32 PM (GMT -6)   
UCPSC said...
I have UC and small duct PSC. Liver enzymes are kept in check with UrsoForte taken three times per day.
UC is kept managable with Asacol, but still have daily cramping. PSC and UC do tend to go together.


Mayo suspects I have small duct. How do you know for sure? Liver biopsy?
 


flspouse
New Member


Date Joined Jul 2008
Total Posts : 9
   Posted 8/10/2008 8:18 PM (GMT -6)   
My husband has had UC for 7 years. He is on Lialda, hydrocortosone enemas, canasa and some type
of med for cramping and bloating. He is on/off prednisone. He was preparing to go on Remicade, having
just gotten his shingles vaccine and waiting for 60 days before trying Remicade. His Dr. said the maker
of Remicade stated you can start 30 days after a live vaccine but we were going to be on the safe side
and wait 60 days. Now that is all put on hold until we can get this recent episode diagnosed.

The symptoms of itching, fatigue, nausea, vomiting and jaundice with severe pain under rib cage and
lower back all came on within a matter of 3 weeks.

He is being given all of the tests and blood work within the past week. He has an excellent Dr.
that is really staying on top of these recent symptoms.
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