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jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/17/2008 8:32 AM (GMT -6)   
Hey, guy, I'd been missing you around here. I'm sorry you had to have surgery, but in a way I'm glad, too. You were having such a hard time, and I just feel you're going to be able to return to all the things you love now.
 
Keep healing, and keep us posted!
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 8/17/2008 11:38 AM (GMT -6)   

Hi Severin, I just read your post that you had to have surgery. Sorry it wasn't so much your choice but I really hope this is the beginning of healthy days ahead. It's great that your doctors feel you will be able to have a j-pouch.

The first few weeks can be tough--recuperating, healing, getting used to the stoma. Enjoy the better moments and just get through the harder ones. It may be two steps forward and one step back at times but it will get better. Bratcat is now 6 weeks post step 1 and physically is doing very well. Back to work part-time, more energy, almost no pains.

Give yourself time to heal. Enjoy no more UC symptoms! Keep us posted on how you are doing and let us know if we can help.


--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!  7/3/08-Step 1 j-pouch surgery


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 8/17/2008 2:13 PM (GMT -6)   

Hey Severin, I'm sorry you didn't have much of a choice about surgery but at least you're UC-free now. I hope you're recuperating well and it's great that you'll most likely be able to have a jpouch.

Please keep us posted!


Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*Step 1--temp ileo--Sept. 23


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 8/18/2008 9:13 AM (GMT -6)   
Severin - I hope your recover is going well!

Question: When you woke up after surgery, did you feel different? Some peeps have mentioned feeling WELL - not feeling sick any more...
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 8/18/2008 8:21 PM (GMT -6)   
Sorry to read that you needed surgery; best wishes for a smooth recovery & j-pouch connection. The up-side of your situation, I think, is that you really fought UC valiantly for several yrs, so it's certainly not a case of giving in without trying alternatives. You can be proud of yourself! Definitely keep us posted as time/energy permit. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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