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sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/19/2008 8:09 AM (GMT -6)   
I had a colonoscopy last monday...and started taking Colocort Enemas... I've been feeling great and only been passing gas really. So last night I got freaked out because I knew I hadn't had a bowel movement since Saturday. I was thinking omg D to C... great.

But this morning... I had two almost PERFECT bowel movements. I'm so excited. I wonder if it just took a while from the colonoscopy to have to go again?

Also. Can steroid enemas make you hungry like pred?
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/19/2008 11:33 AM (GMT -6)   
Yes, it can take a while after that wonderful cleanout we get for the scope.

Steroids given rectally are less absorbed into your system than oral, but a small amount is absorbed and some people do feel some of the side effects. Some are more sensitive to steroids than others.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/19/2008 1:19 PM (GMT -6)   
Great to hear you're doing better....remember, that you "should" taper the enemas..maybe to find a maintenance dosage if you need..maybe to once a week.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/19/2008 3:18 PM (GMT -6)   
how do you taper them... and i thought that the GI would tell me when to do it. She wanted to see me a month after i started usin them... prob tell me then.

I think she wanted me to be on them fully a month so I could get in remission.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/19/2008 3:32 PM (GMT -6)   
sweetmelody, I was going to post almost this EXACT same thing! Haha

I had my scope last week and was prescribed Rowasa enemas to use nightly for one month and then I have to go back and see the doc. I guess it would be different since Rowasa is mesalamine and not a steroid so one could probably use it nightly with no problem.. I would think your doc would have told you to taper though. Maybe try calling in a week or something and see what they say?

I haven't picked mine up yet, the pharmacy has to special order them or something so I can't start until tomorrow. But they only cost me $10 for 30 so that is SUPER exciting.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/19/2008 9:56 PM (GMT -6)   
seems that would be the plan....good thing she wants to see you in a month...keep us posted as to how you're doing on the enemas.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 8/20/2008 9:05 AM (GMT -6)   
Many docs underestimate tapering. One doc told me to do Rowasa nightly for two weeks, then every other night for two weeks and be done. That might work for some people, but it didn't work for me. I ended up using the Rowasa nightly for about three months, the every other night for a few weeks, the every third night for a while.

So, be sure to ask for more refills than you think you'll need!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/20/2008 4:12 PM (GMT -6)   
I just had to go to Macy's RIGHT across the street to get my hubby some pants. I got there.. got in the store and asked where the bathroom was. Where was the ONLY bathroom in the WHOLE department store? Upstairs across to the way other side. Thanks UC friendly places.. So I immediately have to go... I get back downstairs and find some pants... put them down to race upstairs again... come back down and get to the register with a giftcard that's damaged, but I have the receipt with everything on it. So he tries to help me and is on the phone and I race up again to go. (all in like 10 minutes)

I am also extremely tired and just overall feeling sick. The second bm I sighted some blood on the tp... I freaked, but then third bm it wasn't there. I was straining a bit and have hemmies, so that's prob where it came from, but overall my stool is so much better than before the enemas.

As I'm coming down the escalator again... the guy meets me and says to go back up and he'll help me out up there since that's where they fix giftcards or somethin. I finally get that all figured out and get home.

I'm proud of myself... just for making it home.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/20/2008 5:14 PM (GMT -6)   
Man, that's the worst when you don't go for a few days and you think you're doing okay and then BAM, it's like things just explode in your intestines and you can't stop going. So frustrating.

Sorry you're not feeling well today, maybe it was just a fluke. Hope you start feeling better.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 8/20/2008 7:45 PM (GMT -6)   
im so sad right now.. edie, same thing happened to me.
this last weekend and monday i was convinced i was almost in remission..
only went to toilet once a day. formed bm's. no blood. no D. felt fine... (except bm's hurt terribly - big poos moving thru tender colon= ouch).

now yesterday and today... tons of blood, going like 10-15 times a day.
lots of pain. feel terrible.

what the hell happened????
i was fine. now im not.

im thinking it might possibly be that i just finished with my pred tapering. tuesday was last day i had a 2.5mg tab.
yesterday (wed) sucked. today (thurs) sucks so far. only 11am, but im already over it.

wonder if i should maybe go back to 5mg of pred, or keep going with the 2.5 for another few days or week.
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/21/2008 7:05 AM (GMT -6)   
I'm so emotionally worn out right now. And I don't know who else to talk to really.

