Could the colon inflamation just be a temporary problem not UC?

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mom4321
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Date Joined Aug 2008
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   Posted 8/13/2008 11:22 AM (GMT -6)   
IM wondering if its really UC or I just had some wierd temporary problem? They took biopsys and they all show inflamation but does that really mean its UC or Chrones ?  Does the biopsy tell them that or just inflamation and they diagnose based on that ?

pb4
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   Posted 8/13/2008 11:27 AM (GMT -6)   
Generally they take blood test and stool tests to confirm disease or if it's just a "bug", they don't go by what a colonsocopy reveals alone...there are many cases of mild IBD (either CD or UC) and that could be your case if you feel that you are mild or fine right now.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


LondonRed
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   Posted 8/13/2008 11:39 AM (GMT -6)   
last October I had multiple inflammation mild to moderate but the biopsies didn't say IBD and my blood work was near on perfect - I also went into remission within 3 days of taking Asacol. So I think it is possible to have inflammation and for it to go away with drugs and not act like UC or Chrohn's. However, in the end I am certain it will lead to it. I just had a flair and it was worse than last time, this time I had D but again I feel totally well and God Willing I have been on meds for 24 hours and the symptoms appear to be slowing.

Diagnosis Oct 07 and then Aug 08: Patchy Ulcerative Pancolitis or Chrohn's Colitis to be confirmed after biopsy.
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate) for 30 days


mom4321
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Date Joined Aug 2008
Total Posts : 107
   Posted 8/13/2008 11:40 AM (GMT -6)   
Just wondering because my Dr didnt say alot he just said you have one of these 2 things take this asocol.
Thats all I know so I wondered if it was diagnosed by process of elimination or if the biopsy itself would show something.
After 8 months of problems Im just trying to figure out why after the colonoscopy all of the sudden everything seems fine all of the sudden. I thought maybe just maybe he misdiagnosed but maybe im just in the denial stage.

mom4321
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Date Joined Aug 2008
Total Posts : 107
   Posted 8/13/2008 11:41 AM (GMT -6)   
He also said that this makes you prone to cancer but that it normally doesnt happen till youve had it for 10 years. Do you agree with that ?

mom4321
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Date Joined Aug 2008
Total Posts : 107
   Posted 8/13/2008 11:44 AM (GMT -6)   
oh and he said the rectum and small intestine was unaffected just the whole colon does that mean anything

sushik
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Date Joined Aug 2008
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   Posted 8/13/2008 12:06 PM (GMT -6)   
If you were stool/blood-tested and came back negative for parasites/pathogens, given the description of the scope findings, it does sound exactly like what you will see for a UC diagnosis.

Congrats on going so long without any more problems! That's great. Stay on your meds, and maybe look into Lialda... it's relatively new and the same medicine that's in Asacol, just a different delivery casing so that you don't have to take so many pills so often.
31 yr old male
Diagnosed: 7/07 - UC - Pancolitis
Current Meds: 2 Rowasa enemas/day ; 6 Asacol / day


pb4
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Date Joined Feb 2004
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   Posted 8/13/2008 12:24 PM (GMT -6)   
Find a new doc, his flip remark of "you either have one of these 2 things" would send me running.

There are differences between the inflammation of CD compared to UC, with UC the entire area will be inflammed, with CD there are skipped patterns of inflammation and the inflammation can go deeper through the intestinal lining, with UC it stays on the surface of the lining (which is why UCers don't experiance fisutlas).

Colon cancer risks increase slightly (compared to healthy people) each yr the colon is affected by inflammation...I've had constant crohn's colitis (CD affecting the colon) for 17 yrs straight and to date I have no cancer or signs of cancer).

If your entire colon is inflammed that's referred to as pancolitis...CD can affect the entire GI tract from mouth to anus and it can appear in more than one area at a time or be limited to one area...UC is limited to the colon/rectom, you can still have UC even if your rectom is currently unaffected....I'd find another doc if it was me, but of course that is your decision.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


ediekristen
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   Posted 8/13/2008 1:12 PM (GMT -6)   
I was going to say the same as pb4... Your doctor seems to be acting pretty cavalier with your health. To not give you clear information and just toss some drugs at you when he's not sure what he's treating is really poor technique. Also it seems he may have exaggerated the cancer risk to you as well.

It is possible you do have UC and were able to go into remission with the Asacol which is great, but if I were you I would definitely get a second opinion.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


LondonRed
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Date Joined Oct 2007
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   Posted 8/13/2008 2:03 PM (GMT -6)   
What a bizarre doctor, and why did he mention Cancer for? What was that to achieve except frighten you? Let's get one thing clear - our life expectancy is the same as others without the disease if that helps.

Can I ask one question to the whole board though, say in those 10 years we have a few years of remission on and off, does that get taken off the 10 years? Does it have to be continuious inflammation for 10 years? When I was in remission these past 9 months before this latest flair a sigmoidoscope showed a totally clean colon without a trave of inflammation.

As for UC I thought you HAD to have rectal inflammation for it to be UC or it's Chrohn's?


