Help with Rowasa...

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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/13/2008 7:18 PM (GMT -6)   
Starting it here soon tonight!  Going to try it on the toilet but I cannot fine any instructions saying it might even work a little that way.  Any opinions out there?
If that does not work I will have to ask my husband tomorrow to see another choice.  Because of obesity/really bad knees/arthritis, etc. this is difficult but my doctor wants me to try it before moving on to anything else.
Do you think even a small amount in there will do any good?
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 8/13/2008 7:47 PM (GMT -6)   
Elaine - any Rowasa will be better than none! I'm interested to hear how your application method works. There are other members on the site that have had a spouse help to administer the rectal meds.

Remember - it does take a few trys to get the administration right. So, don't get discouraged if it doesn't work the first time! I would also suggest trying to use only 1/2 the first night or two.

Best of luck!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/13/2008 7:48 PM (GMT -6)   
Before inserting the bottle, squeeze the air out until just a little bit of the med comes out. Then insert and squeeze (do not let any air get into the bottle). Once you get as much as you possibly can in you, make sure to lie down on your left side. I hope this helps :)


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Sara14
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Date Joined Mar 2007
Total Posts : 4226
   Posted 8/13/2008 8:06 PM (GMT -6)   
As long as you can keep the liquid in, I think it would be okay to insert it on the toilet. I like to warm my bottle up a bit before inserting (it makes it easier for me to keep it in). I rub the bottle between my hands or put it in front of the heater (in the winter) for a bit. Good luck! Don't get discouraged if it doesn't work the first few times. It was hard for me to keep it in for long the first few tries.
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day; Rowasa every 3-4 nights; Canasa every 3 nights;
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv; Zinc supplement every few days


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 8/13/2008 8:19 PM (GMT -6)   
If you must do it on the toilet, just make sure you pinch those cheeks together and get to your bed immediately. If that doesn't work, your hubby may have to take over. Like they say, "In sickness and in health!" :-)
Katie, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed), and multivitamin daily.
Diet/Exercise:  Specific Carbohydrate Diet (SCD) as of 7/12.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare since diagnosis
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/13/2008 8:45 PM (GMT -6)   
I have done it on the toilet and it still worked for me. Be sure to squeeze the extra air out of the top of the bottle first, that makes it more comfortable to retain it. Then give yourself a minute to relax there before moving gently to the bed.
49 year old female, diagnosed in 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently 15 mg prednisone tapering off from lingering flare;
Slow-release iron and B-12 shots for severe anemia.
August 2008 Tested gluten intolerant and started gluten-free, soy-free, etc. diet and Replete probiotic, DGL Plus (licorice root, slippery elm), Permeability Factors, under care of naturopathic doctor.
Flare is resolved after two weeks of no gluten, soy, etc!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/14/2008 8:03 AM (GMT -6)   
I used all your suggestions - only put in about 1/2 of it - didn't feel it much.  Gently went to ly down - my bed is about 4 steps from the toilet!  Laid on left side for 35 minutes (that is the hardest part for me) and kept it in all night - tiny cramping at first but settled down.  No BM until about 10 a.m. Should I see streaks of the Rowasa on my stool?  Sure better than seeing blood anyway.  Just tiny bit of blood.  Tonight will try to use most of it.
Thanks so much everyone!  If nothing else - your encouragement helped me believe I could do it.  My husband said he would help if necessary - he really wants me to feel better.
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 8/14/2008 8:16 AM (GMT -6)   
In my experience I would say that you could expect to see an opaque liquid pass in the am. Rowasa did me some good right away when I started and I could only keep it in for a couple hours. Hope you have similar results

Btw, I think I read earlier you are from north of Syracuse??? I spent about 10 years in the north country in Watertown.
UC diagnosed 10/05, first symptoms 1983
asacol daily and rowasa as needed 
Trying out Digestive Fitness Probiotic
past rx: colozal, lialda, canasa


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/14/2008 8:22 AM (GMT -6)   

Hi madabs (does not mean you are a guy?)

Thanks!  Yes,  I am originally from just North of Watertown.  Met my husband when he was stationed at Fort Drum.  We have been married 47 years next week. We live near Central Square now.

I see you took colazal and lialda.  Why did you stop taking them?  I take Colazal and my doc is thinking of Lialda next.  Canasa did not work as good as supposedly Rowasa - hope that is true.  I always feel like there is one little piece of my colon not getting medication from above or below. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/14/2008 8:32 AM (GMT -6)   
Elaine, with Rowasa you can get a rainbow of colors! :) But yes, it is better then seeing blood that is for sure.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/14/2008 8:50 AM (GMT -6)   

One more question!  How far should you put that applicator up?  It is pretty long.  Thnk I went about 1/2 way - easy enough except it said to point towards my naval - not sure where it was pointing.  I will do the best I can and hope it works!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 8/14/2008 11:38 AM (GMT -6)   
I usually put it in just a little and squirt some meds so that it gets to the very end on the rectum (it also helps lubricate the area so you can put it further up). Then move it up as far as comfortable so it will go up as high into the colon as possible.
Katie, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed), and multivitamin daily.
Diet/Exercise:  Specific Carbohydrate Diet (SCD) as of 7/12.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare since diagnosis
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/14/2008 11:45 AM (GMT -6)   

Thanks.  I am concerned that many have tried Colazal and are not using it now.  I am along with the Rowasa.  Can you tell me why you don't use it anymore?

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 8/14/2008 11:49 AM (GMT -6)   
Elaine,

Colozal gave me awful nausea. Lialda made little difference in my symptoms in fact I continued to get worse while on it. If I do no get better on Asacol, I think I would try the colozal again just because I never gave it much of a chance because of the nausea.