My husband is so stressed out from me not having a job.. he said that he might need me to go back to Ga for a few weeks so he could clear his head. He feels like he's putting 99% into our relationship and I am only putting 1%. It's because I've been sick and not had a job since we moved. It's because I sleep a lot because I'm just so tired even when I get enough sleep. I feel like I do a lot, but it's the whole job thing.

So he wants me to go out all day every day now and look and try to get interviews and get a job. I couldn't sleep last night because I was so stressed out.

My stomach seemed so fine and I was so excited, but my trip to Macy's yesterday showed me it was just cuz of the colonoscopy. Today I've gone to the bathroom 4 times already and I've only been up an hour. I am so worried about a job because I want to save my marriage, but I don't know how I'll be consistently getting there every day if I have this STUPID disease. I am cramping again.. the stool is still semi formed, still a little blood.

I don't know if it's because of the stress either. Since I've lost my dog and am in fear of losing my husband over a danged disease in the same week. It could be just making everything worse. I just don't know what to do. I honestly want to go to sleep so bad right now and know if I do I won't show him I've done anything today.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 8/21/2008 8:18 AM (GMT -6)   
The stress you're feeling is almost certainly playing a part in the flare up of symptoms. Does your husband not understand what you're going through? Forcing yourself to find a job when you're not currently physically well enough to work is only going to make your health worse. I'd suggest either you have your husband meet with your doctor to discuss your situation and help him come to terms with it OR both of you see a marriage counselor who has experience working with couples dealing with chronic illness.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/21/2008 12:45 PM (GMT -6)   
Why you go back to GA...who's there you can stay with?
Maybe you'll feel better after you leave...

Men like that never "get it"...he'll probably never change.
Taking him to the doctor to prove you're sick will only be viewed as a waste of his time (let alone your doctor's).

No wonder you're still sick.....
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/21/2008 1:47 PM (GMT -6)   
That's where my family is and where I grew up.

I love him and I don't want to go to Ga. I just want to get better.

He's already been to the dr. at almost every visit with me.. he knows I'm sick. Most of this is cuz he can't do anything about it and he can't control my getting better or staying sick. He's scared.

We're also tight on money... so he feels like im not helping. So what do I do?? Right now.. I feel so tired I feel drugged.. like I shouldn't be driving. And I just took an hour nap... so..
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 8/21/2008 6:44 PM (GMT -6)   
Hey, why dont you try and get one of those 'at home' jobs.
there are so many out there.
they pay just like any other job.
have a look on job sites for those specifically and give them a try.
usually you only need a computer and you have one of those.

sit at home and search the net. then when you find a bunch, you can tell him that you are being proactive and are looking into it. even show him what you've found. then try to get one.
there are so many to choose from. and any money is better than none and you get to stay in the comfort of your house.
at least have a look and see if you find anything.

good luck. and sorry to hear that he's not being very understanding.
thats a bummer.
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/21/2008 11:52 PM (GMT -6)   
melody...what are your skills and what position did you work at before you got UC?? What are your interests?

Regarding your husband...scared people always take stuff out on others..especially those who are perceived as creating the problem. Do you two talk about stuff?

You could push to see a therapist or marriage counsellor...so that you both get each others' feelings and perspectives.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/22/2008 8:37 AM (GMT -6)   
I have an interview today at Petsmart at 11:30... I've been up tryin to make sure my stomach wont act up... but it doesn't seem to want to stop any time soon. I'm so worried....and hubby is so excited and I know or feel like I'm going to disappoint him.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 8/22/2008 10:07 AM (GMT -6)   
Hi, I am so sorry you are going through all of this.  I would consider the possibility of the Lialda not working for you.  Maybe if you split the dosage like recommended by others on here, that will help. Perhaps you need to switch medications.  Asacol quit working for my son.  He went on Prednisone for a few months, and began 6MP.  Off the Prednisone since May, and as of mid July.....doing soooo much better.  It did not happen overnite, but finally, things are really looking up. Hang in there, and please tell your husband to relax, so you can also:) Good luck with Petsmart. I wish I could give you a hug.


