So last night I got off work and went to my parents' house to hang out with my sister until my boyfriend got off at 10pm. We had planned on watching a movie but I was in the bathroom the whole time so I had to postpone.
But man was it brutal... The only thing I ate that day was a chicken sandwich for lunch and some ravioli and marinara sauce for dinner (which I'm assuming was the culprit).
Anyway, so sitting on the toilet it was basically like I was having full body muscle spasms, like every muscle in my body was having tenesmus along with my colon- my legs, my stomach, my lungs/diaphragm.. I could literally feel the energy draining right out into the toilet with everything else.
By the time my boyfriend picked me up (two hours later) I was so exhausted and sore I couldn't even stand up straight. He kept trying to get me to talk and I felt like if I talked in more than a soft voice it would make me have to go to the bathroom.
Then I started thinking about how it felt and had a new way to describe it..... It was like I had a bomb in my large intestine. This bomb is covered with spikes and every little bump in the road caused it to tear things up even more but if I moved too much it would set the bomb off (if you know what I mean). So I just sat there with my eyes closed and my hands on my stomach hoping we'd hit every green light.
I feel okay right now (though I haven't eaten yet) but since I've had this same experience twice this week (and it's only Wednesday) and the bleeding, urgency, pain, and frequency have been steadily increasing, I'm wondering if the Lialda is to blame. It was the same way with the Asacol, Colazal, Pentasa, etc... I felt worse on them than I did before I started. Then I ended up on prednisone every time, which is also not an option anymore due to the fact that I get steroid dependent, I've taken it so many times that it is basically no longer effective, and it's already caused me more harm than good. Ugh.
So, it's sort of disappointing because the doctor just wanted to try Lialda first and then go to Remicade, which means that would be my next step if this keeps up, at which point I'd just schedule surgery and get it over with. Maybe it's time to start really planning.
Okay I'm done ranting. Hope everyone's having a nice Wednesday