Didn't they call it "Camp Drum" back then? I always used to think of Central Square as "modern" town because of the all the new (in the 70's) houses I could see from 81. Doesn't sound like you moved very far out of the lake effect snow belt.

EDit:  Forgot....I am a girl (or was in my youth)


UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Digestive Fitness Probiotic
past rx: colozal, lialda, canasa

Post Edited (madabs) : 8/14/2008 12:35:45 PM (GMT-6)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/14/2008 12:09 PM (GMT -6)   

I did not get nausea from Colazal (have had nausea off and on for years with no explanation) - just headaches a little at start.  Been taking it a month and seems to help a lot - hoping the Rowasa will do the final few inches of my colon, etc.

Yes, Camp Drum!  After traveling all over the world with Army husband we ended up here.  Who in the world know WHY - we get FEET of snow.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4226
   Posted 8/14/2008 7:23 PM (GMT -6)   
I'm glad you were able to keep the Rowasa in all night! That's great. Hope you see some improvement from it soon. I also see streaks of the Rowasa on my stool in the morning. I think that's normal. I don't think you have to put the applicator tip in all the way...just as far as is comfortable. I agree that they are really long.
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day; Rowasa every 3-4 nights; Canasa every 3 nights;
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv; Zinc supplement every few days


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/15/2008 5:11 AM (GMT -6)   
The applicator tips are meant to be long so the med can get disbursed to the sigmoid area in which Rowasa was intended. I think you will find that you will get the hang of it pretty fast. And 1/2 med is better then no med. Also, try to retain it all night if you can. That way, the med has a better chance of getting absorbed.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/15/2008 9:14 AM (GMT -6)   

Second night and I was able to get more than 1/2 in and keep it in all night.  Saw a lot of "residue" this morning but tiny blood which is wonderful!  So far feeling good about the Rowasa.  Someone here told me to "white knuckle" it for at least 1/2 hour to keep it in - finding that after that time the urgency subsides - thanks!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 8/15/2008 10:21 AM (GMT -6)   
I usually lay on my left side, draw my right knee up towards my chest, and insert it after I have warmed the bottle up with my hands or between my legs to get it up to my body temperature. That seems to make the retention process a little more comfortable if the liquid is not so cold. Letting the air out helps a lot, too. Are we having fun yet?! roll roll
Asacol 1200 mg. 3 times daily, Rowasa enema AM & PM,
probiotics, lots of hope and prayers! 50 years old, diagnosed formally 10-06. If it doesn't kill ya, it'll only make you stronger!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/15/2008 10:25 AM (GMT -6)   
Awesome news!!! Hard to believe the urge eventually passes, but it seems your method is working and that's something we can pass on to others. I would have assumed that if it was done on the toilet, the urge to expel would be more..but it seems it's not.

White-knuckling is all we can do to get through "those" bms or the urge after administering the enemas. I've only had to expel two (or maybe 3) over the past 19+ years.

I do on occasion get a wave of urge about an hour afterward sometimes...it passes quickly...

Methinks you're doing marvelously!!!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/15/2008 10:54 AM (GMT -6)   
That's fantastic! I know you were looking for a reduction in blood and sounds like you've finally found it! congrats great work!
Kim
~ Mom of Nathaniel aka "Peanut" 19m (7/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Culturelle Align 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferolicit IV monthly
- Allergies - Zyrtec 10mg 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/15/2008 11:14 AM (GMT -6)   

Missy - reason I have to do it on the toilet is I want to do it myself and can't reach that "area" lying down.  It does not feel cold or anything.  Only problem is reaching is hard there too so maybe not "aiming" too well.

Kim - I assume reduction in blood means it is healing - right?

quincy - I did expell maybe a small amount before I made it to my bed which is only about 5 steps.  Yes, the urge got better as I rested but you know I take a Xanax and Tylenol before I go to bed and maybe that helps also.  I did have gas in the night but everything else stayed in!

Thanks for your help and encouragement - everyone.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/15/2008 4:37 PM (GMT -6)   
Glad it's working!

FYI:
Be careful around carpet, tile, granite, clothing etc...this stuff turns to a nasty dark brown when exposed to the light and is very hard to clean.
Mild to Moderate Pancolitis
Dx'd 05/2007
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/15/2008 5:05 PM (GMT -6)   

bbc:  Found out about brown stain - I have to wear underwear to bed so now I know to wear OLD underwear to bed!!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/16/2008 9:06 AM (GMT -6)   

Update and questions?  Hope it is ok that I posted this in two places - looking for help and answers until MOnday.  Thanks.

 

 Colazal seems to be working.  No diarrhea, less cramping and less blood.  Then my doc added (after using proctofoam for a couple weeks) Rowasa enemas and 3 more Colazal pills a day.  I have used three enemas - only could get about 1/2 to 3/4 in and stay there all night.  Feel better - first day after new meds.  Second day a little more cramping but feel good.  Today after three enemas and 9 pills for 3 days - I woke up with that terrible nausea again (which I had had for months about 4 a.m.), then cramping but not too bad.  Three BMs later - I did not see any blood - just residue from enema.  That has been the goal - no blood.  Hardly any left-sided discomfort.  BUT - that nausea, sweating and then yucky feeling all morning is like the old days.  I think I will have to cut back some on meds.  Planning on calling NP Monday.  Having company this weekend so cutting back again and taking Imodium until Monday.  Anyone else have the reaction from the Rowasa or max Colazal.  I am very sensitive to medication so I am thinking that is what is going on.
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 

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