Hi Q thanks for the interest and feedback...I've addressed your questions/thoughts:
Seems par for the course....you're improving.
So it's normal to have the bleeding slow way down over the last week or so then go for the last 3 days straight w/o bleeding then start bleeding again and at the same level (stripping vs. a sopt or two) as 3 weeks ago?
So, I'm assuming that you're having more formed stool? Less often bms?
I've always had formed stool this time around just some bleeding and pain/spasms so I'm not sure its the stool causing the issue...It's just amazing that I had a significant setback in just 24hrs when I was tracking to be back in remmission.
If it isn't a the fissure, it means that the tissue is still fragile. It will probably bleed from having a bm and then pool. The blood along or in the stool will probably be just that. If it's only a bit, that's a huge thing to celebrate.
But compared to the last 3 days of having no blood and it getting better each day (up until today) I feel this was a big set back and not a reason to celebrate.
You've been on the nightly Rowasa for 3 weeks or within the 3 weeks that you upped to nightly.
Hang tough..seems it's working.
I'm not so sure it's really is working anymore as in the past/year rowasa would stop my heavy bleeding in about 24-48 hrs and now it can't evevn handle mild bleeding and if so for only 3 days.
Yeah about the omega 3s...I don't recommend to use high dosages of them while bleeding.
I just doubled the dose as of yesterday due to a fellow UCer telling me I was only taking a third of what I should. I also stopped the melatonin about 3 days ago even though it is a natural TNF protien inhibitor.
I even tried to cut back on starches sugars etc but they (white bread, rice, saltines etc) are what is recommended when in a flare but yet they are so bad for IBD...I beginning to think truly believe that nothing is going to help until I can get my autoimmune system to function properly again. I will also say this; I will not spend the rest of my life on more and more meds all with so/so results and many with very significant side effects...my next step is seeing a new GI doc on the 28th and I will begin my long term quest to have this diseased colon removed and go on with my life as I'm sick and tired, of being sick and tired and not being able to eat all the wonderful things that are available to us, losing weight worrying when the next flair will come, looking into the toilet after every BM etc etc...I've had ENOUGH!!. I used to think there will be some sort of significant break through for UC/IBD in the next five years but I'm thinking it may be more like 10+ and I just don't want to spend the next 5, 10 or 15 years etc feeling poorly going in and out of remmission. I feel as UC'ers, we are blessed that surgery is #1 an option and most importantly #2 a real cure. Someone take my colon...please LOL...
Mild to Moderate Pancolitis
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
Post Edited (bbc) : 8/17/2008 8:36:00 PM (GMT-6)