Probiotic recommendations

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JRob
Regular Member


Date Joined Jul 2008
Total Posts : 29
   Posted 8/13/2008 5:39 PM (GMT -6)   
Hello all. Although not as bad as the full flare I had in June, my symptoms are still not completely under control. I've tapered down to 20mgs of prednisone plus two Lialda in the AM and cortizone enema at night. However, I still have about 5-6 BMs in the first hour or two after waking, some blood on the paper, and maybe one or two loose BMs after lunch (depending on what I eat). I'll see my GI at the end of this month and we are considering 6-MP if things don't improve. Until then I would like to try probiotics. I went to Earth Fair today and picked up and $8 bottle of Acidophilus and Bifidus supplement. I'm going to try taking it twice a day at breakfast and dinner and see what happens. I'm totally new to probiotics so any guidance, recommendations, or experiences would be greatly appreciated.
Thanks!
Ulcerative Proctitis - October 05 diagnosed
Currently- bad flare since March 08 but improving

Current Meds that are working
lialda - 2 pills AM
prednisone - 30mgs/day hope to taper soon
hydrocortisone enema - PM
canasa - PM (currently replaced by hydrocortisone e's)

Post Edited (JRob) : 8/14/2008 4:10:44 AM (GMT-6)


Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 8/13/2008 6:00 PM (GMT -6)   
Hi Jrob,

I just started some probiotics last week. I received some good insight from the people on the site look into some of the past blogs. I was able to get a prescription from my GI called VSL #3DS. It is really expensive if you have to buy it out of pocket $600 but I got a months worth for about 30 dollar copay. He wrote the prescription for a year. This form is in a powder packet which you need to refrigerate. It seemed to be the only one my doctor felt was good, each packet has 900 billion bacteria. I have been trying to use 3 a day. I have been in a bad flare for about a month after a 2 year remission from my initial diagnosis. I put the powder in Tapioca or chocolate or yogurt. The pudding hides the taste the best I did not like it in water or Juice it's not that it was horrible but kind of pasty. I am hoping it will help but I have not been taking it long enough for results yet. Some people report gas or bloating but I have not had that issue a week into taking them. If you can get a prescription it could be a viable choice even though it is pricey compared to the over the counter kind
Prednisone 35 mg a day
Asacol 400mg 4 pills 3 times a day
Mesalamine enima
VSL #3 probiotic


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/13/2008 6:19 PM (GMT -6)   
Check out Primadophilus Reuteri made by natures way, it has guaranteed intestinal release, only one/day is needed, I pay 28.00 in Canada for a 90 day supply, it also aids with lactose intolerance which IBDers are prone to, high cholesterol and for women, vaginal health but it's perfectly fine for men to take it as well.

The only downside is it must be kept (and purchased) cold, but it's well worth it.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/13/2008 6:21 PM (GMT -6)   
I've been taking Primadophilus Reuteri by Nature's Way for a couple of years. It has Lactobacillus rhamnosus, L. reuteri and L. acidophilus. The recommended dosage is one capsule per day, but I increased mine to two caps a few months ago because of persistent yeast infections which are now cleared up. I can definitely tell it helps me to have less gas, firmer stools and less rude intestinal noise, as well as clearing up the yeast.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 8/13/2008 10:44 PM (GMT -6)   
Culturelle, HMF Forte, Primal Defense- are all very good choices. You must keep in mind that stomach acid kills non-enteric coated probiotics, also quantity of viable organisms per capsule is a key factor when buying probiotics. You want to fortify your gut with flora that are native to the intestines.

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 8/14/2008 1:45 AM (GMT -6)   
I don't want to take too many supplements and I am in England. I currently take the Bio-Care - should I be taking the Primadophilus Reuteri - one a day? Can someone recommend one?

Diagnosis Oct 07 and then Aug 08: Patchy Ulcerative Pancolitis or Chrohn's Colitis to be confirmed after biopsy.
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate) for 30 days


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 8/14/2008 6:51 AM (GMT -6)   
Hey!
I am currently taking VSL#3 in capsule form. I take 2 pills in the morning and 2 at night. I am down to 5mgs of prednisone and my flare is getting into remission. Are you doing the cort enema every night?
ulcerative proctitis - march 05 diagnosed
current status - bad flare
colazal - 9 pills
prednisone -20mgs 10mgs(tapering), canasa -AM, hydrocortisone enema - PM
VSL#3
fish oil, bee pollen/royal jelly, calcium w/ vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex
ACCUPUNCTURE
 


JRob
Regular Member


Date Joined Jul 2008
Total Posts : 29
   Posted 8/14/2008 9:23 AM (GMT -6)   
Thanks everyone for the info! I looked at the specs for the Nature's Way and it has 5 times the amount of viable organisms than what I am taking. I think I'll try that one next. about how long does it take before you notice any difference? The funny thing is I feel really good today. Only had to go three times this morning. I know it's too early for the probiotic to make a difference, and it probably has more to do with not having coffee this morning. I always see to forget that caffeine sometimes slows recovery for me.

