Good food... Bad food!?

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builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 8/11/2008 1:24 PM (GMT -6)   
Hello everyone,
 
I've had what is suspected to be UC (Still not been confirmed even tho I have been suffering for 2 and a half years... I know, rubbish!)
 
I am not on any medication, but have been flaring up for the last 3-4 months now, and I am getting REALLY fed up!
 
I just wanted to know if there was any food that I should try to eat more of, and and food that I should avoid.
 
I am not looking to go onto one of those super restrictive diets tat cuts out nearly everything, I just want to know particularly bad things that I should try and avoid. I have had various theories about what is making me feel worse, but when I test them by cutting them out, I don't really improve at all.
 
Thanks so much for any help you can give me.

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/11/2008 1:43 PM (GMT -6)   
When I'm flaring I try to use the rule of "if it LOOKS like it could hurt going out, it probably will" or if it burns your mouth (spicy) it will probably burn your butt! But not everything will have the same effect on everyone or even every time you eat it.. Like sometimes I can't eat popcorn, chips, chili, chicken, anything greasy, pizza, red sauce, fruit with skins, salads, nuts, dairy... I mean the list really goes on and on. But there are occasions when I certainly can handle these things. Basically, moderation is key.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/11/2008 4:21 PM (GMT -6)   
The only rule I follow is if it hurts me, it's bad food. If it doesn't, it's good. May I ask why you're not on any meds?
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 8/11/2008 6:52 PM (GMT -6)   
The reason I am not on ant meds, is because for the last 2 years I have been traveling the glob a lot (mainly due to work) and had doctors that um and ah about my case. for first year I was told it was IBS, I believe that the doctor who told me was very bad, as he didn't carry out a single test, and only spoke to me for 5 minutes.

so for first year, was also throwing up regularly for first 6 months and lost 25lbs in weight! (I normally weigh 180ish and was extremely fit and healthy) I spent 6 months of this time living in whistler, canada, and the healthy relaxed lifestyle helped a lot, so I felt was getting better, so I just figured that i was on a road to recovery.

I left Canada, and went home, and work was stressful and life was tough, and I suffered from depression etc etc... and it flasred up again. I saw another few docs and specialists did another bunch of tests including colonoscopy and endoscopy... lovely! they took biopsies and found inflamation cells, but for whatever reason they didn't seem certain of what my condition was. they gave me asacol which I took 6 a day for a month, and they made me flare up really badly, so I stopped taking them.

about 6 months ago I felt I was getting a bit better again slowly, gut wasn't as sore, I wasn't running to toilet as frequently and my energy wasn't quite as low, so I thought I would just stay med free and hope I got better on my own. (if you hadn't guessed, i really don't like the idea of pumping myself full of drugs, I don't even like taking asprin).

It got bad about 4 months ago when I had to go to taiwan for a month with work. there were a number of factors that caused this I think.

firstly the food was all very greasy and slimey. I was working 12 hours a day 6 days a week under stressful conditions. It was on average about 38C with 98% humidity, and I wasn't exactly enjoying the whole experience.

I have been suffering since then, and it got really bad. One doc prescribes me a steroid enema, which maybe helped a little, but certainly didn't solve anything. I was home for about 2 months, but I couldn't get an appointment with any specialists, and the GP's didn't want to prescribe me with anything incase the diagnosis was wrong. and I have now been in Canada for 4 weeks and struggling. back to going to toilet roughly 10 times a day, and 3-4 times a night, with lots of blood. I am meant to be riding bikes every day (I am a mountain bike designer btw). but my energy is very low, and its hard, because everyone wants to ride with me all day every day, and I just can't do it.

thats the basis of my story. I am really fed up, mainly fed up of having such low energy. I LOVE being active and doing my 'extreme sports', so this illness has really been a massive bow to my life. I just want to learn how to control it better so I can do what I love doing again.

thanks for your help everyone, it means a lot to me!

kathleen
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/11/2008 7:47 PM (GMT -6)   
Everyone's different. I've had UC for 20 years and done quite well for the most part.  My philosophy is that I try to build health in any way I can.  I avoid foods and other things I am allergic to because allergies make me weak.  I also avoid some foods that act like triggers, like wheat, dairy, red meat and popcorn.  Foods that help when I have a flair are soupy soups, oatmeal and goat milk and goat milk yogurt. Good luck.

kathleen
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/11/2008 7:48 PM (GMT -6)   
I wonder why you are not on any meds.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/11/2008 8:00 PM (GMT -6)   
Perhaps you can find a place to settle long enough to get on a treatment regimen that works for you. Asacol does cause increased symptoms in some of us; sometimes we can tolerate Colazal or Sulfasalazine. Rectal meds are also helpful, but steroids should not be used long-term. It can take some time to find the combination that works for you. Only you can decide whether your discomfort is such that you're willing to alter your life style temporarily to work out a treatment program.

Foods don't cause flares and won't bring you into remission. If you're in a flare some foods may make you feel worse, however. In my case it's anything with too much spice, fiber or fat. Good luck, and I hope you're soon feeling better.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


DPW
New Member


Date Joined Oct 2007
Total Posts : 7
   Posted 8/11/2008 9:37 PM (GMT -6)   
The lifestyle you have currently (travelling all around the world with lots of stress) won't get you into remission. I think you should give your health the highest priority and take your time and figure out what's going on and get better before you resume your normal business activity. You don't want to get to a point when your whole body collapse and then seek help. Go see a specialist and get treatment and then you can plan everything after that!

