Steph 21 yrs - Surgery Soon

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 8/11/2008 1:30 PM (GMT -6)   
Hello,
 
For those of you maybe pushing around that surgery idea, we wanted to share with you that we have a new blogger on the ucstory blog - Stephanie is 21 yrs old, and she is headed into surgery on Aug 22.  She is documenting her journey as it unfolds with text and photos. 
 
 
Do check in, she is going to need support from our uc community, but also she is so incredibly focused on getting healthy - I think she is a great inspiration.
 
*also, for new UC people do note that the MAJORITY (60-80%) of UC diagnosis DO NOT require surgery*
 
Take care,
Megan
Mark & Megan
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/11/2008 1:40 PM (GMT -6)   
Awesome, thanks for sharing!! One day when I get surgery I'll be sure to contact you so I can share my experience too :) It's such a great idea!

Can't wait to get home so I can check it out

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 8/11/2008 2:15 PM (GMT -6)   
Hey Edie,

How are you feeling these days, you make is sound in the post above that you are really seriously considering surgery?! So no remission yet?
Megan
Mark & Megan
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/11/2008 2:25 PM (GMT -6)   
Nope not in a long time... I've actually gotten worse since I had my scope, I'm just wondering if the prep irritated things more. I go in next Monday to find out the biopsy results and see how it's really looking. He wanted to try out Lialda (since it's the only 5ASA I haven't tried) before resorting to Remicade but he said since I have had to take prednisone several times a year every year since I've been diagnosed that I would most likely have to be put on Remicade at some point. He did also mention surgery as being an option so, I'm thinking of asking him for a surgical consult referral, just to actually talk to a surgeon, not to schedule anything yet.

I would really like to do it while I'm young and relatively healthy, and I'm really just tired of dealing with it and letting it ruin everything! The idea of waking up after surgery and feeling disease free is the best thing I've ever heard and I'm getting to the point where I'm ready for it.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 8/11/2008 4:32 PM (GMT -6)   
Thanks for this Post! Here is another one I found on the link for someone who has already done the surgery.
http://ucstory.wordpress.com/surgery-3-jpouch-or-takedown-surgery/#comment-285
Prednisone 35 mg a day
Asacol 400mg 4 pills 3 times a day
Mesalamine enima
VSL #3 probiotic


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/11/2008 8:09 PM (GMT -6)   
Hehe, Socalsd that other person is the one who posted this topic wink
Mark & Megan have a great thing there, it's so helpful for anyone thinking about surgery
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, June 22, 2018 11:52 PM (GMT -6)
There are a total of 2,974,441 posts in 326,175 threads.
View Active Threads


Who's Online
This forum has 161277 registered members. Please welcome our newest member, Ki85.
284 Guest(s), 0 Registered Member(s) are currently online.  Details