Hi.....sorry for not getting back sooner. I can relate to the feeling all too well. It's horrific! Nothing like it.
From what dosage did you taper from pred and for how long were you on it?
Good there's no blood.
Just need to get this straight:
Cortenemas for 3 week nightly.
Finished prednisone a week ago.
Stopped abruptly with no tapering 4 nights ago.
Used enema last night.
Had obvious symptoms of a flare for a day and a half.
I think you should have stayed on the enemas for another week after finishing the pred and then tapered to every second night, every third night..etc.
You could call your doctor for a prescript
ion of dicyclomine. It's an antispasmodic and will help with the rectal symptoms.
You might have a hemmie (but the enemas would have helped I think), but considering you've just gotten off pred, it's quite possibly rebound symptoms....
You could try using use half an enema nightly (keeping the other half for the next night..but wipe the tip with alcohol before putting the cap on)
if you're thinking it's too much steroid dosage for your butt.
There are also foam enemas with a lower dosage of med that might work for you.
What happens to you from using the 5ASA...which ones did you try? Did you try any rectal 5ASA meds?
Hope you're improving...but do ask for the dicyclomine. It will definitely take the edge off the rectal spasming.
Are you on any other supplements? Are you taking probiotics?
You could consider a fibre supplement to bulk up the stool a bit.
Do you have refills for the enemas? When did you see your doc last?
Hope this doesn't set you back too much.
Keep me posted.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!