A disaster at hospital on Friday for Remi Infusion

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schrek-chewbacca hunk
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Date Joined Jun 2005
Total Posts : 2666
   Posted 8/11/2008 11:56 AM (GMT -6)   
The hospital had the wrong orders from my doctor (who couldn't be reached).  We were there for 6 hours waiting - then they wanted to admit me, put a pic line in - unbelievable.  I got in my wheelchair and left.  Now tomorrow I am going to the infusion center, the right place where I have had it 10 times before.  all this because the nurse mentioned I was in a wheel chair and may need a bedpan.  Evidently they have a problem with bedpans in that setting - they have beds so I am confused as to why?

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Date Joined Apr 2007
Total Posts : 1366
   Posted 8/11/2008 12:03 PM (GMT -6)   
That's ridiculous! You just can't seem to get a break, huh?? :(
They wanted to admit you just because you *may* need a bedpan? That doesn't even make sense. You should have just told them you'd sit in the bathroom to receive your infusion if it was that big a deal ;)

Hopefully things go better for you tomorrow. *hugs*

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day


Old Hat
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Date Joined Feb 2007
Total Posts : 5191
   Posted 8/11/2008 12:04 PM (GMT -6)   
That's outrageous! 6 hours of waiting: they owe you an apology bigtime!!!!! Unbelievable what the health care bureaucracy does to patients with multiple physical problems--  Actually, I had been thinking of you because your last post mentioned the likelihood of Remicade resumption on Aug. 8. Hope all goes well tomorrow! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 8/11/2008 12:14 PM (GMT -6)   
And if you can walk with an IV I dont see why they couldn't wheel you with an IV. That is unreal.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

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Date Joined Feb 2005
Total Posts : 6448
   Posted 8/11/2008 12:25 PM (GMT -6)   
Yes Bob, I agree...they should be able to wheel you into the bathroom. Many do that at my center with no problem at all. THe bathroom is even outfitted with a toilet for folks in a wheelchair. Good luck tomorrow.


Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
Co-Moderator for the UC Forum

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Date Joined Dec 2005
Total Posts : 3238
   Posted 8/11/2008 12:38 PM (GMT -6)   
Oh no! That's awful! Is the UC behaving at all?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Zegerid (not sure if it is working)

Co-Moderator UC Forum

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Date Joined Jul 2007
Total Posts : 2148
   Posted 8/11/2008 1:07 PM (GMT -6)   
oh my, that is terrible.

ok, lets see they made you wait 6 hours b/c you had a wheelchair so they could admit you and I bet the infusion would have taken less than 6 hours! That makes no sense at all! GRRRR!

just like the time the state of MA sent a bill for 3 cents using 24 cents to mail the letter. My husband wrote the check 3 cents short for his excise tax one year.  (only mean to say the bureaucracy of it all!)

Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 15mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Post Edited (Beth75) : 8/11/2008 12:10:35 PM (GMT-6)

Veteran Member

Date Joined Nov 2005
Total Posts : 2045
   Posted 8/11/2008 3:38 PM (GMT -6)   
I think you are owed a serious apology Bob.I think thats a disgrace that you were kept waiting for so long.Sending best wishes to you buddy.
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/pred/colofac


Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 8/11/2008 4:07 PM (GMT -6)   
That is ridiculous! I agree with Marty. You deserve better.

Best of luck this time.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next (3rd) infusion 08/12/08
Last Prednisone dose:  7/15/08
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 8/11/2008 7:39 PM (GMT -6)   
Well that's just plain dumb! Yeah, they should apologize to you.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
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Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 8/11/2008 7:42 PM (GMT -6)   
That's ridiculous! They definitely own you an apology.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*surgery tentatively scheduled for September

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