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landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/20/2008 1:40 PM (GMT -6)   
Quincy, since you seem to be the most knowledgeable on rectal meds, I have a question for you.  I have been on Remicade now for 5 months...it has helped some, but im not all the way out of the woods. Recently, the doc told me to try the cortenemas, since I seem to be not compatible with any asa's.  Anyway, I have used these now for three weeks......my stools are formed most of the time....I still have urgency first thing in the morning, but today was a doozey....I slept great..retained the enema all night....first thing I had to go...not unusual.....mostly formed stool....about an hour later I had to go again...not unusual.....formed stool...no blood, but it felt as if I was trying to pass a baby.....now for the rest of the day I have had clear fluis...not alot, but several evacuations...I assume mucus.....thing is ....I did the enema last night for the first time in 4 nights after having a rough night the night before.....I did not have this mucus/fluid problem at all yesterday...also...my ass hurts today...right in the rectum...again...no blood, no tissue all day except the rectal pain and the fluid.....Is the enema causing irritation since I have been on and off for weeks...is it possible that the cortisone is too starong for my inflamed area low in the rectum???? Would you stop the enema again or keep going through it to try and suppress the ovious inflammation....I am lost on this one>>>off all pred for over a week....if any blood the last week it is very minor watery with the first stool only...maybe hemmie????the feeling of fulllness is alarming but no blood...any advice?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 8/21/2008 2:16 AM (GMT -6)   
Hi.....sorry for not getting back sooner. I can relate to the feeling all too well. It's horrific! Nothing like it.

From what dosage did you taper from pred and for how long were you on it?

Good there's no blood.

Just need to get this straight:

Cortenemas for 3 week nightly.
Finished prednisone a week ago.
Stopped abruptly with no tapering 4 nights ago.
Used enema last night.
Had obvious symptoms of a flare for a day and a half.

I think you should have stayed on the enemas for another week after finishing the pred and then tapered to every second night, every third night..etc.

You could call your doctor for a prescription of dicyclomine. It's an antispasmodic and will help with the rectal symptoms.

You might have a hemmie (but the enemas would have helped I think), but considering you've just gotten off pred, it's quite possibly rebound symptoms....

You could try using use half an enema nightly (keeping the other half for the next night..but wipe the tip with alcohol before putting the cap on)
if you're thinking it's too much steroid dosage for your butt.

There are also foam enemas with a lower dosage of med that might work for you.

What happens to you from using the 5ASA...which ones did you try? Did you try any rectal 5ASA meds?

Hope you're improving...but do ask for the dicyclomine. It will definitely take the edge off the rectal spasming.

Are you on any other supplements? Are you taking probiotics?

You could consider a fibre supplement to bulk up the stool a bit.

Do you have refills for the enemas? When did you see your doc last?

Hope this doesn't set you back too much.
Keep me posted.
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/21/2008 5:20 AM (GMT -6)   
Quincy, thanks for the reply.  I had been tapering the pred very slowly....1mg every three weeks, so I do not think it is any fallout from stopping that.  Last night, I used the proctofoam instead of the enema, and thismorning is much less urgency....formed, but small stools, but there is blood on the outside of the stools....dried up and clotted but it is there.  The mucus stopped yesterday around 5pm.  slept throught he night fine.  I am using metamucil sometimes once but yesterday twice.  That may be why the mucus stopped?????   do you think this is rectal only?  why would the blood be coming back?  no ther symptoms...no gastrro colic reflex when I eat.....no urgency during the day except the short blasts of mucus from time to time.  I swear it feels like it is right there inthe bottom of my butt!!!!  what is your take on trying caprylic acid as a potential anti fungal if that is what is causing this?  My WBC count is up and doc says that is due to remicade, but perhaps that is inviting yeast to take over....I try to stay away, but I am a chip freak and I do give in now and again.  All that being said, I ate ice cream yesterday with no ill effects.  Do you think I should go to three times a day on the metamucil?  it reall seems to slow the fluid/mucus buildup.....will that promote healing of the last part that is obviously still inflamed?  Do you think the enemas are too much and causing irritation?  Could too much metamucil bulk the stool to proportions that might make it hard to pass given the lower inflammation?  any advice would help....

landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/21/2008 5:23 AM (GMT -6)   
Also...on Asacol, Lialda and colozal, I got increased movements ...I mean alot......I have not tried the rectal 5 asa due to the fact I thought they would produce the same results.....is that not true?  I feel like I am so close, and its a very frustrating posiition to be this close and then have setbacks.....In all reality, I am not convinced the remicade is doing anything...I actually feel worse for a week after I get an infusion.....does that sound stupid?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 8/21/2008 1:05 PM (GMT -6)   
Hi...you're in a more complicated situation than I've ever been, so my suggestions regarding Pred and Remi are limited and skewed.

Remi doesn't work for everyone...the same for all the meds.

I still think the pred discontinuation and the abrupt stop of the enemas had something to do with the symptoms you had yesterday.

You should try the Caprylic acid if you think that's an issue..discuss it with Kim or Princesea..they're the ones with the experience.
I've never done it, but to those with success, it's worth their input and feedback.
You should be on probiotics..you didn't mention if you are.

Metamucil will soak up some of the stuff in the colon and help with some of the spasming. Anything in the area where it's inflamed will force/trigger expulsion...even if it's just mucus our liquid.
I would say you have milder inflammation higher and more fragile inflammation rectally considering the symptoms...that's why the metamucil will help the liquid/mucus...a good thing.

Try not to use Metamucil with too much stuff in it...the smooth (not the sugar-free stuff) would be the best.
Do make sure you're eating and getting enough fluid throughout the day if you're upping the amount. You could end up with a blockage if there's only that going through the digestive tract..not good to create more problems.

I think the blood might be back because of the rebound symptoms or too high of steroid in the rectum/sigmoid. Kind of a catch 22...you have to find out your options (and good to hear you do have them at hand), and try to figure out what works.

How high a dosage were you on each of the 5ASA oral meds?

How often do you get the Remi? Do you get a shot of something before you do the treatment?

Consider the probiotics for sure.
Put out another question for Kim123 and princesea regarding Caprylic acid.

Hang tough....see it as a setback rather than a failure...just think of all the experience you're garnering.. eyes smilewinkgrin
 
quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/21/2008 2:54 PM (GMT -6)   
Again, thanks for the reply.  I was on 9 colozal a day...or 4 lialda a day, or 6 asacol a day.  Every time i tried each, a few days would pass and the flood gates would open.....it would stop the blood, but the watery stools definately increased with each drug and slowed down when i stopped.  Thats the weirdest thing....when I started flaring last septmber, the doc immediately put me on lialda and pred....after 5 days I was worse than when i started and this whole cycle got going...then came the colozal and then the remicade....I crashed on the 5mg dose of remi in march and he upped it top 10...I swear it helped some...but in the end it is just a band aid i believe.  I do take a tylenol and a claritin before the infusions as well.....but i swear the remi makes me sicker for about a week after the infusion...maybe it's just my overactive brain taing over and focusing too much on it......I know if I took 5mg of pred I would shut down the mucus but I just dont want to at this stage....glad to be off of it....thats why I was wondering about the caprylic acid.....maybe its fungal.....the metamucil wokred the last flare I had 5 years ago...it did take a little while, but it did heal up...hoping that will happen again....all of my gut sounds have gone away for the most part, and I dont seem to be food sensitive except for shellfish......I had been on proctofoam since january as well.....do you think that sticking steroids up the old bum for this long has irritated the rectum to where it just needs to be away from all of that?  is that possible?  I am thinking to go cold turkey on the rectals and try upping the metamucil...your thoughts??   I know that is you use too much cortisone on your face you can get what is called thin skin....is that possible in the rectal area as well?  thanks again for your replys

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 8/21/2008 11:40 PM (GMT -6)   
You're welcome...I hope my perspective is helpful.

