Question about types of medication...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/19/2008 10:18 AM (GMT -6)   
Ok, here I am again.  After using Canasa first, adding Colazal 6 a day, switching to Rowasa every night for three nights and adding 3 more Colazal - my sweating and nausea has gotten worse.  So, company coming I stopped the Rowasa for two nights and back to 6 Colazal.  With the nausea, gas, sweating and worsening back pain - the stool got better, no to little blood, so improvement in that area.  Also, cramping is better.
Now, my main question is - any of the medications contain similar to aspirin as the symptoms seem like what I have when taking aspirin - oh, yes, AND ringing in my ears (aspirin does that too)  Thanks.  I have to call my NP and see where to go next as I need a new prescription for some kind of rectal medication. 
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 8/19/2008 11:34 AM (GMT -6)   
Mesalamine (asacol, colazal, lialda, pentasa, rowasa, canasa) is chemically similar to aspirin.

It sounds like 9 Colazal and 1 Rowasa a day is too much for you.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/19/2008 12:26 PM (GMT -6)   
maybe ask if they think cutting back to the 6 colazal and 1/2 the Rowasa at night would work again? Wasn't that working for you when you first started the Rowasa or were you getting the asprin side effects already at that point? I just think it would be terrible for you tostart seeing that blood you hated so much again if you stopped it all.
Kim
~ Mom of Nathaniel aka "Peanut" 19m (7/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Starting Remicade 8/21 if insurance approves - Align 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/19/2008 12:59 PM (GMT -6)   

Yes, for two days I went back to 6 Colazal a day and last night I started the Rowasa again.  I can only get about 1/2 or 2/3 in anyway.  Nausea was not as bad this morning but still there.  The sweating is like "night sweats" from menopause which most of you have not reached yet.  They are not severe but I throw the covers off for about 10 min. to cool off.  Another idea might be to use the Rowasa every third day and Canasa or protofoam other days as they did not seem to cause the side effects - just weren't getting all the way to my "problem".  I took Imodium yesterday and as always the day after - one BM well-formed and no blood that I could see (but then I have "senior" vision).  

I think you are right on - may take longer to really get into remission but more comfortable so I can get some sleep and do what I have to do.  I have to go with my husband for his ct scan to see how his lung cancer is tomorrow.  It is stressful and I take Xanax to help with that but sure it does not do everything for the UC that I would like.  Planning on calling NP Thursday to get her and gastro doctor's next move.  Generally, I feel a lot better - less pain, less cramping, etc.

Thanks!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/19/2008 5:19 PM (GMT -6)   

Elaine, Asacol, Lialda, Rowasa, Canasa, Colazal are all in a class of medications called 5-ASA's. This is not the same as aspirin (ASA), but is similar in that they all contain salicylates. If you have a sensitivity to those, you may not tolerate any of the 5-ASA's. If you can tolerate sulfa drugs, sulfasalazine could be an option. It was one of the first drugs developed for IBD, but is less used now because a significant number of people have adverse reactions to sulfa drugs. Failing that, there is still the family of immunosuppressants (Imuran, 6-MP) and the biologicals to (Remicade, Humira) to try.

I hope you find your right combination and are quickly feeling better.


Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/19/2008 5:29 PM (GMT -6)   

Thanks.  I looked up sufa drugs and I don't remember taking any of the ones I found listed for anything so I don't know if I am allergic - mostly I am just "sensitive" to medications such as aspirin, Motrin, ALL pain killer drugs such as Percocet, Ultram, etc.  May just have to find out the max I can take of what I am doing and try that for while. I do know that I WILL NOT take steroid pills unless all else fails and then I might not. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 8/19/2008 9:28 PM (GMT -6)   
What about hydrocort enemas? They are like the proctofoam, but in a liquid form, like Rowasa. Would that maybe reach up to your problem area that the foam wasn't hitting?
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa weekly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 8/19/2008 11:04 PM (GMT -6)   
I'd also suggest the steroid enemas if you can't use 5ASA meds.

Sulfasalazine contains sulfa and 5ASA...so that would be out as well.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/20/2008 8:03 AM (GMT -6)   

Thanks!  I used the Rowasa again two nights in a row.  I did not see any blood yet today - one regular BM.  Makes me mad about the sweating and nausea - little about 4 a.m. - not too bad but seems to get worse every night. 

Isn't the proctofoam a steroid - I was using that but doctor thought it would not get up far enough - maybe another with a steroid.  I will call NP tomorrow.  Waiting to see how one more night makes me feel. I like that Colazal and Rowasa are doing for my UC.  I did cut back to 6 Colazal on my own for now. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 8/20/2008 8:15 AM (GMT -6)   
Yes, proctofoam is a steroid foam. Hydrocort enemas are a steroid but liquid (like Rowasa, except a steroid). That's why I thought it might reach far enough up, if your doc thinks Rowasa will.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa weekly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 8/20/2008 9:42 AM (GMT -6)   
Rowasa also comes in a 2g dosage..same amount of liquid, but might not make you as "hot".

The Rowasa does that to me too somewhat..especailly if I haven't used it in a few days.


q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/20/2008 1:18 PM (GMT -6)   

Not sure what you mean - 2g not as strong but same liquid?  Anyway, can live with the sweating if it does not get worse but the nausea was terrible after three nights AND wakes me up about 4 am. which is the worse.

Putting in call to NP right now as I have to have a prescription for something - I have two Rowasa left and Colazal so I will ask her next step.  She will probably check with doc and call me back!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 5:49 PM (GMT -6)
There are a total of 3,006,623 posts in 329,369 threads.
View Active Threads


Who's Online
This forum has 161840 registered members. Please welcome our newest member, 6catlady.
308 Guest(s), 8 Registered Member(s) are currently online.  Details
HeartsinPain, timcebu, jberda1, Admin, Cashed Out, Alxander, Chutz, InTheShop