So tell again why he doesnt know if its colitus or chrones if he

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mom4321
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Date Joined Aug 2008
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   Posted 8/17/2008 6:31 PM (GMT -6)   
 
did 5 biopseys and before that they did tons of blood work which apparently showed nothing ?  Others seem to get diagnosed after thier biopseys but he said he doesnt know which one it is and he is a top gastro guy so should know what hes talking about
Is it just diagnosed because they dont know what else it could be or is there really a test that says YES it is this or that ?

Post Edited (mom4321) : 8/17/2008 6:34:04 PM (GMT-6)


hana24
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Date Joined Dec 2007
Total Posts : 354
   Posted 8/17/2008 6:43 PM (GMT -6)   
I haven't been following your situation exactly but my biopsy's came back UC most likely but I might have crohns. My doctor says to not get hung up on it because they are treated the same right now as long as there isn't any inflammation in the small intestine. All my blood tests came up inconclusive also.
Jessica 27/F 20mg pred
Remicade
Citalopram 20 MG
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal, Culturelle, dicyclomine)


pb4
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   Posted 8/17/2008 7:02 PM (GMT -6)   
Maybe find another doc to perfom tests and get a second opinion...as I've mentioned in other posts about this, there are some clear differences between UC and CD that they should be able to see during colonoscopy...the main one being either patchy inflammation and surfacable inflammation or not.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


mom4321
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Date Joined Aug 2008
Total Posts : 107
   Posted 8/17/2008 7:05 PM (GMT -6)   
I guess its just taking me awhile to get it Im sorry. He didnt sound like it was patchy but yet said he cant tell which it is so I guess it doesnt matter Im just courious.

sweetmelody
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   Posted 8/17/2008 9:01 PM (GMT -6)   
When my first colonoscopy results came back they said it was indeterminate... they couldn't decide whether it was crohns or colitis
They made me do a barium x ray... and that's how they ruled out crohns
Diagnosed>
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Lialda - 4 pills in the morning w/ food.
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pb4
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   Posted 8/17/2008 10:20 PM (GMT -6)   
A barium is not a guarantee that one doesn't have crohn's mind you, since CD can affect only one area at a time, and if at that particular time during a barium CD wasn't active in the small intestine then it won't show up but that does not 100% guarantee it's not CD especially if the GI gives a DX of inderterminate colitis.

This is why a good GI will insist you let them know ASAP if there are any changes, then they would proceed to do an upper GI test to see if there happens to be any activity going on that coincide with changes of symptoms.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


sweetmelody
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   Posted 8/17/2008 10:32 PM (GMT -6)   
i never said it was a sure way :) i said that that's what they did... and they said most of the time it shows up if it's crohns so it's a pretty good way of knowing.

Plus.. whatever i went for the colonoscopy for... was active at the time obviously... so it would have shown up...since what was hurting me was active...

anyways... whatever.. im not a dr...
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


mom4321
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Date Joined Aug 2008
Total Posts : 107
   Posted 8/17/2008 10:58 PM (GMT -6)   
so what is a brium anyway?

sweetmelody
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   Posted 8/17/2008 11:05 PM (GMT -6)   
barium.. is this white stuff i had to drink so they could push on my stomach and look at a tv LOL
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


NOTAR
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Date Joined Aug 2008
Total Posts : 17
   Posted 8/17/2008 11:31 PM (GMT -6)   

when i was 16 i was dx with chrones by a doc, he was a real jerk and suggested surgery right away, i went to see another doc and was dx with UC, definitely not chrones, 10 years later it definitely isnt chrones and i still have my colon..........always get anoter doc's opinion


sweetmelody
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   Posted 8/17/2008 11:34 PM (GMT -6)   
lol craziness ...sorry you went through that notar
Diagnosed>
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Lialda - 4 pills in the morning w/ food.
Steroid Enemas


pb4
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Date Joined Feb 2004
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   Posted 8/17/2008 11:41 PM (GMT -6)   
sweetmelody said...
i never said it was a sure way :) i said that that's what they did... and they said most of the time it shows up if it's crohns so it's a pretty good way of knowing.

Plus.. whatever i went for the colonoscopy for... was active at the time obviously... so it would have shown up...since what was hurting me was active...

anyways... whatever.. im not a dr...

I know you never said it was a sure way, all I was doing was simply pointing out that one could still have CD even if nothing showed in the barium at that particular times since CD can affect any part of the GI tract at any time.  And yes "most of the time" but CD can have no ryhme or reason, they estimate that for most CDers it starts in the TI but that's not always the case, mine started in the anus and quickly affected my rectom, colon and TI all at the same time for the first 2 yrs of getting sick.
 
