That's the best way to be sure, take an actual look. I'm going for a colonscopy in October, by which time I'll have been 2 1/2 yrs since DX and 15 mos on Remicade. I've never achieved 100% remission in that time and my GI and I want to see if there is any healing. I am trying to decide if it's time for "the cure" yet and before deciding to go under the knife and do something more irreversible than a tattoo I want to see if it truly is needed. Last fall I was extremely sick and I am feeling better and stronger now (although still not in good remission) and if I am going to have surgery while I am relatively healthy would be the best time. But first, I want to see how the colon actually looks.
It's not the most pleasant experience, but it's not THAT awful.
Diagnosed UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteoppenia dx'd 6/08
8 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08
Current meds & supplements: Lialda, 4 tabs in the morning; Protonix; tapering off Lexipro; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07)