Let's get back on the happy train!

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Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/16/2008 5:06 AM (GMT -6)   
Yeah, ok I know - corny title but I bet it got your attention eh?  tongue    There has been some stressful situations these past few days on the Uc forum.  So let's touch base again why HW is such a wonderful place ok?  We have a wonderful community and we have such awesome, caring, giving and compassionate people from all over the world to share their ideas, vent their frustrations, ask for help etc.  So let's not let these past couple days scare you away from posting ok?  I know when new members come online and they see these types of posts that they think "Whoa! Not another board that has drama?!" or "Wow, what kind of board is this???"  We are not typically like this and even the most even keeled person can have a bad day - yes me too!  So let's let bygones be bygones.  We are all human and we can not be perfect. 
 
So lets get back on track and start posting supportive things in which Healingwell was intended ok?
 
 
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 8/16/2008 8:53 AM (GMT -6)   
I'm going to agree with that my dear!
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/16/2008 10:48 AM (GMT -6)   
Thank you SL! smilewinkgrin
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/16/2008 1:08 PM (GMT -6)   
                           
 
                      yeah
68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/17/2008 12:55 PM (GMT -6)   
Happy train - toot toooot!

lols!

Here's somethin happy! My new steroid enemas are helpin so much... I stayed out almost all day and night last night without ANY problems!!! No worrying! I felt normal! I haven't been away from this apartment or in a car that long in a LONG time!
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/17/2008 1:40 PM (GMT -6)   
My happy train -

I can once again eat broccoli, cauliflower, beans and hot, hot, hot chilis! And my yeast has gone away.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/17/2008 1:55 PM (GMT -6)   
brocolli and beans and chilis.... HOLY COW WOMAN... you have the system beat LOL.

And yeast goin away is always a good thing. Congrats.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 8/17/2008 4:40 PM (GMT -6)   
I am so grateful for the UC healingwell forums, I have learned so much from all of you and I'm glad I am not alone, THANKS! :)
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08, 6MP started 6/24/08


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/17/2008 4:45 PM (GMT -6)   
I"m on the happy train!

I start my new job tomorrow and am having chinese food for dinner!
Kelly, 30, suburbs of Chicago, IL

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/17/2008 5:22 PM (GMT -6)   
Great to see you all on the happy train! :0) Lordy that sounds so corny doesn't it?? lol But anyway, my happy train is that my neck is feeling better (Uc isn't though), the sun is shining and I have the WHOLE house to myself! Now that is a rarity that I intend to relish!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/17/2008 9:47 PM (GMT -6)   
I'm on the happy train too.

After all of my summer of feeling so bad, I'm finally 'normal' again. Better late than never! I'll take it. :-)
21 years old

Diagnosed with moderate/severe UC June 2007

Taking Lialda 3x a day, and just started taking Entocort(3 pills/day) on 5/29/08. Started to taper off on the steroid, but, that proved to be bad..

Severely anemic, was taking 3 65mg iron tablets a day, now just down to 1 because my hemoglobin levels are almost normal, and I cannot stand the stomach aches I get from all that iron. However, I was down to just 1 Entocort a few days ago and started to have a flare, so, I might have ruined my levels again. =/


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 8/18/2008 11:05 AM (GMT -6)   
I am with you Sherry.  I hardly ever come on here because of the doom and gloom.  My son is doing so much better, but so many negative posts make me think.....well, this can't last or when is the shoe going to drop.  I am enjoying Bennie's posts so much because she is incredibly upbeat, and a Mother as well.  She is my idol :) Thanks to all of you at HW and for all of your work to keep us informed. Happy train....I am on it.
 
UC Mom
Son diagnosed 10, 2006 at age 15
6MP 75 mg. per day
Vitamin Supplements


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 8/18/2008 1:56 PM (GMT -6)   
doom and gloom? you mean reality? We all don't do as well as some...

Happy to hear your son is doing well.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/18/2008 2:20 PM (GMT -6)   
This isn't UC related but I thought maybe you all could get a good laugh out of this too . .. . it really was the turning point of my weekend.  . . .
 
So I now am coping with a VERY active 19 month old in a cast from toe to hip and we've been told to keep him from putting weight on it as much as we can  shocked   . .spoken like a doc that hasn't ever had a child.  So Saturday he was getting pent up feeling and causing me to get stressed about him trying to walk so I decided to get us out of the house.  We stopped in at the mall and ended up getting him 2 new T-shirts that had me in stitches for hours. 
 
