Thanks Suebear. FYI - - my daughter had the j pouch surgery in 2003 and is also doing well. Her case of uc was extremely refractory (responded to nothing as far as medications, infusions, etc.) and she had her surgery just 2 years after being dx due to the severity/extensiveness of her illness. My Mom also has UC although it is mild and she has been symptom-free for 5-10 years at a time. We obviously have a strong family component.
Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc