Hi Severin, I just read your post that you had to have surgery. Sorry it wasn't so much your choice but I really hope this is the beginning of healthy days ahead. It's great that your doctors feel you will be able to have a j-pouch.
The first few weeks can be tough--recuperating, healing, getting used to the stoma. Enjoy the better moments and just get through the harder ones. It may be two steps forward and one step back at times but it will get better. Bratcat is now 6 weeks post step 1 and physically is doing very well. Back to work part-time, more energy, almost no pains.
Give yourself time to heal. Enjoy no more UC symptoms! Keep us posted on how you are doing and let us know if we can help.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare! 7/3/08-Step 1 j-pouch surgery