For sure you cannot use 5ASA meds...not even an option for you. At least you gave then a fair try.

Definitely steroid enemas will cause thinning of the mucosal lining in the rectum. If you're wanting to stop them...I would suggest you do it in a fashion like this:

skip one night, skip two nights, skip three nights, skip 4 nights, skip 5 nights, skip 6 nights, finish or do it one a week. So, it should take you a few weeks to finish.

or...go cold turkey and do the above if you have symptoms...like a booster rather than a treatment. All you can do is try. We've all been there one point or another.

There is a fibre supplement that has inulin which is supposed to produce butyric acid that helps to repair the mucosal lining of the colon. Something to consider instead of Metamucil. Fiber Choice is one that makes it...but if you are going to try them..don't use any artificial sweeteners in the ingredients, especially sucralose and aspertame...By the way...are you using any..in gum? That could contribute to some of the diarrhea.

Regarding the Remi making you sicker...maybe it's not for you. You do have to listen to your instincts.

Probiotics? Are you taking any??

Keep me posted as to the enema experiment..lol!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/22/2008 3:48 AM (GMT -6)   
well thanks again for the reply....I did not do the enema two nights ago and used proctofoam......last night i did the enema and the same thing happenned......had semi loose full bowel movement with blood and then a formed one with no blood followed by those expulsions of tring to go with nothing coming out......it really appears that my colon does not want this steroid anymore...does that make any sense????? i did not have the urges with the proctofoam, but just the intermitent mucus during the day......I am thinking of stopping all rectals to see if that does any good.....I know ou say treat both ends, but I swear my body does not want them anymore......would the rowasa inflict the same results on my colon as the oral asa's? even in suppository form?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 8/22/2008 11:00 AM (GMT -6)   
totally makes sense...could also be a preservative in it that your butt doesn't like.

If your symptoms are consistently worse after using, then don't. I do have a looser stool sometimes after the Salofalk...but that's no biggie for me. I don't bleed anymore, however.

You could try the Canasa which is a 5ASA suppository. Low dosage 1000mg compared to the enemas. Worth a try.

I would nix the liquid enema and maybe use the foam in a few days.

All you can do is experiment.

Do get on a probiotic...for sure.

Keep me posted.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/22/2008 4:31 PM (GMT -6)   
I was on a probiotic for over a year...tried vsl3, and then primal defense for over 4 months. I swear they made me worse.....about two years ago my wife got me to try Kefir....I was in total remission and it really tore me up...did not send me into a flair but gave me D.....anyway, the probiotics seem to aggravate my stomch something fierce....it sounds like a bunch of guys runnign around in there when I take them.....my gut sounds and gas have definately gottenbetter since stopping them.....does this sound weird? Also, today was interesting...I had three mucus movements....forst was pink...second was clody and third was just liquid...clear.....I swear that enema tore me up somehow and it seems like I am healing...I hope....oh and the stool I passed last thing this morning was hard as a rock and it hurt...maybe its just the hard stool tearing agaoinst tender colon walls? the blood was clotted and dark like it had been in there a while...maybe my stool just scraped it off of the walls of the intestine? does that sound possible?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 8/23/2008 2:24 AM (GMT -6)   
All sounds plausible.

Kefir is a milk product, can see that it would give you some diarrhea. I get horrendous gas pains from yogurt..don't bother with it anymore.

Most probiotics are enteric coated..some dissolve in the small intestine, others in the colon. I think it's trial and error regarding probiotics. I take mine at night before bedtime, never during the day...yes, I get gassssss from them, so functioning daily is uncomfortable.

Your new situation poo-wise could very well be from too meny enemas...or the post-prednisone withdrawl has your adrenal glands starting to produce enough cortisol, or you're on the way to healing.

Yes, bms can cause the fragile inflamed tissue to bleed (friability). Nothing like hard stool through an inflamed butt...yeow! But...you only bled a bit, so that's probably pooled blood..you'll more than likely present the same at tomorrow's first evacuation.

