Sorry to be welcoming you here, your story sounds a bit like mine. Originally dx'd in 2000 my first flare up was brought under control quickly with sulfasalazine and rowasa, I eventually changed to Asacol and as long as I took my meds I was fine, when I did not I would flare up some, but nothing like last Oct when I had to stop taking my Asacol cold turkey, I had 25+ bm's a day, blood, mucous, cramping, was a zombie with bloody poop spurting out my bum.
Glad that you got a Dr's. appt, my recommendations: tell your Dr. everything all symptoms and tell them that you do not have insurance and need to take care of yourself as economically as possible. Sulfasalazine is much cheaper than Asacol or Lialda, ask your Dr. about
that there is also Azulfadine. I think Rowasa is pretty expensive, ask about
hydrocortisone enemas instead (those are steriods but I think cheaper).
when I was dx'd my new health ins had not kicked in yet and I could not wait to go, so I paid $250 to see the specialist and he did a sigmoidoscopy (cheaper than a colonoscopy) but charged me for a lesser test like $800 or something, I did rack up like $3k in medical bills but the place where I go let me do a payment plan, it took me a year or so to pay it all off but I did.
Please let us know how the visit goes and stay strong you will get through this!!!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 10mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!