Hubby came off prednisone in Dec. and he suffered with joint pain primarily in his shoulders and hips. I too was wondering if it was the azathioprine that was increased from 75 to 150 mg in Nov. One month later the tapering schedule of the prednisone had him off it finally. The Dr insisted it was not the aza. and the prednisone was probably it and it would go away eventually. He started in August on the fosamax so we were thinking maybe that was that contributing to it.
Add to that his primary care upped his zocor from 20 to 40 mg and then wham....very debilitating joint pain. We stopped the fosamax as our research made us think that was doing it. No change. The Mayo Dr's guess was the increase of the statin drug which made sense. So he went back to the 20 mg of zocor and back on the fosamax....within a month the hip pain was gone and his shoulders are doing much better.
So 8 months after coming off the prednisone and cutting back to the 20 mg of zocor he has been on for about
7 years with no ill effects and things are much better. So I have to agree that the prednisone's effects that can take up to a year I hear to completely leave your system was the main culprit. Changing his zocor really complicated & compromised things further.
Hubby also got a very bad case of roseacea and the Mayo Dr. assured us that it would go away in time after he was off the prednisone and it certainly did.
Suffice to say the darn prednisone wreaks havoc.
Hubby is still on a pain management program for the colitis but things are looking up and he is having better days so I am hoping that weaning of the pain meds will be starting soon. Even with those pain meds the joint pain was very debilitating as you are reporting.
It's easy for others to say hang in there and it will get better or should with time but every day you are in that kind of pain is very tough to deal with. As suggested above maybe your Dr can have you checked or tested to be sure it is not something else that needs additional treatment.
I hope it is the prednisone withdrawal and you start to feel better sooner than later.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran
Zero mg prednisone 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month