Remicade tommorow - nervous- how long till you felt better?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Dec 2007
Total Posts : 354
   Posted 8/17/2008 10:53 AM (GMT -6)   
Hello all - I know this has been brought up before but I start Remicade tommorow. How long did you guys wait untill you started feeling better? I have tried to go down to 15mg pred three times now and started having loose stools and blood. I have to start school in a week and I really want to get off the pred. I am 10 lbs over what I was when I left last semester and I wanted to loose a few before I started again. I know that is superficial but I am soooooooo sick of this.
Jessica 27/F 20mg pred
dicyclomine 10Mg as needed
Citalopram 20 MG
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal, Culturelle)

Regular Member

Date Joined May 2008
Total Posts : 91
   Posted 8/17/2008 11:08 AM (GMT -6)   
Hey hana. I know how you feel. I start my senior year in high school in 9 days and I was freaking out because I gained 20lbs but my friends say they didnt really notice anything except that my face was a little chunkier. Ive already found my love so I dont really care what the others think about me. I do have horrible acne...its a lot better than what it used to look like. Like you, I too tried dropping below 15mg twice and had to go back up to 20mg. Right now im on 15mg but iv been on that for about a month. I wouldnt sweat the extra weight. Im sure your still as beautiful =] Drinking lots of water helps. I stopped drinking pop and lost a few lbs but nothing noticable. If you find anything that helps with the weight loss, let me know! lol Have you tried talking to your doctor about taking other medications to get you off the pred? Good luck and seriously dont sweat the 10lbs =]
Best of luck to you
Katrina, Senior in high school! =]
Dx with UC March 18,2008
Methotrexate shot once/weekly
15mg Prednisone,Iron,Multivitamin,Folic Acid
Recently taking Flagyl in case of having C-Diff
"I can drop bombs with the best of them"
   hahah Can't we all?

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 8/17/2008 12:15 PM (GMT -6)   
I started with the induction, where you have the second dose two weeks after the first, the third four weeks after that, and then go to the 8-week schedule. I started seeing a definite difference right after my second dose.

Good luck, and hope you're better in time for school.
Judy - Southern US 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

New Member

Date Joined Jun 2008
Total Posts : 14
   Posted 8/17/2008 12:23 PM (GMT -6)   
It took me less than a few days to see actual results. Within a week my stools were formed agqain with minimal bleeding. After the second dose it has been fine. Although lowering pred lately has still caused problems =\
First Remicade Infusion 7/11/08, Second 7/25/08
-750mg colazal 3x3 Daily,-20mg Prednisone
-Multivitamin, Calcium Supplement, Flora-Q Double Strength Probiotic
Symptoms since 15, diagnosed 16th birthday. Currently 17
status - Flare is slowly healing. A lot less blood/cramping in only a few days

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, March 23, 2018 1:37 AM (GMT -6)
There are a total of 2,943,035 posts in 322,918 threads.
View Active Threads

Who's Online
This forum has 161289 registered members. Please welcome our newest member, nvjhjhxa09.
234 Guest(s), 4 Registered Member(s) are currently online.  Details
Dimitri71, nvjhjhxa09, LivinginHell, Sinmiedo