I'm new to this forum. I was diagnosed with UC in 1998 at age 52, so I REALLY feel sorry for you young people who suffer so with this disease.
I've been in and out of remission for several years but this past May became very ill with ulcertive proctitis and hospitalized for ten days. My ulcerations are confined to my rectum and nowhere to be seen further up in the colon. I still am in a flare. Meds include 20 mgm of prednisone (actually was weened off but started bleeding again and placed back on), Colazal 750 mgm (9 pills a day), 6 MP 50 mgm per day, probiotic (powerdolphilus 2 per day), Fish oil capsule, one a day vitamin, and Canasa suppositories nightly alternate with Cort enemas. My GI wants to put me on Remicade, however, his associate who treated me in the hospital most of the time said NO WAY. I was exposed to the TB virus years ago when I worked in a lab and also had an aunt (through marriage) who passed away from TB back in the 50's and I was around her quite a bit as a child. In 1967 before going on a trip overseas I had a positive TB test. Chest xray normal. The GI who treated me in the hospital said the Remicade could activate the dormant TB virus in my system and it could actually kill me. He saw it happen to a patient. My GI doctor sort of poo poos this and said there are ways to treat it before receiving Remicade. I'm in a dilemma. This is the same GI doctor who pushed like Hell to get me on the 6 MP which I thought was going to keep me from flaring and did not!
Any info out there? Oh, and the prednisone plays havoc on my blood pressure..really skyrockets.