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Date Joined Aug 2008
Total Posts : 6
   Posted 8/18/2008 8:10 AM (GMT -6)   
Hi about 4 years ago I was pregnant with my last child and got really sick. I was having diarrhea with blood and all, got dehydrated, started having contractions so I had to go into the hospital. While I was their my dr wanted me to have a colonoscopy. Since I was pregnant they said they couldn't give me anything so I had to have it done with out any anesthesia. That was not fun at all. So the dr tells me I have UC and put me on some meds. Didn't explain what the heck UC was just told me to take the meds.Well after I had my son everything went back to normal. I stopped taking the meds and I was fine again so I didn't even see that dr again. So back in February of this year I had another flare up and I have been battling it ever since. I had to call my gyn to find out what the GI dr's name was. So, the gi dr put me back on the Prednisone and Colazal and once I felt better I stopped taking the meds, he never told me i had to stay on the meds so I flared up again. I had to go back on the prednisone and since I don't have insurance and couldn't really afford the Colazal he switched me to Sulfasalazine. later he wanted me to try Lialda but I found that the Lialda upset my stomach really bad so I stopped taking it and went back to the Sulfasalazine.  I am a stay at home mom and my youngest just started pre-k so the school I used to work at ask me to come back and help part time in the cafeteria.  I have finally finished the prednisone and i am praying that the sulfasalazine will be enough to keep me from flaring up again.
I just had another Colonoscopy done back in June and when I went in to see him it was like a really short visit. he comes in and says "yep it is UC, here try this Lialda bye" so while I am sitting waiting for my Lialda samples he is running around telling his staff what pictures he wants to put in the room for the new Doctor that is joining his office. I am in the hall waiting and I finally interrupt him and ask about what foods I should eat or what I should stay away from and he just says eat rice or potatoes, baked chicken and such. he isn't really full of information and i guess I should find another dr but since I don't really know much about UC I never know what to ask. i mean 4 years ago he gave me some paper work and it said  something about a low fiber diet and if gave a list of foods to stay away from but then now I read that you should have fiber. I am just really confused.
I have seen post on here about staying away from sugars, bread, cereals, nuts, candy, cookies and things like that. i am just curious, if you can't eat any of that what exactly are you supposed to eat.
i used to drink sweet tea, actually i lived on sweet tea most of my life but i stopped drinking it and now I only drink water. once in a while i will have a glass of kool aid or a little bit of coke but i read that we are not supposed to be drinking soda either.
so what do you guys eat and how do you cut sugar out, it is in everything.

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 8/18/2008 10:33 AM (GMT -6)   

Welcome to HealingWell, Lantana. I'm so sorry you have UC, but so glad you found us. I'd suggest you refer to the "UC Resources" at the top of the page. Read the postings and follow the links there to get a good general understanding of what UC is and how it works.

The most important thing to realize at this point is that UC is a chronic disease. While it can usually be treated successfully with medication, the only real cure is surgery. At this point I'd say don't even worry about surgery because the majority of us never need to go that far.

Once you've reviewed that, you'll have a better idea what questions you have. Feel free to ask any questions you may have here; we've all been where you are and we understand.

As far as diet, that is very individual. You'll hear a lot of different suggestions here, and what bothers one person doesn't bother others. The best bet is to keep a food diary, writing down what you eat each day and noting what causes you problems. You'll need to watch for patterns, so it takes a couple of months to really understand what you're seeing. Also remember that UC is a disease of flares and remissions; it can be hard to know whether changed symptoms are just a part of the cycle or a result of something you did.

It's important to take your medications all the time, even when you're in remission. Remember this is a chronic disease, and the medication is to help keep it in remission. And yes, it sounds as if you may want to consider seeing a different doctor. Since you will be seeing this doctor at least several times a year from now on (more if you're flaring badly), you'll want to have someone who you can communicate with and who will take time to explain what's going on.

Welcome again to HealingWell, and keep us posted.

Judy - Southern US 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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