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magnoliachild21
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/18/2008 5:08 PM (GMT -6)   
I've never asked my doctor this but do any of you know if it is a good idea for people with our condition to give blood, or is this a health threat?

JRob
Regular Member


Date Joined Jul 2008
Total Posts : 29
   Posted 8/18/2008 5:48 PM (GMT -6)   
I gave blood last spring and did not have any problems. I told the nurse I had IBD and was currently under control with Canasa. I wouldn't do it if flaring of course.
Ulcerative Proctitis - October 05 diagnosed
Currently- bad flare since March 08 but improving

Current Meds that are working
lialda - 2 pills AM
prednisone - 20mgs/day hope to taper soon
hydrocortisone enema - PM
canasa - PM (currently replaced by hydrocortisone e's)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/18/2008 5:52 PM (GMT -6)   
I believe they won't take it if you're on steroids, immunosuppressants or biologicals, but I'm not sure. Otherwise, if you're not anemic, it should be okay.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


magnoliachild21
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/18/2008 7:05 PM (GMT -6)   
I am currently on steroids. How does this affect the blood that you donate? If I am flaring and having ~10 bowel movements a day with some blood would you recommend still giving? Even at my worst (when I had to go the ER and had lots of blood in every BM) I have never been anemic, but am worried that if I do give blood I could potentially make myself anemic. Any more advice?

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 8/18/2008 7:11 PM (GMT -6)   
I think blood donation was discussed in a thread last yr. The consensus was that IBDers should not donate & some members reported being told that definitively at the blood bank. It has to do with antibody profiles. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/18/2008 7:25 PM (GMT -6)   
The blood bank won't take your blood if you are on steroids. They don't want to transfuse someone having surgery or with a massive injury with blood that would make them more likely to get infections. Thus, no steroids, immunosuppressants or biologicals - for the sake of the potential recipients.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 8/18/2008 7:41 PM (GMT -6)   
Judy-- it wasn't because of the meds members were on. The gist of the thread was that IBDers have different antibody profiles than the general public and should not donate for that reason. I think Loneylane commented at the time-- so maybe she'll see this repeat topic & clarify. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4194
   Posted 8/18/2008 8:57 PM (GMT -6)   
Yep, Old Hat is right. Some blood banks won't take IBDers even if they're in remission, others will take us only if we're in remission.

Here is a link to that old thread: http://www.healingwell.com/community/default.aspx?f=38&m=988776
Another site that says some banks do not accept IBDers: http://www.cbbsweb.org/enf/2002/donor_immunedis.html
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa weekly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


colitis-owns
Regular Member


Date Joined Jun 2008
Total Posts : 41
   Posted 8/19/2008 1:31 AM (GMT -6)   
I have been told before i cant give blood because of my condition, i didnt even ask about the meds..no point if they already said no, right ?
Pan-indeterminate colitis
 
Pentasa 2g bd
Pentasa suppository 1 nightly
Azathioprine 150mg


tums
Regular Member


Date Joined Apr 2008
Total Posts : 128
   Posted 8/19/2008 4:12 AM (GMT -6)   
I too was told I could not give blood. They didn't even ask about my meds, just knowing I had UC was enough.

32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 100mg started 4/08
Steroids 5mg per day


tap
Regular Member


Date Joined May 2008
Total Posts : 474
   Posted 8/19/2008 5:18 AM (GMT -6)   
I donate regularly.

The American Red Cross BLOOD DONATION ELIGIBILITY GUIDELINES (http://www.redcross.org/services/biomed/0,1082,0_557_,00.html#chr) state:

"Chronic Illnesses
Most chronic illnesses are acceptable as long as you feel well, the condition is under good control, you have an adequate hemoglobin level and your temperature is normal when you come to donate, and you meet all other eligibility requirements."

The first time I donated, I told them that I have UC and they said that it was ok to donate.
3 400mg Asacol pills 3 times per day


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 8/19/2008 5:27 AM (GMT -6)   
Last spring Bratcat was eligible to donate blood as long as she was not in a flare (she was confused ).  I called the phone number that was one of our old donor sheets and spoke directly to them. She was on asacol and 6-mp at the time and that was fine. The blood center did tell me that if she went and had trouble, to tell the donation site to call the main number to speak verify eligibility.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!  7/3/08-Step 1 j-pouch surgery


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/19/2008 6:01 AM (GMT -6)   
That's very noble of you to want to donate blood. I can't donate unfortunately. :( Not because of UC but because of my rare blood type. Their reasoning is that if I was to get into an accident on the way home that not many blood banks have my type of blood if I was to need it. But call up your local center and see if they will take you if you truly want to give.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 8/19/2008 6:25 AM (GMT -6)   
Just wanted to say to those that donate....I think it is an amazing thing you are doing! My hubby has some crazy rare blood type and he gives as often as they allow him too. I am under the weight requirement so I don't give.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Zegerid (not sure if it is working)

http://www.healingwell.com/donate
Co-Moderator UC Forum


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 394
   Posted 8/19/2008 7:07 AM (GMT -6)   
Last time I tried to donate, they would not let me because of the UC. I've never tried since then.
12 Asacol
100 mg Imuran


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/19/2008 7:17 AM (GMT -6)   
They stopped taking my blood before I was diagnosed with UC because of my arthritis medication.

Seems some blood banks are more cautious than others, eh?
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 8/19/2008 10:38 AM (GMT -6)   
The bottom line is who would (knowlingly) want to be transfused with blood from a person who has questionable antibodies due to an incurable medical condition? / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/19/2008 11:02 AM (GMT -6)   
this is interesting information. . .I'm anemic so I got the big red NO and never even got to the "I have UC" questions. Good to know if by some miracle I do get the anemia under control that I still have to check because of the UC.
Kim
~ Mom of Nathaniel aka "Peanut" 19m (7/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Starting Remicade 8/21 if insurance approves - Align 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 8/19/2008 5:22 PM (GMT -6)   
Ya I don't think I can. Not only because of the meds but because I had a blood infusion about 2 years ago.They tend to frown upon people who are sick anyway. Besides its way more fun to be a vampire. *.*
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 8/19/2008 6:59 PM (GMT -6)   
Oh Lord. I just remembered from reading this post that I did donate BEFORE--like 2 months before--being diagnosed. I do feel bad that someone might have received my blood. That was a year and half ago. I never realized this about giving blood. Interesting post!
AlabamaBabs
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Canasa suppositories 1000mg, as needed
Cortenemas, as needed
 

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