Well my husband was fortunate in that he did not get this until he was 61 and already retired. (He drove a van/truck for his employer and in and out of it constantly to make deliveries...in bumper to bumper traffic many times during the day. This would have definitely kept him out of work for a long spell...his sick leave would have been used up in no time at all.)
Getting this when he did...he could just stay in and not force himself to do things or go places while he was flaring so badly. As stressful and frustrating as it was he didn't have all the added pressures many of you have and could rest as much as he wanted/needed.
We both marvel and have the utmost respect for all of you who not only have to cope with this but find a way to work, raise your families, and deal with a host of other situations while flaring. You are truly very strong people and and inspiration to many others. I know in a lot of cases you just do what you have to do but that doesn't make it any easier either.
I just wish the level of awareness and proper consideration was widespread for everyone suffering with the DD. Too many just don't "get it" and don't understand what this is truly about
and just think you have some D or upset stomach type thing and you'll get over it eventually.
I'm the one at the computer gathering all the info and picking everyone's brains and getting advice from HW that has been so invaluable. I cut and paste from these threads all the time and have them at the kitchen table for him to keep up on advice and opinions regarding issues he is having that others are having as well.
Relating info to him about
alot of my HW extended family's situations keeps things in perspective for him and he counts his blessings when he is enjoying an easier time of things. When he was so bad and I was able to turn to this forum for the support and advice I/we needed even though he was miserable still made it more understandable and easier to cope with knowing things in all probability were going to improve.
He has 2 great doctors but as we all know you only get a limited amount of time to meet with them. As thorough as I try to be with our prepared questions and notes it always feels like the 15 minutes or so you have with the Dr feels more like a few minutes. This forum has really helped us be prepared and aware of things to be sure to ask and discuss.
In my heart I don't think he would be where he is at today if not for HW being able to get me focused and pointing me in a few directions to pursue a few suggestions with his doctors. I actually impress them being so in tuned and have informed that it is the HW UC forum that keeps us so well informed.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran
Zero mg prednisone 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month