Diagnosis Oct 07 and then Aug 08: Patchy Ulcerative Pancolitis or Chrohn's Colitis to be confirmed after biopsy.
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate) for 30 days

Post Edited (LondonRed) : 8/13/2008 2:06:21 PM (GMT-6)


mom4321
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Date Joined Aug 2008
Total Posts : 107
   Posted 8/13/2008 2:08 PM (GMT -6)   
I asked about the cancer risk so thats my fault I guess.
I wondered that because in reading I thought it also affected the rectum and he said if did not in my case but just the whole length of the colon. So do you think it might not be UC ? what otehr condition would affect the colon like that ? while doing hte colonoscopy they asked me about bleedign due to what they were seeing but as far and I know I have not had bleeding just 10 trips to the bathroom a day and no weight loss.

pb4
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Date Joined Feb 2004
Total Posts : 20577
   Posted 8/13/2008 2:16 PM (GMT -6)   
As I mentioned above, UC doesn't ALWAYS involve the rectom, crohn's can involve the entire GI tract from mouth to anus (which includes the rectom) and with CD it can appear in more than one area at a time or just be in one area at a time.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


LondonRed
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Date Joined Oct 2007
Total Posts : 1190
   Posted 8/13/2008 2:18 PM (GMT -6)   
I have patchy inflammation on the colon including the rectum but no inflammation in the small bowel - they said it could be UC or Chrohn's depending on the histology.

Diagnosis Oct 07 and then Aug 08: Patchy Ulcerative Pancolitis or Chrohn's Colitis to be confirmed after biopsy.
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate) for 30 days


pb4
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Date Joined Feb 2004
Total Posts : 20577
   Posted 8/13/2008 5:21 PM (GMT -6)   
LondonRed, chances are it's crohn's, only patchy involvement is linked to CD not UC regardless of where the CD is affecting.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
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Date Joined May 2003
Total Posts : 30585
   Posted 8/14/2008 12:05 AM (GMT -6)   
Most likely not UC if the rectum is spared.

Early CD mimics UC if the rectum is involved...unless as pb4 mentioned....anorectal involvement is obvious.

Microscopic colitis can mimic IBD...it can even be considered an IBD depending on what you read. It would be diagnosed on a microscopic level, not visually. You can ask the doc if he checked for that.

Try not to worry about the cancer thing as primary...we do get regular c-scopes...about every 2 - 3 years is the norm.

Do the homework and ask questions. Also, get copies of all your blood tests as well as the c-scope results.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


LondonRed
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Date Joined Oct 2007
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   Posted 8/14/2008 12:49 AM (GMT -6)   
pb4 said: LondonRed, chances are it's crohn's, only patchy involvement is linked to CD not UC regardless of where the CD is affecting.
 
_________________________________
 
Thanks pb4 - yes I know that patchy inflammation means CD. However most CD involves the small bowel and after after having a Barium MRI - that isn't the came. There is alo no inflammation in my ileum but do have it in my rectum - which is again not usual for CD. Which leaves me with a IBD but neither Chrohn's or UC at the moment. I will know after the biopsies come back, but the last ones I had last year didn't confirm UC or Chrohn's just non specific.
 
The not knowing is difficult.

Diagnosis Oct 07 and then Aug 08: Patchy Ulcerative Pancolitis or Chrohn's Colitis to be confirmed after biopsy.
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate) for 30 days


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 8/14/2008 7:59 AM (GMT -6)   

I guess Im confused.  If the rectum was fine and so was hte small intestine but the inflamation was all along the colon are you saying I probably dont have cd or uc ?  I had biopsys but he said they showed inflamation but he was unsure of it was CD or UD . Is there somethgin else it could be ?   I never had bleeding although he was suprised I had not looking at my colonoscopy I just had to go to the bathroom may times a day and it was always worse in the morning as soon as I woke up.  Do you think I have something different ?  How do I get sopies of the test results you mentioned ?


pb4
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Date Joined Feb 2004
Total Posts : 20577
   Posted 8/14/2008 2:01 PM (GMT -6)   
LondonRed said...
pb4 said: LondonRed, chances are it's crohn's, only patchy involvement is linked to CD not UC regardless of where the CD is affecting.
 
_________________________________
 
Thanks pb4 - yes I know that patchy inflammation means CD. However most CD involves the small bowel and after after having a Barium MRI - that isn't the came. There is alo no inflammation in my ileum but do have it in my rectum - which is again not usual for CD. Which leaves me with a IBD but neither Chrohn's or UC at the moment. I will know after the biopsies come back, but the last ones I had last year didn't confirm UC or Chrohn's just non specific.
 
The not knowing is difficult.

Yes, most CD does involve the small intestine, but for me it only did the first couple of yrs of having CD, but the entire 17 yrs it's involved my colon constantly with no full remission, my rectom on and off (thank god for Cortifoam) and constantly in/on my anus with perianal crohn's skin tags.
Don't go strictly by theory of it "always" or it "only", with IBD nothing is cut and dry and that needs to be remembered, my mom has UC and her UC started in her colon, NOT in her rectom, although it may be common for UC to start in the rectom and move up into the colon and for CD to start in the small intestine and travel throughout the GI tract, that doesn't always mean that's how it goes.
My CD actually started in my anus with the anal skin tags, and moved up from there...not typical for a crohnie but I guarantee you it happend that way for me.
Not knowing would be hard (I was an easy case to DX because of the anal skin tags which are only associated with crohn's and also at my DX as I stated above I had it in the anus, rectom, colon and small intestine...but know this, the same meds used to treat CD in the colon/rectom are also used to treat UC.
 
:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 8/14/2008 7:04 PM (GMT -6)   
OK thanks Ill go look right now.
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