Are you eating fairly often...small meals more often throughout the day?

Hope the weekend has you feeling even better yet!

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/23/2008 5:52 AM (GMT -6)   
Your right...although the night time was much more comfortable...slept through the night except for the usual 2 am gas experience with the smallest amount of mucus......No rush to judgement this monring for the first time in forever....guess no enema or foam to expel......everything even waited until the coffee was done......formed stool....multpiles but formed....very little fluid....dark stool but not black...and some clotted blood...not fresh...no gut pains or straining either....what is pooled blood???? Is it blood that is left over in the colon that has been there a while????or is it stuff that was produced overnight? it seems strange that I could have clear mucus yesterday and no blood but some in the morning......i guess mucus could form below where the blood was pooled...is that possible? This is so different that the flares I am used to with massive D and unformed stool......i think i was scorching my colon with too many steroids......Is it possible to have pred withdrawl even on such a slow taper that I was on...I was on 1mg for 3 weeks and 2mg for 3 weeks before that? Is pred that powerful?

landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/23/2008 6:38 AM (GMT -6)   
One more question.....s it normal to have hard formed stools and dark pooled blood if your healing? sounds plauisible....and there is a burning pain sometimes which feels like the stools are passing through inflamed tissue.....is this a sign of healing if there is no D and very little fuid?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 8/23/2008 10:45 AM (GMT -6)   
The reason you probably don't remember experiencing this is because it's lower in the colon..which is, by the way, sometimes a difficult area to treat and one doesn't seem to notice as drastic healing results as if one has diarrhea.

Pooled blood...maybe my term...blood that's in the colon/rectum and expelled at a later time. With less bms, it'll have time to sit longer.

I'm assuming that prednisone can have rebound flare symptoms after tapering since there have been many who are pred dependent and can't seem to ever get off them....maybe for some, it's that way.

Good take on the expulsion of the liquid enemas in the morning....

mucus is formed at high speed when there's inflammation. Be grateful it's there so that stools can have an easier time to go through the chute..haha.

The lower in the colon inflammation, the symptoms would be less...such as constipation...not noticed by many.

Do you have rectal discomfort/pain/straining when you have a bm?

Maybe try the foam enema in a few more days...like a booster rather than a constant.

What other supplements are you on?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/23/2008 11:55 AM (GMT -6)   
its funny you mention constipation...the two days out of the last 4 I did not take the cortenemas, it is almost like a small amount of constipation as far as the stools are concerned.....they are smallish in nature without a complete feeling of being done...again they are well formed and very firm.....yes it does hurt when I have a movement....almost like thr colon straining to get it out and what comes out is very formed and of average size.....taking some metamucil once in the am and sometimes in the pm.....fish oil....multi vitamin...I just changed vitamins to one more potent with iron....could the more powerful vitamin be having any adverse effects? I take nexium as well.....this is all definately different than it has been....like i said the first stools come out with some blood on the outside and some dried clotted blood as well in the bowl.....no D.....the mucus then follows several times over the course of a couple of hours like I had irritated the very end of the canal....and its not much....just like a shot glass full...it starts with some watery blood residue, then after the third time it is clear.....around 11 it is over and then around 6pm I will have another little shot of mucus then nothing till the next morning.......last week before my remicade on thursday I had none of these issues.....I was using the enemas and having large formed bowel movements, no pain and sometimes a little blood and sometimes none......this is very similar to what happenned in the week after my last infusion...much more inflamed that subsided after 10 days or so....I swear the Remicade interacts with something in my body to produce inflammation...I know that sounds stupid, but the results are there for me to see...If I get progressively better this month I think i will scratch the next infusion for a couple of weeks to see what happens......I never get the usual great feeling from Remicade that most people do for a couple of weeks following the infusion...in fact just the opposite. My liver is very sensitive to meds..I could not stay on 6 mp due to my enzymes and I feel the Remicade might be taxing myh liver to the point it is putting out more cytokines to try and ward it off...does that make any sense? Also anyone else who reads this is welcome to reply, and I really aprreciate all of the input.....Also, the last time I tried colozal it did clear up the bleeding but made me have more loose stools during the course of the day...that was on 9 a day.....do you think trying 2 or 4 a day might not make me react and have some therapeutic effect

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 8/24/2008 12:34 PM (GMT -6)   
Hi...you're male or female?