Wishful, glad to hear your flare is getting better. Yes, I'm still taking the cort enema every night. Actually on Monday I started taking it in the afternoon when I get home from work. I just lay on my left side and watch TV for about an hour. I figure it's at least an extra 4-5 hours that the medicine stays in.
Ulcerative Proctitis - October 05 diagnosed
Currently- bad flare since March 08 but improving

Current Meds that are working
lialda - 2 pills AM
prednisone - 30mgs/day hope to taper soon
hydrocortisone enema - PM
canasa - PM (currently replaced by hydrocortisone e's)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/14/2008 11:30 AM (GMT -6)   
I think it varies for each person, I noticed within a few days that there was improvements.

Good luck!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 8/14/2008 2:26 PM (GMT -6)   
I take the same as pb4 but I take two pills a day.......maybe that is not good?

WishfulMA, that is great that you are down to 5mg of pred!! Woo Hoo!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 10mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 8/14/2008 2:37 PM (GMT -6)   
I was sniffing around some med journals to study VSL3 probiotic supplementation in its formulation stages to decide if it would be a welcome addition to my therapy and came across this little gem.

“Probiotic therapy also improved symptoms of ulcerative colitis (UC) in
a separate study presented by Richard N. Fedorak, MD. Dr. Fedorak and colleagues evaluated 30 patients with active mild-to-moderate UC with recent flares. Patients continued with previous treatment that included mesalamine, corticosteroids, and/or azathiaprine, as long as the treatment regimen was stable prior to the study. Patients took two VSL3 sachets twice a day for six weeks. Dr. Fedorak reported that remission occurred in 63% (19 patients) and there was a clinical response in an additional 23% (seven patients). There was no response in 13% (four patients). Worsening of symptoms occurred in one patient.”
Medscape Medical News-Martha Kerr. May 2003

This is just one clinical trial of many but I can get down with those statistics!!!

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 8/14/2008 2:40 PM (GMT -6)   
I've had good experiences with Natren www.natren.com and Custom Probiotics' six strain blend www.customprobiotics.com.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Yujin
Regular Member


Date Joined Feb 2008
Total Posts : 55
   Posted 8/18/2008 1:03 AM (GMT -6)   
Yakult probiotic drink
Diagnosed with UC on 2007. Undergone Fistulotomy on 2005. Taking Generic Asacol 400mg 3X a day... "HEALTH IS WEALTH"


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/18/2008 1:09 AM (GMT -6)   
Beth75 said...
I take the same as pb4 but I take two pills a day.......maybe that is not good?

WishfulMA, that is great that you are down to 5mg of pred!! Woo Hoo!

It's perfectly fine to take 2/day, I take 2 together/day during my periods when things get crazy with my crohn's and IBS.
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Polly51
New Member


Date Joined May 2006
Total Posts : 18
   Posted 8/19/2008 1:10 PM (GMT -6)   
May I ask where in Canada you buy Primadophilus Reuteri by Nature's Way ?
UC in whole colon
 
10 asacol a day
multi vitamin
calcium
Acidopholus caplets


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/19/2008 2:24 PM (GMT -6)   
I get if from Sangsters, they keep it stored in their fridge as it should be.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 8/19/2008 3:44 PM (GMT -6)   
I have just bought Primadophilus Reuteri from i-Herb in USA. It isn't available in England. I hope it is good and stays good in transit, I bought 90 caps for $19. I am going to stop the biocare in the meantime.

I heard Natren is good from reading Jini Patel Thompsons's book "Heal your Gut" but there are too many varieties to take and I don't want to become obsessed.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis with no Granuloma
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


slimcook
Regular Member


Date Joined Sep 2007
Total Posts : 43
   Posted 8/19/2008 5:58 PM (GMT -6)   
I've used Natren's brand for nearly two years. It comes in powdered form and also capsule. The powder is a bit of a pain, with measuring and mixing but apparently more affective when you have diarrhea. I've taken liberty and increased recommended doses as well, just ease into any brand slowly.
Slimcook
dx:2003 Pancolitis
current meds:
Colazol 1500 TID, Imuran 100mg, Healthy Trinity Probiotic, Grape Seed Ext. Biotin, Vit. E., Selenium, Flax Oil, Calcium, Zinc and Emergen-C


Polly51
New Member


Date Joined May 2006
Total Posts : 18
   Posted 8/20/2008 1:53 PM (GMT -6)   
Thank you pb4, the next time I am in Edmonton I will have to go there.
UC in whole colon
 
10 asacol a day
multi vitamin
calcium
Acidopholus caplets


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 8/20/2008 1:59 PM (GMT -6)   

I swear by my VSL3 sachets/packets.  The pills didn't work for me.

 

bob


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 8/20/2008 2:31 PM (GMT -6)   
I'm using twp Jarrow Formulas:
Jarro-dophilus EPS
Jarro-dophilus + FOS

Anyone else have experience with these?

They seem to be ok so far, nothing great, but better than the cheapo stuff. I can't seem to find Culturelle anywhere in the greater Seattle area.
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis

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