Accessibility to Healthcare Providers

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kaykay29
Regular Member


Date Joined Aug 2008
Total Posts : 28
   Posted 8/20/2008 6:56 PM (GMT -6)   

Does anyone else have problems with accessibilty to their Dr?  I have had the same scenario play out multiple times over the past couple of years:  flare; call Dr; can't get in to see him; Rx called in; finally see Dr but improved by now, etc., etc.  I feel that he doesn't take my illness seriously enough because I am always so much improved by the time he gets around to seeing me.  The other problem is the ER:  I've been there a couple of times with a suspected bowel obstruction and the minute they hear you have a history of UC they are wheeling you toward the "out" door.  I am convinced that I had a full-blown obstruction which took days to resolve last November but I was sent home from the ER anyway.  I almost feel like concealing the UC history from them but they have it in my hospital chart anyway so that is pointless.  I am tired of feeling like a second-class citizen.  I have a "closed" HMO and cannot self-refer.  The other "wrinkle" is that the physicians at my large clinic own the HMO (weird monopoly).  I live in a rural area so I don't have alot of choices.  Any suggestions?  Thank God I have a small stockpile of Rowasa to self-treat. 


Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/20/2008 7:03 PM (GMT -6)   

Kay - I truly feel fortunate when I hear stories as yours.  I was just diagnosed at age 68.  I have a good friend too - shih tzu/poodle (Penny).

As for access to physician.  Lucky that my clinic of two gasto docs has a wonderful nurse practicianer who is always available.  First appointment was with doctor and have not seen him since.  However, NP works closely with him and my treatment. He, of course, did the testing, etc. I can make appointment with him anytime but it is about a two week wait - usually.

Rachel is so nice and definitely has a better bedside manor!  She will listen - so many doctors don't!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 3X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa
 
 
 
 
 
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 8/20/2008 11:19 PM (GMT -6)   
Hi kaykay, I know you say you live in a rural area. Are you possibly within a few hours of a larger city (or at least a larger town)? Even though it is farther away, it may be an option.
We don't have HMO so we don't have that issue but we have never had trouble getting our kids in to see their GIs (one adult GI and one pediatric GI). In fact, my son cancelled his appointment with his doctor (the adult GI) because he went on a trip. He told the receptionist that he would call again to reschedule. Well the office called the following week because the doctor wanted to make sure he made the appointment!
 
You may have to travel even farther to find another doctor.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!  7/3/08-Step 1 j-pouch surgery


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 8/21/2008 12:23 AM (GMT -6)   
If you're in an HMO, I don't know if you're any better off in a big city than a small town.  I've got an HMO and I'm pretty well stuck with what I've got, although our plan may change when we renew soon.
 
I know my HMO had a hard time getting enough GIs to even do routine colonoscopies.  For years after colonoscopies were the official recommendation, they still used sigmoidoscopies and those stool sample cards.  There just weren't enough GIs around who wanted to work for them.
 
Fortunately it looks like they're moving ahead because now, like Elaine, there's a nurse practioner who is working with me, too. 
 
Potato...  Female, 58, dx mild left sided ulcerative colitis 11/07
asacol 3 3x a day 
cortenema (generic) am & pm 
culturelle, benefiber wafers 
children's vitamin, Vitamin E 400 mg
omeprazole 2x a day
oxazepam when needed, lomotil or ImodiumAD (but not in the same day)
 
 
 
 
 
 


sodbuster19
Regular Member


Date Joined Sep 2007
Total Posts : 343
   Posted 8/21/2008 1:48 PM (GMT -6)   
I am pretty lucky. My GI knows I drive a truck over the road, and he just has me call if I need to come in and he has told his staff that if I call to make room for me. If I'm not having any real problems I just make an appt, but if I have to see him, he fits me in his day. I like my GI. smilewinkgrin

<FONT color=#0000ff>Bad flares Guniess & hot wings

Generic Colazal, 2 2xday
Acidophilus Probotic 3 times/day


kaykay29
Regular Member


Date Joined Aug 2008
Total Posts : 28
   Posted 8/21/2008 8:57 PM (GMT -6)   
I really like my GI too. It just seems way harder than it is to get in and see him. I can't travel to a larger city because of the "closed" nature of my HMO. They do not refer outside of their provider network.
Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/22/2008 9:05 AM (GMT -6)   
My GI is wonderful too; does yours have an email address? I find emailing him questions is easiest -- and he usually responds within the day.
Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 8/22/2008 12:46 PM (GMT -6)   
I haven't seen my GI recently - although I talk to the nurse every few weeks. They are great about getting back to me the same day I call - or early the next day, which is rarely the case.

They call prescriptions in for me regularly.

If he is concerned, the doctor will call me back personally.

So, even though I haven't seen him often, I think he and his staff are great!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 8/23/2008 8:09 AM (GMT -6)   
I'm not really sure how your insurance works, but can you call them and have them give you a list of GI's you can go to? Do you have to have a referral? If so do you have a GP that can recommend one in your network. Many insurance companies will help you if you do a little work on the phone. I have to drive an hour to get to my GI. It's totally worth the drive. It also takes a couple of weeks to get into him. When I call I speak to the nurse and she relays messages to and from the doctor.
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 4 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/23/2008 9:18 AM (GMT -6)   

I drive nearly an hour too.  A GOOD nurse practicioner is worth her/his weight in gold!!  Mine is always available and sometimes calls me late evening after she confers with the gastro doctor.

I also have a NP for primary care - he is wonderful and will "listen"!!  We all need someone who will listen!!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly
 
 
 
 
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/23/2008 9:58 AM (GMT -6)   
I may be slightly prejudiced since I'm a former nurse, but I think Nurse Practitioners give you more time and are more willing to hear about all of your symptoms, even if they don't seem to be related to the IBC. I think that's because nurses are trained to treat the person while doctors are trained to treat the disease.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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