Feeling Better But...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/13/2008 11:06 AM (GMT -6)   
Feeling better...pain is much much better stool remains nice and firm but very little 2-3 stubborn tiny little spots of bright red blood mixed with mucous that appear that I cannont seem to get rid of even with daily rowasa...otherwise as I mentioned I feel fine. My GI's office wants to up the Lialda from 3 to 4 per day (the max dose) and I'd rather not as I was hoping the rowasa would do the trick since there was no D and the tiny spots of blood have been bright red. I've been using the rowasa nightly/daily now for the past 2 1/2 weeks and it got the bleeding down from stipping on the stool to either no blood or these tiny few spots...the spots are about the size of half a tic tac. I have an old fissure but there is no pain from that area so it's probably not from that and I have one very small internal hemmie which usually never bleeds.
 
Thoughts please...thanks.


Mild to Moderate Pancolitis
Dx'd 05/2007
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/13/2008 11:33 AM (GMT -6)   
Continue using the Rowasa, try it as I suggested by inserting and starting to squeeze just inside of the anus as you're pushing it in.

I looked up Bowel Soother...there are about 30 different ingredients...I think you might want to reconsider about taking it.

As well....Melatonin is contraindicated in autoimmune disease, exacerbating/triggering symptoms....

I see a few things you can do just in case you are allergic to something or it's exacerbating your symptoms. It might be just as easy as that.

Regarding he Rowasa....did I mention I was n nightly for about 4 months with stubborn rectal symptoms. It is what it is. Try not to have too high expectations or be in a hurry...the Rowasa has already improved your symptoms and will continue to do so. A firm stool going through an inflamed and fragile lower rectum can cause bleeding.

As well, a fissure can be easily opened....

I think the Lialda should stay as it is....you don't have symptoms that would warrant a higher dosage.


My thoughts about it......
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/13/2008 1:33 PM (GMT -6)   
Thanks Q.

I started the melotonin as it is a TNF protien inhibitor...why is it contraindicated for UC?

I am also considering going back to asacol...I realize its the same ingredient in Lialda but right when I switched to Lialda I started bleeding for a while so maybe the time release mechanism is not working as well for me?

I don't have any pain from in area where the fissure is so I kinda doubt it's from there.

What ingredients in the bowel soother are you not comforatble with?

Interesting you had to do nightly rowsas for 4 month to finally stop the bleeding...most GI docs will say if after two weeks and you're still bleeding then more/different meds are needed...I personally would like to stick with the 3 Lialda (3.6 g) or go back to 9 asacol (also 3.6g) especially since I have no D amd the blood is bright red.

Was your stubborn rectal bleeding a few tiny little spots too?

As always thanks.
Mild to Moderate Pancolitis
Dx'd 05/2007
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 8/13/2008 6:40 PM (GMT -6)   
Melatonin is believed to strengthen the immune system.As UC is an Auto-Immune disorder(theoretically)it's contraindicated.Many of us use Immuno-Suppressors to good effect,which seem to prove the Auto-Immune theory,and make something like Melatonin a definite no go.It wasn't until I read this thread,that I realised I took Melatonin for a while,and it may well have contributed to a flare shortly after.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/13/2008 6:58 PM (GMT -6)   

bbc - I am starting Rowasa tonight, I hope.  I am not sure yet how - hopefully on the toilet or with husband's help.  It is difficult because of my size, age and arthritis. 

My gastro doc also prescribed Rowasa for only two weeks and said that is all I should need on a regular basis - maybe once in a while for remission.  NP upped my Colazal to 9 pills - max dose too. 

I sure understand what you feel about the blood.  I was told to be in remission (and hopefully have my knee replacement) my stool has to be completely free of blood - not necessarily solid or formed as long as not diarrhea. That is "proof" the ulceration is healed.

Good luck and if you all have ANY suggestions about the Rowasa - I am just hoping to get some in there to stay.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/13/2008 11:19 PM (GMT -6)   
Silent Lucidity:

Thanks for the info on the melatonin...I thought anything that was a TNF protien inhibitor was good for IBD?


Kops2da:

If you can have a BM before you use it the better...sometimes it's best to wait about an hour after the BM in case your sphincter spasms (happens to me when I'm flaring some times). Definitely squeeze the excess air out of the bottle; I use some extra lube to make insertion easier. Rowasa will help get most if not all of the rectal inflammation down...most people see significant results within the first week where it may take some people months and others never; more than likely it will be in a matter of 4-5 days. Also try to lay on your left side after using the med for an hour or more if you can...30 minds is the minimum time recommended.

Hope this will prove to be helpful.


Mild to Moderate Pancolitis
Dx'd 05/2007
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

Post Edited (bbc) : 8/14/2008 8:48:19 AM (GMT-6)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/14/2008 9:12 AM (GMT -6)   

Thanks bbc.  I did not read this until this morning but if you see my other post I did ok.  I used only 1/2 for first time to be sure no reactions.  I stayed on left side 35 minutes but able to retain everything overnight.  NP seems to think in my case I will get relief in a few days up to 2 weeks.  I never have a BM at night so that is not an option and I can't do it mid-morning when I have BM's so hope it will work anyway. Yes, I put extra water soluable lub - that helps!

 ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 18, 2018 12:41 PM (GMT -6)
There are a total of 3,004,317 posts in 329,134 threads.
View Active Threads


Who's Online
This forum has 161736 registered members. Please welcome our newest member, jjmck2.
217 Guest(s), 12 Registered Member(s) are currently online.  Details
Notam, Mind body spirit, pam lewellen, running wild, Girlie, Tudpock18, Lynnwood, Med N, InTheShop, quincy, Mylyme, fiddlecanoe