Looking for suggestions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

janicebuf
Regular Member


Date Joined Aug 2006
Total Posts : 67
   Posted 8/20/2008 10:13 AM (GMT -6)   
Hi All!  Looking for advice from 'UC Veterans:)'  I am presently in a flare and have been for several months.  Doc wants me to start 20mg of pred. but I am so scared to take that drug again.  Remicade scares me too as I know the side effects could be deadly. Would you say that 20mg is pretty safe side effect wise?  I don't know what to do.  The lialdi that I switched to a couple of months ago isn't helping.  I was also on Entercourt Capsules with no luck either.  I am beside myself.  I have several painful bowel movements daily with a few of those being just mucus.  visited a surgeon for advice since I had a precancerous polyp so I have to now decide if I want my colon removed. ANY advice would be so appreciated!
Diagnosed with 'Indeterminate Colitis' (I think UC for sure), April '03
Remission 6/03
Diagnosed with Psoriatic Arthritis 6/06
Currently flaring (UC)
 
 
 
MEDS: 
Lialdi x 4 daily
canasa suppositories nightly
4x4 400mg Asacol, 
40 mg prednisone ~
50 mg. 6mp
folic acid x1 day
colocort enemas nightly
 
         


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/20/2008 10:24 AM (GMT -6)   
Hey. I didn't want to go on pred again this time around either. So my dr. upped my Lialda and put me on Canasa. Then had a colonoscopy and put me on steroid enemas, which don't seem to be as bad as pred at all.

I'd say rectal meds are a pretty good bet.. or try the steroid enemas if you don't want it orally.
Diagnosed>
<FONT color=#b0e0b0>Medications</B>

Lialda - 4 pills in the morning w/ food.
Steroid Enemas


janicebuf
Regular Member


Date Joined Aug 2006
Total Posts : 67
   Posted 8/20/2008 11:06 AM (GMT -6)   
thanks. I am already of 4 Lialdi a day.  I have steroid enemas which don't seem to help:(

Diagnosed with 'Indeterminate Colitis' (I think UC for sure), April '03
Remission 6/03
Diagnosed with Psoriatic Arthritis 6/06
Currently flaring (UC)
 
 
 
MEDS: 
Lialdi x 4 daily
canasa suppositories nightly
4x4 400mg Asacol, 
40 mg prednisone ~
50 mg. 6mp
folic acid x1 day
colocort enemas nightly
 
         


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/20/2008 11:22 AM (GMT -6)   
20 mg of pred might not even do anything...pred used to work great for me but I've since become resistant to it, it no longer works...people can react differently each time they're on pred as well, it's a weird drug for sure, but for many it has it's place, I'm just not sure if starting as low as 20 would have a big enough impact to make it worth the while of getting some of the possible side effects...of course everyone is different, but try not to be scared of pred, once it's out of your system then things generally go back to normal as far as side effects are concerned anyway.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 8/20/2008 11:29 AM (GMT -6)   
Have you tried sulfasalazine? Rectal meds also help alot. You could try the steroid enemas or the Rowasa enemas, but of course these would be in addition to other meds. Good Luck
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 8/20/2008 12:03 PM (GMT -6)   
I used 20 mg of prednisone and it was great.  Put me right into remission without any side effects (except the hunger).  Have you tried Colazal?  My doc says he only used Lialda if you are prone to "forgetting" to take your meds.  He thinks colazal is a much better drug.  I have also found that bee propolis really helps my UC, but don't take that if you are allergic to bees.  It is a great anti-inflammatory.  Probiotics may help too.  Good luck and I hope you feel better.

diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/20/2008 2:08 PM (GMT -6)   
According to your signature, you've been diagnosed with indeterminate colitis, which means it still could be Crohn's disease currently confined to your colon. It's important to know which you have, because surgery is not curative for Crohn's, and the disease will usually pop up in another part of your digestive system if the colon is removed. Be sure the doctors have a pretty firm diagnosis before proceding with surgery.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, April 23, 2018 9:26 AM (GMT -6)
There are a total of 2,954,575 posts in 324,134 threads.
View Active Threads


Who's Online
This forum has 162177 registered members. Please welcome our newest member, sksk111213.
372 Guest(s), 9 Registered Member(s) are currently online.  Details
Lendi, bleepitybleep, Cberg, Hope4Happiness, TomPMorgan, peterusa, Lymess, Tim Tam, sksk111213