UC Mom
Son diagnosed 10, 2006 at age 15
6MP 100 mg. per day
Vitamin Supplements
Culturelle


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/22/2008 11:12 AM (GMT -6)   
Sweetmelody, you can't control your UC. Sooner or later, you'll find a treatment that works for you, but you're still likely to have flares from time to time even with your best combination of medications. Being sick and short of funds is a big stressor for you.

Your husband can control his response to your condition. It's much harder to be understanding and supportive than it is to blame, and he's unfortunately chosen the easy way out. His stressor is money - the smaller of your two stressors.

It's too bad, but it appears you may always have to be the one shouldering the heaviest burden in your relationship. I've seen couples where the "well" one uses the partner's health condition as the excuse for everything, starting with "we could pay our bills if..." and proceeding to "I could have advanced more in my career if..." or "our kids would have turned out better if..." I'm not saying this will happen with you, but just do consider that you may always have to carry the load.

You know what your situation is, but it's possible going to visit your family for a while could give everyone a break from the stress. It won't save him any money, but maybe just the break is stress would help you both.

And please be careful of the on-line "work at home" ads. A good general rule of thumb is to stay away from anything that wants you to send money up front. You wouldn't do that for a regular job and you shouldn't have to for a legitimate work at home job.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/22/2008 12:46 PM (GMT -6)   
Thanks guys.. Judy... my mom was on the phone with me earlier today and said basically the same thing you just did.

I just got a job today... he's ecstatic. I'm just.. blah... cuz I'm scared about tryin to make it every day. I'm gonna try carrying the load for now, but maybe it'll get easier... or maybe we'll just need counseling. I don't know. I think we'll get through it though.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 8/22/2008 12:52 PM (GMT -6)   
Well done sweetmelody on the job - try and enjoy the good things while you can. The enjoy the fact you have a job and hopefully that stress will go away.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 8/22/2008 12:55 PM (GMT -6)   
I know this subject has been debated around here before, but I hope you'll speak to your supervisor honestly and in confidence about your health situation, if you haven't already. Back in the beginning when I was first diagnosed and was still pretty sick, I told my boss about my health problems and promised him I'd do great work and make up time missed where possible in exchange for a little leniency. A good boss is usually very understanding and it takes ALOT of the stress and pressure off, knowing you've got some wiggle room and you don't have to conceal your condition.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/22/2008 12:58 PM (GMT -6)   
I told them I had a stomach disease but that i was on meds for it...

if i need to tell them more about it i guess im gonna have to...
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 8/22/2008 2:15 PM (GMT -6)   
Good luck with the job - hope things start to settle down a bit for you. I hope your new employer is understanding on your behalf and maybe the stress will be much less for you now that you have a job.

(It is absolutely none of my business but if part of your financial problems are related to not keeping or sticking to a budget you might want to think about working on that. It is soooooooooooooo difficult in this day and age to try to make ends meet on one income and two incomes are needed without a doubt. I just mentioned this as I have personal experience with some family members who are just horrible with money and part of their problems would be much less worse if they stuck to a budget.

Many many years ago when we met with a financial planner to develop a retirement savings plan one of the exercises was to not only enter all the fixed expenses but also keeping a diary of what each of us spent on a daily basis. It is amazing the things we do sometimes out of habit and don't realize the drain it has on the income. Of course I am not trying to say not to enjoy life either. Just a little balance sometimes can help make a difference. This is just an opinion and some advice..... and no response is required.)

For instance....This is evident with Starbucks closing so many of their places as people are finding some of those little luxuries they enjoyed each day needed to go by the wayside due to the price of gas and the cost of living hurting so many people.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone  12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/22/2008 2:29 PM (GMT -6)   
unfortunately... our financial situation is more of the things that we NEED. I've never really been the type to require much at all. I spend most of my money on food and med stuff. And in cases like recently.. clothes for an interview. I honestly haven't gotten gas in like three months... since I've been so sick I haven't really gone anywhere far.

It's because of a 1200 dollar mortgage... a rent... gas for him driving two hours every day... and food.

We'll get through it... we've already cut out a lot of stuff, but like I said.. we don't really buy things we don't need right now.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas

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