remicade question

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Regular Member

Date Joined Jun 2008
Total Posts : 80
   Posted 8/16/2008 12:13 PM (GMT -6)   
Has anyone else experienced the possibility if remicade actually makes them worse the first few days after and infusion...Is this possible?

Regular Member

Date Joined Dec 2007
Total Posts : 151
   Posted 8/16/2008 1:29 PM (GMT -6)   
Hmmm...well,  I've not had it happen to me...But who knows,  one thing I've learned about IBD,  we all react differently!   Very tough to predict anything with this darn disease! 
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) But,  a flare July 08,  currently controlled with prednisone and last remicade on July 31st...Hope it stays that way!!!
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 7/31/08.  6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily. (currently on pred taper...down to 5mg twice a day)

Regular Member

Date Joined May 2008
Total Posts : 91
   Posted 8/16/2008 2:05 PM (GMT -6)   
Im usually really tired for that day and maybe the next day but thats just bc of the benadryl i think.
Severe Pancolitis, newly diagnosed
Currently taking:
Prednisone, Iron, Multivitamin, Methotrexate shot once/weekly, maybe starting Asacol to get off Prednisone =]

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 8/16/2008 4:12 PM (GMT -6)   
I've never seen anyone complain of that before, but that doesn't mean it isn't possible.
Judy - Southern US 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Regular Member

Date Joined Sep 2005
Total Posts : 210
   Posted 8/16/2008 5:20 PM (GMT -6)   
I used to be tired from the benedryl. I asked my dr about it. He told me that I could take Claritin. As long as it was an antihistamine. I now I feel fine abut my infusion. no I don't feel worse from the infusions. I also get a steroid with my infusion that may be the reason also
Asacol 6 tablets twice daily
Remicade every 8 weeks
Folid Acid daily
Methotrexate 3 times a week
Iron supplements

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