If you don't have an iron deficiency, you don't need the iron.
Eat foods that have iron....better to be absorbed.

Are you at least eating? Make sure you're getting enough protein...eat smaller meals but more often during the day. Get the colon actually working rather than just spasming.

Rectal pain upon bms...you're inflamed. The enemas will help. You could consider to ask for Canasa suppositories.

I don't have any experience with Remicade....maybe you could save it for more periodic infusions rather than regularly. I think that's an option for some people....
If you feel worse, then maybe it's not for you. If you're worried about your liver enzymes (hope the doc checks them)..then maybe part of the distress of it is contributing to your flaring,...therefore being counterproductive?

I've never been on Colazal...only Asacol. There's also Pentasa to consider. Always start on a low dosage and increase if necessary..it seems to be how my doc starts things. If one is on a high dosage and has symptoms/side effects, is it that it's not agreeable or just too high a dosage?

You are having low in the rectum symptoms of flaring and inflammation. Call the doc and ask for a 'script for Asacol maybe 6 daily and Canasa supps to start.

Consider another fibre supplement....I mentioned inulin...what do you think?

Fish oil...well...I'm not a follower of it..what kind are you taking. I think since you're having many symptoms at this time, maybe don't use it.

You're having observances which are important. Are you documenting possibly?

Is this the first time you were on pred...how long were you on it again?

When is your next GI appointment?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/24/2008 3:49 PM (GMT -6)   
Thanks again for the reply.....I am a male...39 yrs old......I have tried asacol and it did not do much for me at 2 twice a day....I upped it to 6 a day and it killed me.......I got the yellow horrible stools consistent with pancreatitis, and it made me go more......Maybe I should try going back to the 2 a day to see if it helps.......right now I feel so frustrated cause I feel great most of the day...sleep relatively well....maybe have to get up once...but I have none of the D any more...it feels as if the inflammation is so rectal......the bothersome part is the frequent mucus trips during the day...its not alot...like just a little shot glass full, but it happens about 6 times a day...is this normal for rectal inflammation? Maybe I will try the proctofoam again tonight to see if that reduces any of the rectal inflammation.....Or should I just suck it up and try and get through this stage with no more steroids.......I can tell there is rectal inflammation cause it hurts to go...formed BM's, and I only had 2 ths morning......it feels as if my rectum is really constricted......is there any chance this may go away on it's own with the metamucil...I feel really healthy and I even ran 3 miles today on the treadmill.... Again, is the little mucus bouts during the day normal....no blood either...only blood on the stool first thing in the morning, and the first stool only.....much less today than yesterday with no foam o enema last night.....any thoughts?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 8/25/2008 12:37 AM (GMT -6)   
Did you actually have pancreatitis?

You've only had the mucus bms during flaring or have you had them during other times?

I get that when I'm flaring...but once I start using the enemas, it clears fairly quickly.
I will sometimes get a teeeny bit of mucus the next day after having too much milk (products)...

Continuing inflammation is most likely for the excessive mucus. But, IBS can cause lots of mucus as well....so basically, extreme colon activity, be it mechanical or inflammation, will cause excessive mucus.

Are you eating throughout the day?

You could ask the doctor for dicyclomine...it'll help slow some of the colon spasming and rectal throbbing/discomfort...with the inflammation, there would be extreme spasming as well...it'll help with that too.

I'd suggest to do the proctofoam at least nightly for a few and see if your symptoms lessen.

Since you can't do the Asacol...ask the doctor to maybe prescribe the lowest "working" dosage to help with the inflammation above the rectum.

How were you at the worst of your symptoms before the remi and pred?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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