pb4 said: LondonRed, chances are it's crohn's, only patchy involvement is linked to CD not UC regardless of where the CD is affecting.
Thanks pb4 - yes I know that patchy inflammation means CD. However most CD involves the small bowel and after after having a Barium MRI - that isn't the came. There is alo no inflammation in my ileum but do have it in my rectum - which is again not usual for CD. Which leaves me with a IBD but neither Chrohn's or UC at the moment. I will know after the biopsies come back, but the last ones I had last year didn't confirm UC or Chrohn's just non specific.
The not knowing is difficult.
Yes, most CD does involve the small intestine, but for me it only did the first couple of yrs of having CD, but the entire 17 yrs it's involved my colon constantly with no full remission, my rectom on and off (thank god for Cortifoam) and constantly in/on my anus with perianal crohn's skin tags.
Don't go strictly by theory of it "always" or it "only", with IBD nothing is cut and dry and that needs to be remembered, my mom has UC and her UC started in her colon, NOT in her rectom, although it may be common for UC to start in the rectom and move up into the colon and for CD to start in the small intestine and travel throughout the GI tract, that doesn't always mean that's how it goes.
My CD actually started in my anus with the anal skin tags, and moved up from there...not typical for a crohnie but I guarantee you it happend that way for me.
Not knowing would be hard (I was an easy case to DX because of the anal skin tags which are only associated with crohn's and also at my DX as I stated above I had it in the anus, rectom, colon and small intestine...but know this, the same meds used to treat CD in the colon/rectom are also used to treat UC.