Shirt #1  "I do all my own stunts"
 
Shirt #2   skull   Pirate in Training" skull
 
The stunt shirt has a stick man on it with the legs going in different directions. . . .it's hysterical! My husband shot soda from his nose when I showed him later. .. . .guess I should have waited until his mouth was empty huh?  blush
Kim
~ Mom of Nathaniel aka "Peanut" 19m (7/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Starting Remicade 8/21 if insurance approves - Align 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 8/18/2008 10:01 PM (GMT -6)   
Thanks Quincy. You are right.  It may be a reality that some will not get better.  It is also a reality that some people live happy, productive lives with UC. Being the Mom, and not the patient is difficult because I don't ever know exactly what is going on.  One thing I do know is that today was my son's first day of his senior year, and guess what???? Not a single trip to the restroom at school.  We were ecstatic :)  Last year, and the year before, he was in the restroom more than the classroom. (Well, almost.)  Bless you all.  UC Mom. 

UC Mom
Son diagnosed 10, 2006 at age 15
6MP 75 mg. per day
Vitamin Supplements


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/19/2008 6:55 AM (GMT -6)   
Kim that is too funny! lol Btw, it only gets better :) My son was in and out of the ER more times then I care to admit because of doing stupid boy stunts. He's 17 now and realizes that these things HURT! So he doesn't do them as much - thank goodness! But I'm talking, broken bones, sprained ankles, whiplash, concussions etc oh yeah, uh huh fun times! LOL
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/19/2008 8:23 AM (GMT -6)   

Too funny Kim -- thanks for the smile.

UCMom, good to hear that Jack had such a great first day at school. Good to know that you are both living each day to the fullest and enjoying it! :-)


Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 8/19/2008 10:26 AM (GMT -6)   
Love you Carol.  We are soooo happy!!! I hope you are doing swell too. TTYL. M.

UC Mom
Son diagnosed 10, 2006 at age 15
6MP 75 mg. per day
Vitamin Supplements


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/19/2008 11:57 AM (GMT -6)   
Thanks Sherry, at first I felt like I was a complete failure as a mom but then the phrase "Boys with be boys" really struck home. I wasn't abusing him and I didn't have him in a harmful area. . . he just fell wrong . . .these things happen and life moves on.

UC Mom that's fantastic!!!!!! Hopefully that's the first of many days he can spend away from the bathroom . . he may not like the extra class time tho LOL
Kim
~ Mom of Nathaniel aka "Peanut" 19m (7/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Starting Remicade 8/21 if insurance approves - Align 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/19/2008 6:34 PM (GMT -6)   
Well I have a funny story too and it isn't even my UC. Which is getting better. Last week I went 4 wheel ridding with my dad. Ya I nearly killed myself but it was fun.

Dad: Now don't let go of the 4 wheeler. Hold on to it...
Me: Ya sure whatever you say.*hits rocks* Umm not good...
Dad: Looks back....I thought I told you to hold on...
Me: Easy for you to say.

I got a nice purpleish bruse for that one rock. But it was worth it.The view was amazing.
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/19/2008 6:44 PM (GMT -6)   
I'm on the happy train today because we just got over an inch of rain! We hadn't had significant rain since May, and we're 9 inches below normal for the year so far.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/19/2008 7:29 PM (GMT -6)   
We are bit on the dry side too. And of course, it is calling for rain here on Saturday which normally if it is dry I don't mind. But of all days..........we are only having about 50 people to celebrate my son and daughter's bday! Argh! Cross your fingers for me that the rain holds out so our day can be sunfilled and fun! Besides it's kind of hard to go swimming when it's raining and storming out :(
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 8/19/2008 7:46 PM (GMT -6)   
I'm definitely on the happy train...life is pretty good over here at the moment. Hubby seems to be having more better days than bad. Still more bathroom trips than the average person but the pain and gas seem to be lessening.

Plus we were very lucky insofar as the tropical storm goes where we are located. Hope that it doesn't intensify too much more than is being forecasted and everyone stays safe in its path.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone  12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 8/19/2008 8:50 PM (GMT -6)   
Thanks PeanutMom, and everyone else on HW. Second day of this school year for Jack.....another great day!!
Thanks, and take care.
UC Mom
UC Mom
Son diagnosed 10, 2006 at age 15
6MP 100 mg. per day
Vitamin Supplements
Culturelle


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 8/19/2008 9:37 PM (GMT -6)   
Red, I will be hoping it's dry and sunny Saturday, too, because my friend is planning a canoeing trip for her birthday and I really don't want it to get rained out!
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa weekly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin

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