Sharing what seems to be working for me

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Regular Member

Date Joined Aug 2008
Total Posts : 50
   Posted 8/16/2008 6:40 PM (GMT -6)   
I realise that everyone's different, but I thought I'd share what seems to be working for me. Forgive the lengthy prologue, but wanted to contextualise. I was diagnosed November 2007 - proctitis, 10cm moderate - urgency, rectal bleeding, no significant pain but all unpleasant as you all know. I was initially given Canasa suppositories to use twice a day which helped a bit, but not enough. Then I added Digestive Advantage Crohns and Colitis probiotic which seemed to help. I also made some obvious diet changes - cut out coffee, sugars, red meat, processed food as much as possible, alcohol. All seemed to make things a bit better, but weren't really getting me back to normal.

I switched doctors after getting frustrated at the minimal communication I had with my first GE. The second encouraged me to go onto Asocol - 6 twice a day - to get into remission, despite my aversion to the idea of medication. This achieved a significant improvement - no more rectal bleeding and down to about 3/ 4 bowel movements a day - still some stomach 'sensitivity' but really manageable. After six weeks of that I switched to the maintenance dose (2x2 per day).

Recently I was in a health food shop and picked up aloe vera gel, a high concentration fish oil and a multivitamin that I'd seen recommended by another UC sufferer called Animal Pak (it is intended, funnily enough, for body builders). I've been taking 2 fl oz of the aloe vera in the morning, then one fish oil and one of the Animal Pak things with dinner for about a week now.

The improvement with the health food products was immediate and fairly significant - after 1-2 days I feel completely normal with the exception of having to go to the bathroom twice in the morning - but I think that's because I insert the Canasa after the first BM and then go again before leaving the house because I don't feel comfortable going out without expelling the Canasa.

Of course, it could be coincidental, or I could have made some other change I'm not aware of. I also don't know which of the three, or what combination was helping. But anyway, of all the things I've tried, these three have coincided with the biggest improvement with the exception of the Asocol.

I will at some point experiment with removing each one of the three to try to isolate which one it is. But I'm reluctant to, because it's nice to feel fine and be able to eat what I want (although I'm still too nervous to try coffee - I may do so soon though if I get my 'confidence' back, if you know what I mean).

Lastly, thanks to everyone who's shared experiences and ideas on here. It's hard to accept that this disease is so mysterious - you'd have anticipated that figuring out how our gut functions would have come before manned space flight and string theory really.

Anyway, please keep sharing.
Diagnosed November 2007
10cm moderate
Canasa 1000mg 2 per day, Asocol 2x2 per day, Digestive Advantage Crohns and Colitis probiotic, Animal Pak multivitamin, Aloe gel, concentrated fish oil

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 8/16/2008 7:19 PM (GMT -6)   
Thanks for letting us know what's helping you! We love hearing success stories.
Judy - Southern US 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 8/16/2008 7:34 PM (GMT -6)   
That's awesome PalaceDan!!!

Sometimes it is hard to tell what's helping, it could very well be the changes you've made with your diet that are helping things improve more and more as well, but whatever it is, stick with it, even if you get into full remission be sure to continue with what you are doing in the hopes that you'll stay in remission.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Regular Member

Date Joined Jul 2008
Total Posts : 29
   Posted 8/17/2008 7:41 AM (GMT -6)   
Thanks for sharing your story PalaceDan. Your story is very similar to mine. This summer has been a struggle, but I think I can see the light at the end of the tunnel for this flare. The ironic thing is I was in a way relieved when first diagnosed with proctitis because I had read that the symptoms can be less severe and remission tends to last longer. But it seems that my inflammation is in some kind of no-man's land where the rectal meds can't quite reach and the oral meds have a long way to travel. Anyway this has been good week--down to 2-3 BM's a day for most of the days, so I'm starting to have more hope that I'm finally getting better. Your post has also helped to boost that hope. Thanks.
Ulcerative Proctitis - October 05 diagnosed
Currently- bad flare since March 08 but improving

Current Meds that are working
lialda - 2 pills AM
prednisone - 30mgs/day hope to taper soon
hydrocortisone enema - PM
canasa - PM (currently replaced by hydrocortisone e's)

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