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 8/12/2008 12:30 AM (GMT -6)   
as for the foods... well, i went to dietician for 4 months last year and i was on every possible diet, even liquid diet.
nothing helped.
so, its trial and error my friend.
everyone tolerates different food differently.
what hurts one person is fine for another.
wish i had more info for you, but you gotta see what works for YOU
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 8/12/2008 7:11 AM (GMT -6)   

Hi,

I personally think it is unlikely that you can control your symptoms by avoiding bad foods and eating good foods though there is a thread a month or two back detailing some positive results from spinach and sunflower seeds. Search "spinach" and you should find it.

I was like you, very physically active with an aversion to pills who had a habit of enduring and ignoring every ailment I suffered until it went away.  When I got UC, I didn't change my ways and just like you went  off colitis medication for a long time and endured and ignored the symptoms hoping they would go away for good.  Six months ago when I was in the hospital a young GI doc stood by my bed, patted my leg and said to me, "You do realize that you will have IBD for the rest of your life, don't you?"  The truth was that I did not believe I would, but I do believe now.  I hope you know this too.  It may also be the case that you will have medication every day for this disease for years, or for the rest of your life.

I agree with everyone who wrote you that you should seek medical advice.  I bet a good doc, when you explained your travelling, would be willing to treat you long distance through phone and email.  You can have a blood test in any old place and fax results to doc.  Don't delay.  You shouldn't have to suffer needlessly.  When you get your energy back it will feel better than anything else and you will never take it for granted again.


UC diagnosed 10/05, first symptoms 1983
asacol daily and rowasa as needed 
Trying out Digestive Fitness Probiotic
past rx: colozal, lialda, canasa


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/12/2008 8:47 AM (GMT -6)   
Since you seem to want to avoid meds, get tested for food sensitivity. That's a no-drug way to potentially get improvement. It might also explain why the changes in geography/foods affect you. After 20+ years of UC, I found out I'm gluten intolerant and my lingering flare-up has been resolved in two weeks of going gluten-free.  And even if it's just UC, I agree everyone is different in regard to foods that affect them (I generally do best on low fiber, and flares seem to be seasonal and never related to stress or food).
I also believe in better living through chemistry...don't deny that you have this condition (whatever it is, it isn't normal) and you need to deal with it ~
good luck

49 year old female, diagnosed in 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years; Currently 15-20 mg prednisone trying to taper off from lingering flare, slow-release iron and B-12 shots for severe anemia.
August 2008 Tested gluten intolerant and started gluten-free, soy-free, etc. diet and Replete probiotic, DGL Plus (licorice root, slippery elm), Permeability Factors, under care of naturopathic doctor.


builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 8/12/2008 11:09 AM (GMT -6)   
Thanks guys,

madabs, you are right, that is exactly how I am thinking, I know that it is a life long condition, but I have not really accepted this yet, sometimes I do, othertimes I don't. basically I want to fight it rather than just accept it.

Peety, testing for food sensitivities is a good idea, I was wondering if this was posible. I have tried cutting out various things like dairy etc, but nothing helped. interesting to hear that fiber might be bad... haha, to think that the first doctor I saw put me on high fiber drinks for the first 6 months... oh dear.

I am taking into account your suggestions and advice and I am really apprciative of it, so thankyou very much. I don't think I am quite at the stage of accepting I have it for life yet, maybe it will come with time, but til then I am going to try everything I can to get well. I will definately post if I find something that really helps me.

Thanks

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 8/12/2008 11:50 AM (GMT -6)   
Check out The New Eating Right for a Bad Gut. It has general guidelines for IBDers and names the foods that are most commonly problematic and those that are most commonly safe for people with UC and Crohn's. It also talks about the importance of omega-3 supplementation to control inflammation.

http://www.amazon.com/New-Eating-Right-Bad-Gut/dp/0452279763/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1218562993&sr=8-1

I agree with others here. You're going to have to make your health a priority if you want to start feeling better. Stress, travel and poor diet - probably poor sleep habits, too - are going to keep you feeling lousy and will eventually cause your health to deteriorate further. I'd urge you to make some lifestyle changes before it gets to that point.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 8/12/2008 3:30 PM (GMT -6)   
Yeah, I have been wanting to kind of settle down a bit more for a while now. I am moving to a new place in Edinburgh (Scotland) within a month, and although I will still have to travel with work, I think that since I will now have a real home that I can call my own that this will help settle me a lot. I plan to find a good doctor there and go through with everything they suggest.

thanks for the link, I'll check that out!

DPW
New Member


Date Joined Oct 2007
Total Posts : 7
   Posted 8/12/2008 11:13 PM (GMT -6)   
Check out this page if you want to see which food you can avoid:
http://www.proctitispages.co.uk/index.html#introduction
One thing probably worthy of trying is avoiding sugar at all cost (including fruits). Instead of dairy, try some soy-based products. get some probiotics as well.
Hope you feel better soon!

------------------------------------------------------
Diagnosed with ulcerative proctitis in 2007, currently using Salofalk suppository

ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 8/13/2008 12:04 AM (GMT -6)   
A good rule of thumb is while flaring to avoid anything that hurts or you can see in the stool (corn, nuts, insoluble fibers like tomato skins etc.) Eat less refined sugar and smaller more frequent meals. Take a digestive enzyme before meals and chug some metamucil after meals. Try eating more garlic if you can take it, its a miracle worker. And finally take some probiotics, anything that you can find that has human microflora in it with at least 1 billion viable organisms. Enteric coated is good but you can take with meals to increase colonization due to the "nooks and crannies" they can hide from the acid in your food.

builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 8/13/2008 10:21 PM (GMT -6)   
Thanks for all the advice, I'll looking into everything you are suggesting.
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