A colonoscopy only shows what's in the colon, nothing much further up into the small intestines so even when I go for a colonoscopy there's only evidence of CD in my colon and when I've gone the last many yrs for bariums nothing has shown in my small intestines but I have crohn's not UC.
 
No need to be flip, I'm not a doctor either but I've got 17 yrs experiance with IBD so I was simply sharing my knowledge...too many people get confused easily with what's going on regarding their IBD, especially those that haven't had it for all that long and are still learning...besides which my reply wasn't necessarily directed to you, I just don't want others to get more confused so I clarified some things that I have experiance with.


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Post Edited (pb4) : 8/17/2008 11:52:38 PM (GMT-6)


sweetmelody
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Date Joined Aug 2007
Total Posts : 650
   Posted 8/17/2008 11:43 PM (GMT -6)   
be flip? what's that?

anyways... i just know that's what they did with me..
and i did say...most of the time.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/17/2008 11:45 PM (GMT -6)   
Mom4321

Barium enema is a special x-ray of the large intestine, which includes the colon and rectum. Before x-rays are taken, a liquid called barium sulfate is placed in the rectum. The liquid is a type of contrast. Contrast highlights specific areas in the body, creating a clearer image. The barium eventually passes out of the body with the stools.

How the Test is Performed Return to top

This test may be done in an office or a hospital radiology department. You lie on the x-ray table and a preliminary x-ray is taken. You will then be told to lie on your side. The health care provider will gently insert a well-lubricated tube (enema) into your rectum. The tube is connected to a bag that contains the barium. The barium flows into your colon.

A small balloon at the tip of the enema tube may be inflated to help keep the barium inside your colon. The health care provider monitors the flow of the barium on an x-ray fluoroscope screen, which is like a TV monitor.

There are two types of barium enemas:

Single contrast barium enema uses barium to highlight your large intestine.
Double contrast barium enema uses the barium, but also delivers air into the colon to expand it. This allows for even better images.
You are asked to move into different positions and the table is slightly tipped to get different views. At certain times when the x-ray pictures are taken, you hold your breath and are still for a few seconds so the images won't be blurry.

The enema tube is removed after the pictures are taken. You will be given a bedpan or helped to the toilet, so you can empty your bowels and remove as much of the barium as possible. One or two x-rays may be taken after you use the bathroom.
 
An upper barium is An upper GI (gastrointestinal) series, or barium swallow, is a radiology test which is used to visualize the structures of the upper digestive system (the esophagus, stomach and duodenum). These structures are seen during the examination and the images are also saved for further review on x-ray film. The results of an upper GI series can reveal conditions such as ulcers, tumors, hiatal hernias, scarring, blockages, and abnormalities of the muscular wall of the gastrointestinal tissues.

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


sweetmelody
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Date Joined Aug 2007
Total Posts : 650
   Posted 8/18/2008 6:30 AM (GMT -6)   
good post right there :)


I never had the enema one... drinkin two glasses of white stuff tho.. YUCK! hahaha.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/18/2008 10:39 AM (GMT -6)   
Another good option for those that are deemed indeterminate is the pill cam...this way they can get a better look-see at all the nooks and crannies since it can be very windey and turney in the small intestine and it's very easy for even the smallest patches of inflammation to hide that can cause quite some grief for a patient.

Typically when they use a colonoscopy to investigate the colon they can usually tell by the differences that a present between UC and CD, UC remains on the surface of the intestinal lining, where as CD can go through the many layers of the intestinal lining, CD is typically patchy inflammation with healthy tissue in between, with UC the entire affected area will be inflammed.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


damo123
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Date Joined Jul 2007
Total Posts : 714
   Posted 8/18/2008 11:44 AM (GMT -6)   
2% of people initially diagnosed with UC have their diagnosis changed to CD at a later date, - figures relating to UK & Ire. So all in all the initial diagnosis seems to bear up for the most part.

D
Probiotics and maintenance 5ASA's in rectal form
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


LondonRed
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Date Joined Oct 2007
Total Posts : 1190
   Posted 8/18/2008 1:44 PM (GMT -6)   
These are the usual key markers for Crohns:
 
1. Small bowel inflammation (usually the TI)
2. Granuloma on biopsy
3. Inflammation tissues seperated by good tissue (patchy inflammation)
4. Low Hemaglobin
5. Inflammatory markers in blood
 
I have just number 3 - ie some inflammation and some on the right. I have a Crohn's Colitis diagnosis - even though most markers aren't there. The histology also said "could be infective or IBD".
 
The drugs are the same, it's frustrating but we can do nothing but get further opinions which cost money.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis with no Granuloma
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)

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